FAQ - Polychondritis, Relapsing
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Does anyone have knowledge about Relapsing Polychondritis?


I was diagnosed with this over 3 years ago. I have grown very tired of the side effects of the medicine ( Methotrexate) and have decided to just let the disease play itself out. I guess I just want someone to say " yea that is a good option". I haven't said anything to anyone in my family yet. Just a note I am 44 years old.
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I also have what you have. In fact, I nearly lost my right eye 3 years ago to this nasty, unfair disease! But all's not lost...Try fish oil
capsules, green tea every day, avoid cigarette smoke, and as far as
medication:
Have you asked your rheumatologist about
Immuran (azathioprine)? You cannot quit taking ANY medicine cold turkey---but immuran is much easier than
methotrexate---and you can even have a cocktail every now and then! It does take about 3-4 weeks of initial dosing to keep the disease at bay. It is truly a much preferred method of treatment to methotrexate. Please ask your doctor.

If you are in severe pain, of course, you must deal with using prednisone---but if you can get away from it-DO SO! It will not only make you gain weight, but it causes depression, anger, nightmare- quality- of- life.

You did not say where/how your RPC is striking you. For me, I was diagnosed 3 years ago, but I've had issues for about 13 years. If you can keep the disease out of your chest, thorax, heart--you're okay.

As far as that vegan diet, I showed the same stuff to my (multiple) physicians at Cleveland Clinic, and they said BUNK! I would avoid heavy fats, and excessive sugar, but darlin'---here's the truth---you and I have something that there isn't a lot of money in fixing as far as the pharmaceutical
companies go. The best thing you can do is common sense stuff...sleep right, exercise,
keep too much weight from piling on (to help your joints and cartilage issues), drink LOTS of water, and take an antidepressant if you think this is getting to you. If you are unhappy, you will probably get sick again. I am so glad I started taking a small dose of
wellbutrin. RPC is lonely, scary, and can be quite painful. I wish you well. Good Luck!  (+ info)

I am trying to become a vegetarian, but I keep relapsing and eating meat.?


Mostly because my family eats meat and it is always available and convenient. I want to do this strictly for health reasons. Each time I relapse I feel tremendous guilt which causes more relapses. Any encouragement or helpful words will be sincerely appreciated.
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There's no one "right" or "wrong" way to go vegetarian... for some, it's a snap decision and they change overnight... for others, it's a process with many steps along the way. So just go at the pace that's best for you. It might help to have some vegetarian convenience foods available at your house... canned soups, frozen entrees (like Amy's), etc.

Also, here's some health info:
http://www.pcrm.org/health/veginfo/vsk/index.html

Good luck!

p.s. Please ignore the uniformed posters like the one above me. The American Dietetic Association, the nation's foremost authority on nutrition, writes: "...appropriately planned vegetarian diets are healthful, nutritionally adequate and provide health benefits in the prevention and treatment of certain diseases. Vegetarian diets offer a number of nutritional benefits, including lower levels of saturated fat, cholesterol, and animal protein as well as higher levels of carbohydrates, fiber, magnesium, potassium, folate, and antioxidants such as vitamins C and E and phytochemicals. Vegetarians have been reported to have lower body mass indices than nonvegetarians, as well as lower rates of death from ischemic heart disease; vegetarians also show lower blood cholesterol levels; lower blood pressure; and lower rates of hypertension, type 2 diabetes, and prostate and colon cancer."  (+ info)

How do you know when you're relapsing on an eating disorder?


Yeah, I used to be anorexic and I think I'm going through a relapse.
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1. I have an eating disorder and I do not believe the idea that "once an anorexic, always an anorexic" I find that very distasteful. I think people who say things like that don't believe in hope. We can have full recovery-it just takes a lot of work.

2. If you think you're having a relapse, then you are. Get some help-at this point, it may even have to be inpatient. But that's okay. You're getting help for yourself and taking care of you is your number one priority. Ridgeview in Marietta, GA is a pretty good place. Good luck!  (+ info)

What can someone do to help prevent an individual from relapsing after going out of inpatient alcohol rehab?


I'm scared that my brother will go back to his old ways once he goes out of alcohol rehab. I know it's his life to live, but being that I care so much for him, I get hurt whenever he does something that is harmful to himself. I want to know what I can do to help him continue on being sober..
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Recovery is a constant struggle. You're right that it is your brother's life to live. It's his choice whether he would let himself fall prey to temptations or if he would strive to stay sober. What you can do is let him go on the path that he chooses to take. Sometimes, someone needs to experience firsthand the consequences of his actions before he realizes something. You can offer him your love, support, and understanding, but other than that, you have to let him deal with this. I hope he doesn't relapse. Good luck.  (+ info)

how can i stop my repeated cigarette relapsing on weekends?


i went from smoking half a pack a day, and tried quitting 5 times, every time i relapse on day 7 every weekend when im with friends.

should i try locking my self up at home for one weekend? because during the weekdays im usually alone so i do fine.
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You have to change the environment that you smoked in. If you smoke with a certain group of friends, then you need to drop that group of friends--Or tell them about your plight, and have them be supportive. If they don't want to help, then don't hang out with them. It's not worth risking your health.  (+ info)

I just found out the girl I've been seeing is relapsing into anorexia. What should I do?


