Are pulmonary fibrosis and fibromyalgia related?

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My wife's doctor was slow to diagnose her interstitial lung disease and now she has extensive scar tissue in her lungs and has been diagnosed with fibromyalgia. If her doctor had caught her lung infection earlier could she have avoided the scar tissue and fibromyalgia ?
Pulmonary fibrosis is not directly related to fibromyalgia. Fibromyalgia can be brought on by stress, so it may be indirectly related. It might be related to whatever your wife does have, if it is not fibromyalgia. While there is a possibility that she does have fibromyalgia, I think you need to get more opinions. Fibromyalgia is another big misdiagnosis (like ADHD) that frustrated Dr's label to appease patients or their families, by giving a name to something that they can't diagnose. It is approaching an 80% initial misdiagnosis rate, and many clinicians seem downright proud to hand out the diagnosis, because they don't have to think anymore and just start addicting the patient to pain meds. According to the National Fibromyalgia Association, it takes about five years on average to get an accurate diagnosis of fibromyalgia. If this diagnosis came about in a week or two, definitely seek more opinions.  (+ info)

my father was diagnosed with pulmonary fibrosis and is on oxygen?

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he is 77 doctors are giving him 3 years but I think it is less my feeling. question is how do prepare when your parents are ill im very close with him how do you prepare yourself for them to die
The best thing you can do is educate yourself and everyone around you. I have pulmonary fibrosis (I am 54). I was diagnosed in March of 2003 and given less than 18 months to live. As you can see, the doctors were off a little on their prediction. While this disease is a killer and it kills 100% of us who get it (unless we get a lung transplant), there are things you can do to help your father with surviving as long as possible.

First, and most importantly, no one, and I mean no one, who has a cold, cough, flu, etc. should ever be around your father. Most of us with PF actually die from some sort of secondary infection. The common cold can kill him. Make sure everyone who visits wash their hands before having any physical contact with him. It is important that he washes his hands frequently as well. Give him a small bottle of the Purell hand sanitizer and make sure he uses it often. Have him avoid crowded places like grocery stores, casinos, etc. They are a breeding ground for germs. If he does go to a grocery store, make sure he uses his hand sanitizer frequently and avoids anyone in the store who is sniffling or coughing. He will find after a few months that he will be more aware of those around him and take more precautions around people who appear sick.

He also needs to go to pulmonary rehab. They will teach him techniques that will help him utilize the lung tissue he has left. He also needs to stay as ambulatory as possible. Get him a portable oxygen tank if he needs it so he can get out and exercise. Have him take vitamin supplements and use the oxygen - it will help his tissues regenerate.

Finally, he is terminal so you need to prepare for the inevitable. Right now you are probably in the early stages of the grieving process. At some point you will come to the acceptance phase of things and the sooner you get there, the faster you can get back to normal. He may be dying, but he is still the same guy he always was. He has the same fears, loves, dreams that he always did. His life is changing, but he is still the same person. Just make sure you never leave anything unsaid and also make sure the last three words he hears from each of you are "I love you." That way if something happens, you will not feel guilty because you didn't tell him.

Sorry for being so lengthy with this response, but this disease is not well known nor well understood by many of us. It is a lousy way to die, but your dad will adjust to his new restrictions and manage to enjoy the time he has left. For more information or support, visit one of these web sites. Good luck to all of you and I hope he proves the doctors wrong.

http://www.pulmonaryfibrosis.org/
http://www.coalitionforpf.org/  (+ info)

Can idiopathic pulmonary fibrosis be cured by any means?

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Idiopathic diseases cannot be cured because there is no known cause. With idiopathic pulmonary fibrosis, the scarring that has already occurred cannot be reversed, but progression can sometimes be stopped or slowed through drugs that suppress the immune system.  (+ info)

Explain how non-toxic bacteria such as Mycobacterium tuberculosis can cause pulmonary fibrosis?

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where can the pulmonary fibrosis medication pirfenadone be purchased?

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Pirfenidone is an orally active small molecule drug that may inhibit collagen synthesis, down regulate production of multiple cytokines and block fibroblast proliferation and stimulation in response to cytokines. Pirfenidone has demonstrated activity in multiple fibrotic conditions, including those of the lung, kidney and liver.
It is as of now, strictly an investigational drug and hasn't been approved by the FDA.  (+ info)

my father has pulmonary fibrosis. Does anyone know about serracor nk?

