FAQ - guillain-barre syndrome
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Organ donation and guillain barre syndrome


can some one who has had guillain-barre syndrome be an organ donor?
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Is Guillain Barre Syndrome hereditary?


My mom had Guillain Barre Syndrome as a teen, can i get that syndrome too??
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No, if you happen to get it, it won't be due to genetics. It is not hereditary.  (+ info)

what is the difference between guillain-barre syndrome and multiple sclerosis?


Apologies about the confusing answers so far.

Guillain-Barrè syndrome and MS are very similar. Both are autoimmune diseases. Both involve the body's immune system attacking the myelin sheath surrounding nerve cells. And in both conditions, scientists do not know the exact cause.

The big differences are that Guillain-Barrè syndrome attacks the Peripheral Nervous System, while MS attacks the Central Nervous system. As such, since the PNS regenerates, most people fully recover from Guillain-Barrè. The recovery period may be as little as a few weeks or as long as a few years. About 30 percent of those with Guillain-Barré still have a residual weakness after 3 years. About 3 percent may suffer a relapse of muscle weakness and tingling sensations many years after the initial attack. Since the CNS does not regenerate, MS offers no hope of recovery.  (+ info)

Guillain-Barre Syndrome, residual effects, and exercising?


For anyone that is aware of Guillain-Barre Syndrome, they can be aware of nerve damage left over from the illness. I'm a year and a half "recovered" from the illness, but I've got nerve damage in my legs that has left me somewhat disabled and makes it painful to walk or exercise. However, I would love to lose weight. Rather than "be happy" with myself, I would like to improve upon myself and make myself even healthier than I was before I got sick. Does anyone have any kind of recommendation as to what kind of exercises I could do that wouldn't aggravate the nerves in my legs? I've tried water aerobics, but I end up cramping before I get any real "workout." Has anyone had success with recumbent bikes or something like that?
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I had GBS when i was 20, and i'm 25 recovered now, but i do have some nerve damage in my finger tips and my legs. I can walk and run just fine, but i can't bend and squat for more then a min with out it being very painful, and I also still have no reflex in my legs.... I suggest you try a big, or even a stair stepper, it may be difficult, but you need to teach your body to do these things all over again. That is a problem with GBS, you have to reteach yourself. After awhile your body will get used to it again, and you'll be able to excersize like usually.  (+ info)

Doctors told to watch for Guillain-Barre syndrome during Swine flu vaccination programme?


wot are your vews
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This is a very minor worry right now. There was a break out of Guillain-Barre syndrome in 1976 for some unknown reason after a swine flu epidemic infected an entire army base, but they rushed into the production of a vaccine due to the fear of a pandemic. This might be why the vaccine had this rare side effect. This was the last time that this happened. Since studies of the new vaccine have been going on and in mid September the answers whether one or two shots should be finalized. We already have been vaccinated against the H1N1 strain for years now, so most people that get an annual vaccination should be able to get away with just one. These are facts in the time line that has been made available to everyone that wants to read it. This at webmd.com under the link at Swine Flu Vaccine Timeline. Just enter this in the search area and you can read the entire paper. Good luck and God Bless  (+ info)

question about guillain barre syndrome?


i was diagnosed with Gillian barre syndrome and was wondering if you have it the rest of your life. or if it goes into remission or something. just wondering. thanks
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Gullian Barre syndrome occurs in some people after an acute viral or bacterial illness. The body makes antibodies to the illness which unfortunately also attack the bodies own nerves. It typically presents with an ascending paralysis. The main concern is to halt its progression before it involves the diaphragm muscle and makes breathing difficult. It is diagnosed by clinical presentation and nerve conduction studies. The treatment is either plasmapheresis or IVIg. The condition is self limited and almost always results in full recovery of strength. The time for recovery varies from days to weeks.  (+ info)

if my dad got guillain-Barre syndrome from a cortisone injection, can I get it from a flu vaccine?


I am not sure why you seem to think that GB syndrome was caused by cortisone injection? To the best of my knowledge no one yet knows why Guillain-Barré - which is not contagious - strikes some people and not others. Nor does anyone know exactly what sets the disease in motion.

What scientists do know is that the body's immune system begins to attack the body itself, causing what is known as an autoimmune disease. Usually the cells of the immune system attack only foreign material and invading organisms. In Guillain-Barré syndrome, however, the immune system starts to destroy the myelin sheath that surrounds the axons of many peripheral nerves, or even the axons themselves (axons are long, thin extensions of the nerve cells; they carry nerve signals). The myelin sheath surrounding the axon speeds up the transmission of nerve signals and allows the transmission of signals over long distances.  (+ info)

if father contracted guillain-barre syndrome from cortisone injection, can I get it from a flu vaccine?


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Guillain-Barre Syndrome Book for Therapeutic Exercises?


Hello everyone,

My friend has been diagnosed with Guillain-Barre Syndrome 4 weeks ago, she is still in the ICU with her husband.
Her doctor taught her husband really few massage and therapeutic exercises that are helping her a lot.
Another therapist is doing other exercises once a week for her.
Would there be a book you know that has a list of these exercises illustrated so the husband can learn them since he is spending all his time with her and he is the one who cares the most about her pains. The doctors also said that these exercises can only do good and help her recover faster.

I searched the web but found nothing, I really appreciate your help.

Thank you very much.
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Most likely what they are doing are Passive Range of Motion Exercises. You can probably buy a book that shows illustrations online for them at Amazon or ask the Physical Therapist for a book with Illustrations and they will provide them for you guys.

http://family-friendly-fun.com/therapy/passive-range-motion.htm

This link gives some instructions on how to perform them.

I'm sorry about your friends unfortunate diagnosis. I was just made aware of this horrible syndrome last week and It is so scary!

Beest wishes to your friend and her family.  (+ info)

I need help my dad was diagnosed with guillain-barre syndrome can someone give me info on it, he is in the hos


he doesn't have any strength on his legs and has severe headaches
I want to thank all of you for your help God Bless You
Bernie
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All I did was highlight some info from a site- please be sure to check out the link in the source section.

Guillain-Barré syndrome is a nerve disorder. It is an acute and rapidly progressive inflammation of nerves that causes loss of sensation and muscle weakness.

This syndrome causes the destruction, removal, or loss of the myelin sheath of a nerve. Myelin is the substance of the cell membrane that coils to form the myelin sheath. The myelin sheath serves as an electrical insulator to nerve fibers.

It is also known as a polyneuropathy, which is a disease that involves several nerves.

Outlook

About 85% of people with Guillain-Barré syndrome will make a complete recovery. Symptoms will gradually improve over several months.

* Any lasting problems may be addressed through additional physical therapy. Some people might need orthopedic devices to assist with activities of daily living.

* About 10% of people are at risk for relapsing. They will develop chronic neuropathy (nerve problems). For these people, drugs that suppress the immune system and plasmapheresis may be helpful.  (+ info)

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