Diffuse Scleroderma?

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My husband has been diagnosed with Diffuse Scleroderma. We have 4 children and I work part time. We are worried about the prognosis - but this seems to vary from doctor to doctor as each person's conditions are different. His skin and lungs are definitely affected. Should we be overly concerned about this disease? He is in the early stages. Wondering if anyone else can advise of what steps I might expect - and what I can do or plan for in preparation of the years to come. Thank you.
My mother-in-law lived with Scleroderma for about 16 years. It was a very painful process for her. Her hands and feet were effected and so were her internal organs. There isn't a lot of information on Scleroderma and it is good that your husband got an early diagnoses. There is a support group in the county I am from but, it is really small because it is such a rare diagnoses.

I am sorry for your family to be going through this. There will be rough times ahead and your husband may start to need help with even the smallest daily tasks. I had to help my mil brush her teeth as she couldn't grip a tooth brush and her hair also. We helped tie shoes and those sorts of thing. Your husband will need you to be strong and understanding. I hope the best for you and will keep your family in my prayers.  (+ info)

If anybody is associated with the Scleroderma Foundation or Federation, do you know if there is funding?

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In other words, if a scleroderma patient has no insurance, do you know if there is funding available that would help that scleroderma patient?
Do a little more web research and contact those who're available via internet.
God bless.  (+ info)

what symptoms 1st appear in someone with lupus or scleroderma?

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what are the 1st symptoms usually experienced if you are suffering with lupus or scleroderma, do symptoms persist or can they come & go.
I'll try and answer the lupus one as that's what I know. The symptoms are very wide as lupus is a very individual illness that isn't the same in any 2 patients.

In my case I woke up thinking I had a very bad case of flu. I never went to the doctor as I was always fit and healthy but did so in this case as I really felt awful. I was sent away by the GP who said I should just take some paracetamol and go to bed (she didn't examine me).

The next day I woke up in a pool of sweat and I couldn't move at all. All my joints were swollen and I had a rash on my legs, I also had a blinding headache. A doctor was called and I was rushed to hospital as they thought it could be meningitis. I stayed at the hospital for a week (no blood tests were ever taken!), I was then sent home with the diagnosis of a 'virus'. For the next 4 years, about once a month I would go to my GP describing classic lupus symptoms (I didn't know what lupus was at the time). It was only when the doctor got fed up with me and I had severe joint pains that they referred me to a rheumatologist who immediately diagnosed systemic lupus.

In a lot of the patients we see, the most common symptoms seem to be the exhaustion, depression and joint pains, most people have said they have had them all at some time. Then we all have had some or all of other symptoms such as mouth ulcers, hair loss, etc etc. The symptoms of lupus 'wax and wane' in other words come and go. They can be triggered if you're particularly stressed or even have something as simple as a cold. Lupus can also sometimes go into complete remission (although lupus is currently incurable so it never totally goes away and can be triggered again).

If you read the patient stories on our website you will see that the start in each patient varies http://lupus.org.uk/whatislupus/whatislupus.htm. We will also be launching a brand new lupus documentary in the next few weeks (which will be available for everyone to view free of charge on our website) and again you will see patients talking about how their lupus started and it's different in each case.

Hope that helps a bit.  (+ info)

How to diffuse hair with a diffuser attachment?

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How do you diffuse hair to make it curly? What is a good brand of mousse?
hi there


I think it may be helful to know what diffuse mean ,and I belive that may be helpful in understanding  (+ info)

My mom has scleroderma; what is the best way to comfort her from afar?

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My mom was diagnosed with scleroderma 6 or so years ago. Lately, she says it has been getting worse, affecting her esophagus and she needs to get it stretched.

I'm her only family, and I live over 5000 miles away. She has a few friends, but no one to insist they go to the hospital with her etc. It's breaking my heart...what else can I do besides call her and give her my love and support?
I don't understand what her condition is, but i'll try to help in the best way I can.

"Life is too short so take the time and appreciate". -Lyrics by Nicholas Jonas.

Appreciate the fact that your mother is alive. You have an oppertunity to visit her, so why dont you? She is your MOTHER. Come on - you LIVED inside of her for 9 whole months and she brought you into this world. The least thing you could do is to pay her a visit? Dont take your mum for granted.

Xx  (+ info)

What is diffuse erythema plus and diffuse gastritis?

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I have an endoscopy result with following results
diffuse erythema+ and final impression says diffuse gastritis.
Can anybody explain what does they mean?
Diffuse means scattered and erythema is redness. Gastritis is inflammation of the stomach lining. You have redness and inflammation in your stomach, spread around rather than in just one place. With this result your doctor should be able to prescribe medicine to help.  (+ info)

What is Mild diffuse spondylitic changes of the Thoracic Spine?

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I recently had spinal x-rays taken, and was wondering what the report means.
Is the diffuse spondylitic changes permanent, are they fixable with conservative treatment, or even with surgery?
The results mean that there is mild inflammation in your vertebrae at various places throughout the chest region of your spine. Spondylitic changes at first appear as swelling, and it is entirely reversible at early stages if it is not caused by rheumatoid arthritis. If the problems persist for years, inflammation eventually causes calcium deposits (bone spurs) to form between the vertebrae and this generally requires surgery. When its caused by rheumatoid arthritis, the problem is more difficult to control.

Stretching exercises and antiinflammatory drugs might be all you need at this point. Ask the doc to write up an order for a few visits with a physical therapist to teach you exercises to stop this problem from progressing.  (+ info)

What is renal cortical cyst and diffuse liver parenchymal?

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My mother had an ultrasound and the findings was that she has renal cortical cyst and cortical nephrolithiasis and with diffuse liver parenchymal.What is the meaning of that?
  (+ info)

How do you to diffuse your hair?

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I am going to try to diffuse my hair tomorrow morning before school.
Will just useing gel and hiarspray and moose work? And how do you use the diffuser? I have never done it before so I have no idea. Any help or tips?
ha, I've been diffusing my hair every day for about 5 years.
Use tresemme curling mouse. no gel, use hairspray afterwards only if necessary.
And also, lay your hair on top of the diffuser and hold it there for about 30 seconds so it won't look stringy when you're done.
Hope this helps!!  (+ info)

How do you diffuse your hair?

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I have naturally wavy hair, and instead of constantly straightening in to death, I've decided to diffuse it once in a while, but whenever I do it doesn't seem to turn out as well as how my hairstylist does it even though I use the same gel (John Frida)

any diffusing tips for me?
use a straightening iron or curling iron and a good leave- in conditioner. so to sallys or somewhere to get something better than a drug store  (+ info)

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