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When looking it up it sounds promising. Has anyone tried it and what are some of the benefits?
Be very careful. It's touted as a cure for darn near anything. Most everything that has such widespread claims is CRAP.

Ask his lung doctor.  (+ info)

I was diagnosed with interstitual pulmonary fibrosis. Are there any natural products to address this ?

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Sorry to hear about your diagnosis. I was diagnosed almost 5 years ago and given 18 months to live. The doctors tried steroids and Interferon, but no success. I was living in a city at higher elevation, and dying from the polluted air, the disease, the drugs, etc. After 14 months of suffering and ending up on oxygen 24/7, my wife and I decided to relocate to sea level and a location with clean air. I weaned myself off the drugs, and went through pulmonary rehab. I started exercising (using my supplemental oxygen), used a CPAP with oxygen at night (it gives my lungs a chance to rest), and started avoiding people and places where I could catch the cold and flu. The result - I am still hanging in there.

I am not going to beat this disease - make no mistake, it kills 100% of its victims (unless you get a lung transplant). The good news is you can improve the quality of your life by taking care of yourself and making sure you are not exposed to things like the common cold and flu. You also need to become a student of this disease. Knowledge is power, and the more you know about it, the better equipped you and your family are going to be in coping with it. Try these following sites as a place to start:

http://www.coalitionforpf.org/

http://www.pulmonaryfibrosis.org/

Again, I am sorry to hear about your diagnosis. Just know that you are not alone. This killer takes over 50,000 lives every year just in the US alone. The incidence of the disease is on the rise. Your only hope lies in research. You can help by talking about this disease and its terrible effect with everyone who will listen. Don't keep it a dark secret. It kills one person approximately every 10 minutes, yet few people have ever heard of the disease. Good luck to you.  (+ info)

pulmonary fibrosis what is the life span?

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My mum was diagnosed in january and is on 20 mins oxygen a day
will this worsen or will she come off the oxygen
just to be honest. that has no life spanned. yes it might be hard for you and her but. you gotta have faith. She might live too be one hundred years old. help her enjoy life. yes, i want to know because you are worried, but no one knows. my best friend mom had it for 17 years and died at 87 this years. even if you are not religious ,please just pray or find piece with in.your mom need your festivity, and positive energy to get through each day. remember you can be her inspiration.but they do say that the life span is up to 2 to 5 years. but its not your call. its God call.
Good Bless  (+ info)

My uncle has idiopathic Pulmonary fibrosis, please suggest treatment if any of you know anyone survived?

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Dear friends

My uncle has been diagnoised with idiopathic Pulmonary fibrosis 6 months now. He has been told that he would survive for only 4 years. If any one you know survived from this, please suggest what treatment would be good for this.He has dry cough and during cough he has little breathing trouble. No chest pain or so. Please advise.Thank you
I also have idiopathic pulmonary fibrosis. I was diagnosed in 98, the doctors cannot give an accurate prognosis for this disease. It varies from person to person. I'm on 2.5 to 4 liters of oxygen depending on my level of activity, I am not taking any medications now. The shortness of breath and coughing are a normal part of the disease. I'm doing OK. Your uncle must do what's right for him. One thing, eat small (6 meals a day is what my doctor has me eating) healthy balanced meals to keep chest discomfort down and his weight up. Keep a good outlook, a great sense of humor, and don't fret this disease, learn to coexist with it. I think that's what has kept me going. Say hi to your uncle for me, he's not alone.  (+ info)

I have cystic fibrosis,asmtha,diabetes,pulmonary embolism,Gerd,hyperthyroidism. What meds can't I take?

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I'm 24 and weigh 90 pounds...I take blood thinners, sleep aids, heartburn med, vitamin D, anti-depressants, muscle relaxers, insulin, pain pills, enzymes, and 4 different breathing treatment med. So what med can I take for cramps? Im allergic to cipro, augumentin, levaquin, naproxen, vancomyicn, gel caps, iron.
You should ask your doctor, because you have some complex medical problems and a complex medical regimen. Where are your cramps at? The blood thinner you are on is Coumadin/Warfarin? If this is the case you would probably want to avoid NSAIDS (Ibuprofen, Naproxen, Diclofenac, etc.), because they can thin the blood a little and this could increase your risk of bleeding. I see you already are on Naproxen, which is fine but you should watch for signs of bleeding. You can take Acetaminophen though. I am not sure if your cramps are in your muscles or your abdomen. Ask your doctor if you are unsure. Good luck.  (+ info)

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