FAQ - Liposarcoma
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What do I do for a person with terminal cancer?


I have recently met a man who I have fallen madly in love with. He is a father of two children ages 5 and 8. He informed me he has liposarcoma and he is terminal. I don't want to leave this man and I am very devoted to him. What can I do to make his life more bearable. I realize that being with him is an excellent avenue on my part but I was wondering if I can be of more support or what can I do for him?
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Do not loose hope yet the info at the site below may just provide you with the answers you need. Good luck, my prayers are with you, I wish I had this info when I was younger and my dad had cancer.  (+ info)

Is it possible for a liposarcoma that started in the abdominal area to spread to the legs?


In 2000 I had a liposarcoma in my abdominal area. About 8 months ago, I found some lumps in my legs. I finally had a CT scan done (lack of insurance) of my chest and abdomen. It was fairly clean except some cysts that they found in my lungs. I also had an ultrasound done of the lumps that are in my legs. 2 of them are measurable, one being the size of a grape, the other the size of a pea. Due to lack of insurance and other life problems, I am unable to see an oncologist. I did talk to one who stated that the chances of my liposarcoma spreading to my legs is unlikely. Unfortunately for me, it was "unlikely" for me to have the damn cancer to begin with. Back then I was misdiagnosed for 7 years before becoming PPO and having the tumor removed.
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One of the most important indicators of the future potential for a sarcoma to come back is something called the tumor "grade". Grading involves microscopic inspection and looking for features like numerous cells caught in the act of cell division. Sarcomas are often referred to as being low grade or high grade.

If you're 8 years out from a sarcoma excision and you're only now looking at whether or not there's some sort of recurrence, you're doing pretty well. That's a long time for a tumor to stay latent. It's actually quite possible that these things in the thigh are nothing more than benign lipomas.

In general, liposarcoma tends to recur at the original site. This is especially true when the tumor is removed from the retroperitoneum, which is the fatty pad of tissue that contains all the structures and organs which are locked in place against the back wall of the abdominal cavity. There's a lot of crowded stuff back there which we're not supposed to remove unless we absolutely have to, and because of that, it's often the case that microscopic disease is left behind after the original surgery.

If you haven't recurred at the original site, then you probably had effective initial therapy with surgery and probably some radiation, too.

You may have also been treated with a chemotherapy regimen based on chemicals such as adriamycin or ifosfamide, if the grade of the tumor warranted it.

When liposarcoma does spread to distant sites instead of just recurring locally, it's probably because it's high grade. In that case, the more likely pattern is for it to go from an initial site to a recurrence in the lung, liver or bone. These are areas where circulating cells can get caught up in the microcirculation, in an environment favorable for their reimplantation and growth.

I suppose it's not impossible for a metastatic regrowth to occur in the thigh, but that's not the typical pattern, even for this unusual disease.

There are some genetic conditions that DO have the potential for giving rise to multiple sarcomas. Therefore to say that it's unlikely that these are metastases of your original tumor is NOT to say that they're not possibly malignant tumors.

Given your history, I'd be more aggressive rather than less, in excising any masses, even if they look a lot like benign lipomas. That's what I suggest for you. Seek excision biopsy.

If they ARE sarcomas, you should probably seek genetic counseling to test for some of the mutations that can lead to multiple sarcomas and which can potentially run in families.  (+ info)

Very nervous please see if you can help Lipoma / Liposarcoma question?