She's just moved back in with her parents and the household is triggering her tendencies. We broke up the other day because I thought she was just acting too strange but after reading and speaking with friends I now see what is going on. I can't go to her parents because they're the problem, but I feel like I have to do something. Or is this something I'm just in over my head about? Anybody have any ideas?
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Do you want to be with her again? Because if you help her directly she may think the two of you are together again, and that may not be what you want.

If you want to be with her now that you see what is going on, then talk it over with her. It might be good for her to have a house she can go to at any time if things become overwhelming for her at home - that could be yours or a female friend's place. Encourage her to see a counselor or doctor about it. And encourage her to talk - to you, a friend, or in her journal.

One of the worst things people do, thinking that they are helping, is try to force someone with anorexia to eat. It does not work, it will only help her find ways of hiding it from you. She has to know that if she comes to you and says she hasn't eaten that you won't act disappointed, angry or upset and that you won't get food out and make her eat it. However, you can encourage her to eat. Find out what her safe foods are (if she has safe and unsafe foods), and encourage to have one extra mouthful or something like that. It can sometimes work.

If you don't want to be in a relationship with her (which is completely understandable - being in a relationship with an anorexic is bumpy at the best of times), then you can help her indirectly. Whichever friends are trying to help her will need support. You could do a little research into counselors are available - look for counselors that work on a sliding scale if money is a concern. If you live in Australia and she has a Medicare card, she should be able to see doctors, psychologists and nutritionists free at public hospitals.

"The Secret Language of Eating Disorders" by Peggy Claude-Pierre looks into the mind of someone with an eating disorder. It is very educational and will help you understand what is going on in her head. Sometimes it is hard for someone with an eating disorder to be able to put into words what is happening in their mind.

If you want more information, please don't hesitate to send me a message. I've been through anorexia, and I am currently trying to help several of my friends with eating disorders.

Best of luck.  (+ info)

I feel like relapsing into harming myself, what can I do to prevent it?


When I was younger I used to cut myself all over to forget the stress I couldnt handle and instead dwell on the physical pain instead, I've stopped and havent done it for a long while now, but I keep getting the urge to want to do it again suddenly, I suppose due to heightened stress lately.
The therapist I see has told me to hold ice to feel a similar, but safer, pain, but it isnt the same, my mind wants the cutting, but I know afterwards I'll be filled with regret for doing it and I'll disappoint everyone if I do. I dont want to talk it out, I just want to cut it away.
I feel trapped as I dont know what to do, or at least how to make the urge disappear. Any advice would be helpful.
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I used to cut myself too. There is no one right answer. The best answer is too develop a support group made up of any people you trust who knows about the cutting. Then when you feel the urge, call one or more of them and try to talk about your feelings. If you can't get anyone try the hot-lines. Also go outside and run, walk, or ride a bicycle. Any movement outside can help fight the urge. Don't keep anything in the house that you might use to cut with. Good luck  (+ info)

Should a 25 year old woman diagnosed with Relapsing Remitting MS think about having a child?


When Clinical Indication is Severe MS what is the meaning of that? Should she think about having children ??? Isn't a question whether or not she will be able to take care of the child???
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I am confused . You say the woman had been diagnosed with RRMs yet you say the clinical indication is severe MS.These are two very different things
If The women was diagnosed with Relapsing Remitting MS, there is really no reason Not to have a child. Many women raise babies with MS. With RRMS, she could go months or years between attacks. Many women actually go into remission during pregnancy although many do have attacks after the baby.
Only The woman's Neurologist can truly advise her  (+ info)

how do i tell my mom that she is putting me at risk for relapsing in my eating disorder?


i'm 14 weeks into recovery, however, when i talk to her sometimes she tells me how it's been days since she's eaten. and i ask why, and she says she's simply too busy to eat. it is such a trigger for me to want to fall back into my old ways... how do i tell her that her unhealthy habits are disrupting my recovery?
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Congrats on the recovery! Keep up the good work. If you find it too difficult to just say, "Mom, this topic is hard for me, can we talk about something else," perhaps having your counselor present would help. She needs to know how you feel and how her words affect you.  (+ info)

What does "relapsing-remitting" means in this small sentence?


He is a patient with Relapsing Remitting Multiple Sclerosis
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Sometimes Multipule Sclerosis goes in to remission. A relapse is when it comes back. Remitting is when it comes back the same as it was before or a little better then before it was before it went in remisson.  (+ info)

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