FAQ - aphakia
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MY BROTHER HAD UNDERGONE AN EYE SURGERY.NOW HE IS HAVING ATTACHED RETINA WITH MACULAR PUCKER WITH APHAKIA WIT?


MY BROTHER HAD UNDERGONE AN EYE SURGERY.NOW HE IS HAVING ATTACHED RETINA WITH MACULAR PUCKER WITH APHAKIA WITH LOW INTRAOCULAR PRESSURE.IS THERE ANY CHANCES OF VISION TO COME BACK??PLEASE DO REPLT AS SOON AS POSSIBLE.
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It is not looking very great. Macular Pucker reduces chances of good vision. Low pressure is another thing which is again not a good sign. We need to wait and see.  (+ info)

Can someone help my friend by finding someone who can build her some special glasses?


My friend is a girl without the crystalline lens (aphakia) and she wears eyeglasses with positive bi-courvous lenses +16 and +3 of astigmatism.
She's finding someone who can build her eyeglasses with a maximum central thickness of 4mm.
She will pay 10000 euros.
If you know someone who can build her those eyeglasses, please, write her an e-mail. her address is [email protected]
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Maybe you could get an ophthalmologist to place a lens. Secondary implants are not that difficult to do and it'd change her life. Is there a reason she's aphakic? What is the reason she had her lens removed? Age? Other diseases her ophthalmologist would need to be aware of? Status of the other eye? Can she travel to the US? Can get the surgeons without any difficulty. She'd need to travel and be here for about a week or so.  (+ info)

What is Peter's anomaly?


I'm just researching on all these eye problems I have...and I can't really simplify up what Peter's anomaly is. All I know is that I was born with it...then it somehow caused aphakia, secondary glaucoma, dense amblyopia, esotropia, hypotropia, foveal hypoplasia, and some corneal decompensation in the next few years.
and..
Now I'm 13 and am just trying to lower my eye pressure. I use Betopic S and Alphagan P, but those have so many side effects. Anyone have any ideas for new meds? [so i can ask dr :)]
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I am sorry for you. It looks to be a rare genetic disorder with not many answers, but it does sound like they can do corneal transplants?By the way, you spell extraordinarily well for a 13 yr. old? Those are big words that I would have to look up and I am a nurse...ADDED MORE LINKS AT BOTTOM ...looks like sometimes they do corneal transplants and sometimes do some sort of drainage tube in the eye (but not much success with the drainage tube)

If you are seeing an opthalmologist, I am sure he knows about all the eye drops and treatments to lower the eye pressure, because although he may not see any other patients with Peter's anomaly, he would see a lot of glaucoma patients who also need to get their eye pressure down...

Here are some links that I found on the web. You might want to call NORD at the phone number given or email them at that email address and see if they know anything. It seems to be so rare that it is not even listed on the rare disorders list...maybe you could get them to add it onto their list...

You could also try to contact the Pediatric Keratoplasty Organization at the phone number or email that is listed here (and they are taking a list of doctors involved, so you might want to get your doctor listed here). There are lots of web links listed there.

Then there is the Peter's Anomaly support group. You could try there for info.Hope this helps. Good luck and God Bless..

NORD (National Organization for Rare Disorders)

Peter's Anomaly (2/04)

Note: At this time, there is no report on this topic in NORD's Rare Disease Database. However, if you call the NORD office at (203) 744-0100, we may be able to send you information (or referrals to other possible sources of information) on this topic through the mail.
http://www.rarediseases.org/search/art_detail?article=1232

Pediatric Keratoplasty Association
a/k/a: PKA

Address:
Dept of Ophthalmology
Westchester Medical Center
Valhalla, NY 10595

Phone: 914-493-1599
Fax: 914-493-7445
800 Number: --
TDD: --
Email Address: [email protected]

The Pediatric Keratoplasty Association is a voluntary, not-for-profit organization dedicated to the treatment and management of infants and children with corneal diseases. It provides patient and professional education, supports research, promotes support groups and publishes a newsletter. It serves families from the United States and other countries affected by eye diseases such as Peter’s anomaly, sclerocornea, and corneal opacities. With approximately 150 members, the association was established in 1995.