Since I was about 14, I am 25 now I have had a lump in my right armpit... There is a hard tiny ball I can feel and then some squishy mass, maybe tissue around the area

I have gone to doctors to check it... I have seen my Primary care physician many times

I was sent to a surgeon who removes them right in his office about 2 years ago... When he felt around he said he could not do the surgery because it is too deep in my armpit that I would have to be put to sleep and go to a hospital

I was referred to a surgeon at Mass General, I am from Boston and he only felt it and poked around at it... He got a senior doctor to check it too... He was an older man

After they felt it they the doctor said he would not offer be the surgery because there would be more complications then benefits that was about a year ago.... So more or less all these doctors say it feels like a Lipoma

Now in March I felt a lump in my left breast... It was biopsied and came back to be a Fibroadenoma... Then in April I found a another lump in my right breast the same side as the problem with my armpit area

I started feeling around to see if it was connected and just trying to see if any changes

I also started reading alot online about Lumps in the body... I was reading more about Lipomas because when I found the Lump in my breast it was looked at with an Ultrasound and then biopsied

The lump in my arm was once Ultrasounded when I was about 17 and looking back the women who did the Ultrasound was not as professional or in depth as the breast doctor... She didn't go over the area where it was, but I was a kid and didn;t know what to say

Anyways as I have been looking online I have read about Liposarcoma... Could this be what I have.... Does Liposarcoma grow for years 9 years... I know it says Liposarcoma is cancer but for 9 years wouldn't I have some other symptom that the thing in my armpit was worse then a Lipoma which is beign fatty tissue

I am really nervous because the Doctor's office is closed today and I read about all these things.... If someone had cancer could it be with them for 9 years without knowing

I am going to go get an Ultrasound tomorrow on the lump in my right breast and tell them about my armpit, but I am so nervous and would apprectiate your professional or your own thoughts

To add a detail sometimes my the lump in my armpit hurts only if it is being poked at ot if I wear a tight shirt under the arm... Other then that it is fine and doesn;t bother me.... Also if you look at me with my arms down by my side you can see the right side is more puffy near the armpit and breast area almost look like extra fat

I am 25 5'0" 128 pounds
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It isn’t a sarcoma. If it were there would be no doubt in anyone’s mind about it after 9 years, if you were still alive that is.  (+ info)

My Son has dedifferentiated liposarcoma Cancer has anyone heard about this?


My 51 yr old son was diagnosed with dedifferentiated liposarcoma in Nov 2009. He has had 3 surgeries so far. He started his first chemothearpy on 06-21-2010. Just before the chemo they did a borderline scan and in 1 month since his last surgery there was another tumor showing.


What I would like to know if there is anyone who has this cancer or had it, have any alternative treatment? Or if someone had chemo what was the success rate? If anyone knows a web site where I could get more information and answers?
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You can locate others with this type of sarcoma on the support sites. Sarcoma is a rare type of cancer that affects the bones, muscles, ligaments, blood vessels, cartiliage, fat, and soft tissue located in the body. There are over 60 subtypes of the disease. Your son has Liposarcoma. You can contact others with this disease at the following websites. ACOR has a Liposarcoma group and a general Sarcoma listserv with many other patients who have different subtypes of sarcoma.

ACOR: The liposarcoma (cancer) Online Support Group
http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=L-SARCOMA

ACOR: The General Sarcoma (Cancer) Online Support Group
http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=SARCOMA

Other general sarcoma resources:

Sarcoma Alliance
http://www.sarcomaalliance.org/main.shtml

Liddy Shriver Sarcoma
http://sarcomahelp.org/liposarcoma.html

Sarcoma Directory - list of every known sarcoma website
http://www.protopage.com/sarcoma

Hopefully your son is being treated by a sarcoma specialist or at a sarcoma center for best survival chances.  (+ info)

Has anyone or anyone you know had a liposarcoma removed?


Hi I'm a 20 year old Female girl, Just over a week ago i had a mildly aggressive liposarcoma removed from my leg, apparently its a really rare form of cancer, moslty found in men over 60 years old... i know..unlucky.
do you know of anyone that has had this and had it removed and would be able to give me some kind of idea with whats to come in the way of treatment or whatever, has it come back, the experiences..pain ect.
im seeing the doctor in a week, i think they anylyzed it and will tell me where to go from here. but they dont tell me much because they know hardly anything about them.
thanks
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You need a sarcoma specialist and do not let anyone tell you differently. Sarcoma is a rare cancer and needs to be treated by a sarcoma specialist preferably at a sarcoma center. You can locate a sarcoma center at the Sarcoma Alliance. There are also others with Liposarcoma who can answer your questions on the message groups:

Sarcoma Centers
http://www.sarcomaalliance.com/centers.html

The Importance of Treatment at a Specialty Center for Sarcomas
http://sarcomahelp.org/learning_center/articles/sarcoma_centers.html

ESUN: Liposarcoma
http://sarcomahelp.org/liposarcoma.html

You should consider joining the Liposarcoma listserv where you will find other patients with this subtype of sarcoma:

http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=L-SARCOMA  (+ info)

My mom has liposarcoma?


it is attached to her intestines, and they doctors say there is nothing they can do for it. It is for centimeters. If they can measure it, then why can't they treat it? Why do they call it a mass and not a tumor? Did they send her home to day? Why won't they do anything?
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Your mom's doctors are limited in what they are permitted to do, under existing FDA and AMA guidelines. There ARE, however, dozens of safe, effective, and affordable alternatives that WORK. Try a visit to www.cancertutor.com and be prepared for a "rude awakening" about the "real" world of medicine. If you do a little searching, you'll find that your mom's condition may very well be completely reversible, with alternatives.  (+ info)

I had a Lipoma the size of 10 cm removed. What are the chances of it becoming liposarcoma?


I had a lipoma the size of 10 cm removed. What are the chances of it becoming liposarcoma? I am so nervous because of the size. It was located on my right shouloder close to the muscle. I also have a family history of cancer. I had a uncle who past away of a brain tumor which led to cancer, a cousin who had cancer in his bones, my grandmother had cancer in her larnyx and uterus, and a uncle who survived his cancer in his bladder. I am only 27 and so nervous of this lipoma turning into cancer. It was so large in size. The doctor compared it to a large thich hamburger patty. Can someone please help me out?? thanks!!
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if your doctor removed it, it isn't going to grow into anything, it's gone.  (+ info)

My boyfriend has lower back rib pain on the left side. What could that be?


He has had liposarcoma of the leg and the skull , one 12 years ago, and the skull 3 years ago. He has had this pain for about 9 months now. He says its a constant knawing pain that is beginning to get worse.
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From what I have read there is the possibility for recurrence with liposarcoma so you might want to check that out. Is the pain on the same side that he had them in the leg? skull? He had them removed, right? If so there may be myofascial restrictions that can be addressed by a massage therapist that knows how to do myofascial release- think of a pull in a sweater, that's what happens to your connective tissue when you have surgery - the tissue pulls toward that incision sight. Sometimes it can take years before the restrictions start to cause really bad pain.
Good luck. Also you might try acupuncture, that has been great help with my pain management.  (+ info)

will you survive liposarcoma cancer?


Sarcomas are a group of cancers that are almost always fatal, and spread quite rapidly. you might check out the Sarcoma Alliance for more information:

http://www.sarcomaalliance.org/  (+ info)

Lipoma or liposarcoma?


My sister has had a tumor on her thigh for many years (probably more than twelve or fourteen). Early on she had a doctor feel it and he said he thought it was a fatty lipoma but that she could get it biopsied and she didn't. Over the years it has grown much larger. It is situated over her muscle on her thigh and she says that it is now almost the size of her muscle.
Recently she noticed that she has two small tumors the size of peas (one above her knee and one higher on her thigh).

She DOES have a doctor appt. to get this checked out.

I am very scared and am wondering if it is AT ALL POSSIBLE that a lipoma can grow very large.. and also that it can have smaller tumors near it? Is it possible that this can turn out okay? I am hoping a doctor can answer this.
Thank you.
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Only a biopsy will tell if this is benign or malignant . . no one here can tell you what this is . . as it should be clinically examined. Anything that large and increasing in size should be cause for concern. Lipoma's in general stay the same size or grow very slowly between 1 - 3cm, what you describe seems very large. At this point, cancer cannot be ruled out.

Hopefully this will turn out to be a scare . . but either way your sister should have this removed as soon as possible.

Good luck.  (+ info)

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