Website: http://www.pedkera.org

http://www.rarediseases.org/nord/search/orgdetail_full.html?org_name=Pediatric%20Keratoplasty%20Association

Peter’s Anomaly Support Group
http://rob66.freeyellow.com/
WWW.PETERSANOMALY.ORG

Here are a few more links

http://rarediseases.info.nih.gov/ (National Institutes of Health ..Office of Rare Disorders)
http://www.eurordis.org/article.php3?id_article=648&var_recherche=peter%27s+anomaly (link list to medical sites for the general public)
http://www.eurordis.org/article.php3?id_article=489 (link list to rare disorders websites)
http://www.orpha.net/consor/cgi-bin/data.php?ActType=Pat&Form=Pat&PatId=2590.0%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20&PHPSESSID=16a9a8daa84e2e82ae8634897a2c1b30 (peter’s anomaly)
http://www.orpha.net/consor/cgi-bin/data.php?ActType=Pat&Form=Pat&PatId=968.0%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20%20&PHPSESSID=16a9a8daa84e2e82ae8634897a2c1b30 (peter’s plus syndrome)

http://www.orpha.net/consor/cgi-bin/form.php?PHPSESSID=16a9a8daa84e2e82ae8634897a2c1b30&Form=Rcf&PatId=2590.0&PatLbl=Peters+anomaly&FldLoc=&RbtLoc=Cnt&Country=+&Submit=Search&IsSubmitted=yes (list of 4 research projects in foreign countries)

http://www.emedicine.com/oph/topic112.htm (emedicine peter’s anomaly)

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=pubmed (Lots of articles that mention Peter’s anomaly at PUB MED, plug disease name into search engine)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=PureSearch&db=pubmed&details_term=Peters%20anomaly%5Btw%5D%20OR%20Peter%27s%20anomaly%5Btw%5D (articles at Pub Med)
http://libcat.uchicago.edu/ipac20/ipac.jsp?session=11G0R21578858.10869&profile=ucpublic&uri=full=3100001~!2233229~!2&ri=1&aspect=subtab13&menu=search&source=~!horizon (book? Or article? At Univ of chicago)  (+ info)

Can someone please help me understand my Medical Benefits?


Ok guys and gals. I need some help understanding my medical benefits.

I am looking to get Rotator Cuff Surgery but need to understand how much I am looking to pay.

If it helps anyone I have the Kaiser "KP Classic" Plan.

Here are the details of my plan:
Type of Service Copay or Coinsurance
Professional Services (Plan Provider Office Visits)
Primary/Specialty Care $15.00 copay
No Payment
Provider Group Visit $7.00 copay
No Payment
Routine Physical $15.00 copay
No Payment
Well Baby/Child (0-23 Months) $5.00 copay
No Payment
Eye (Refraction) Exam $15.00 copay
No Payment
Hearing Exam/Test $15.00 copay
No Payment
Family Planning Counseling $15.00 copay
No Payment
Scheduled Prenatal Care Visits $5.00 copay
No Payment
First Postpartum Visit $5.00 copay
No Payment
Physical, Occupational, and Speech Therapy Visit $15.00 copay
No Payment
Dialysis Related Office Visit No Payment
Care Management Visit No Payment
Case Management Visit No Payment
Outpatient Services
Allergy Injections $3.00 copay
No Payment
Allergy Testing $15.00 copay
No Payment
Chemotherapy No Payment
Day Surgery Transgender Not Covered
Dialysis Care $15.00 copay
No Payment
Imaging (X-rays) No Payment
Immunizations No Payment
Infusion Therapy Services No Payment
Laboratory Services for Preventative Care No Payment
Laboratory Tests No Payment
MRI, PET, CT Scan No Payment
Outpatient Surgery (including Conscious Sedation) $15.00 copay
No Payment
Radiation Therapy Pre 2008 No Payment
Special Procedures No Payment
Tuberculosis Testing (PPD) No Payment
Ultraviolet Light Treatment No Payment
Preventative Services
Routine Physical $15.00 copay
No Payment
Well Baby/Child (0-23 Months) $5.00 copay
No Payment
Audiology and Vision Screening No Payment
Eye (Refraction) Exam $15.00 copay
No Payment
Family Planning Counseling $15.00 copay
No Payment
Hearing Exam/Test $15.00 copay
No Payment
Immunizations No Payment
Laboratory Services for Preventative Care No Payment
Office Dispensed Contraceptive No Payment
Preventative Services Imaging (includes Preventative Mammograms) No Payment
Scheduled Prenatal Care Visits $5.00 copay
No Payment
Sigmoidoscopy Screening $15.00 copay
No Payment
Tuberculosis Testing (PPD) No Payment
Imaging and Laboratory
Imaging (X-rays) No Payment
Preventative Services Imaging (includes Preventative Mammograms) No Payment
MRI, PET, CT Scan No Payment
Laboratory Services for Preventative Care No Payment
Laboratory Tests No Payment
Therapy/Rehab
Multidisciplinary Rehabilitation - Inpatient No Payment
Multidisciplinary Rehabilitation - Outpatient $15.00 copay
No Payment
Musculoskeletal Therapy Not Covered
Physical, Occupational, and Speech Therapy Visit $15.00 copay
No Payment
Respiratory Therapy $15.00 copay
No Payment
Vision Service
Eye (Refraction) Exam $15.00 copay
No Payment
Primary/Specialty Care $15.00 copay
No Payment
Lenses for Aniridia No Payment
Lens Fitting for Aniridia No Payment
Lenses for Aphakia (0-9 yrs) No Payment
Lens Fitting for Aphakia No Payment
Women's Health Services
Primary/Specialty Care $15.00 copay
No Payment
Office Dispensed Contraceptive No Payment
Scheduled Prenatal Care Visits $5.00 copay
No Payment
Fetal Non Stress Test No Payment
First Postpartum Visit $5.00 copay
No Payment
Elective Termination of Pregnancy $15.00 copay
No Payment
Therapeutic Abortion $15.00 copay
No Payment
Inpatient Obstetrical Care and Delivery No Payment
Family Planning Services
Family Planning Counseling $15.00 copay
No Payment
Office Dispensed Contraceptive No Payment
Sterilization (Outpatient Hospital Setting) $15.00 copay
No Payment
Elective Termination of Pregnancy $15.00 copay
No Payment
Infertility Treatment
Infertility Office Visits 50.00% coins
Infertility Imaging (X-rays) 50.00% coins
Infertility Laboratory Tests 50.00% coins
Infertility Special Procedures 50.00% coins
Infertility Outpatient Surgery 50.00% coins
Infertility Hospital Inpatient Care 50.00% coins
Health Education
Health Education Group Visit No Payment
Health Education Individual Visit $15.00 copay
No Payment
Smoking Cessation No Payment
Hospitalization Services
Hospital Inpatient Care No Payment
Inpatient Obstetrical Care and Delivery No Payment
Multidisciplinary Rehabilitation - Inpatient No Payment
Hospital Inpatient Care Transgender Not Covered
Inpatient Detoxification No Payment
Inpatient Psychiatric Care (Parity) No Payment
Inpatient Psychiatric Care (Non-Parity) No Payment
Emergency Health Coverage
Emergency Care (waived if admitted) $50.00 copay
No Payment
Emergency Department Observation Only $50.00 copay
No Payment
Urgent Care $15.00 copay
No Payment
Mental Health Service
Medication Management $15.00 copay
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Here's a neat suggestion! Pick up your telephone & dial the toll free number for Kaiser Insurance Company. Listen to all the information to decide which number to push for the information you need. That's what high premium costs for health insurance are for - to pay people to give out that information to it's policy holders!  (+ info)


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