Fibrous Dysplasia?

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Can Aloe Vera help treat Fibrous Dysplasia? Can you outgrow Fibrous Dysplasia?
HI THERE


GO TO THESE SITES HOPE IT CAN HELP .

Fibrous dysplasia - MayoClinic.com
Fibrous dysplasia is a disorder that destroys and replaces normal bone with scar-like tissue. ... Fibrous dysplasia. What is fibrous dysplasia? - No name / No ...www.mayoclinic.com/health/fibrous-dysplasia/AN00790



Fibrous Dysplasia
Detailed information on fibrous dysplasia, including cause, symptom, diagnosis, and treatment ... Fibrous Dysplasia. What is fibrous dysplasia? ...www.healthsystem.virginia.edu/UVAHealth/adult_bone/fibrdys.cfm


Ask the Experts - What Is Appropriate Therapy for Fibrous Dysplasia?
I have a patient with the radiologic diagnosis of fibrous dysplasia. ... What Is Appropriate Therapy for Fibrous Dysplasia? Question ...www.medscape.com/viewarticle/413588



Paget Foundation
What is fibrous dysplasia? Fibrous dysplasia is a chronic ... bones can be affected at once, fibrous dysplasia does not spread from one bone to another. ...www.paget.org/Information/fibrous_main_professionals.htm - 12k


Bone Disorders - Fibrous Dysplasia
Fibrous Dysplasia. What is fibrous dysplasia? Fibrous dysplasia is a chronic disorder in which bone expands due to abnormal ...healthcare.utah.edu/healthinfo/adult/bone/fibrdys.htm - 8k - Cached


Fibrous Dysplasia - My Child Has - Children's Hospital Boston
What is fibrous dysplasia? ... This form of fibrous dysplasia, the most complex, is ... What is the long-term outlook for a patient with fibrous dysplasia? ...www.childrenshospital.org/az/Site899/mainpageS899P0.html - 45k




BE WELL BE SAFE GOD BLESS  (+ info)

Fibrous dysplasia?

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Anyone know anything about it??
Fibrous dysplasia is a rare condition that people are born with Though not much is known about it, it is believed to be a genetic disease that occurs in the womb. There are various forms of this disease including McCune-Albright Syndrome which causes discolorations on the face (known as cafe-au-lait spots). In a nut shell, it is a disease where bones grow hollow spots that are not filled with actual bone material. These hollow spots are often referred to as 'lesions'. If a person has monostotic non fibrous dysplasia, then only one bone is affected. If a person has polyostotic non fibrous dysplasia, it means that more than one bone is affected. The bones most commonly affected are the femur, hip, elbow, wrist, and facial bones as well. The only 'treatment' for this disease, unfortunately, is surgery. Some people who have the monostotic form might not even know that they have it because it will not bother them unless it is fractured. Because of these hollow spots in the bones, a cast will not repair the bone, and ultimately, surgery is the only way. In surgery, the lesion is cleaned out and filled with bone material called allograft. Sometimes screws or metal plates may be needed to support the allograft. On the positive side, it is believed that this condition can be outgrown. Hope I helped.  (+ info)

is fibrous dysplasia related in anyway to cardioid tumors.?

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I have metastatic carcinoid tumors (4years) and have just had a fibrous dysplasia spot of 4.5cm found on my tibia. Are they related in anyway?
It appears not...
Carcinoid tumoirs originate in hormone-producing cells and are classified as neuroendocrine tumors. MEN syndromes which can predispose to carcinoid tumours) are usually (but not always) inherit

Fibrous dysplasia is a chronic condition of the skeleton where a portion of a bone develops abnormally.

The condition begins before birth. It is caused by a gene mutation that affects the cells that produce bone. Although the abnormal bone forms before birth, its presence is often not discovered until childhood, adolescence, or even adulthood.
http://orthoinfo.aaos.org/topic.cfm?topic=A00083

You should question your medical advsors about this as both could be inherited disorders, one endocrine, the other genetic which sort of interlinks them.
I do not know enough to go further and hope someone with more knowledge picks this up.  (+ info)

Its suspected that i may have fibrous dysplasia of the skull?

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Ive been doing some research on this while waiting to see a specialist to confirm the diagnosis, but all of the websites ive seen refer to a 'swell' in the skull as the sign of it - i have a 'dent' in mine - is this much of a muchness? Could it be something else? Thanks for any info, hard trying to find out things about such a rare disease
IT could be a congenital disorder,ie.. congenital hip dysplasia.  (+ info)

Is there anyone out there with Fibrous Dysplasia, or any one you know?

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I have a science project o Fibrous dysplasia, and i need to do an interview, and because it is such a rare disease, i can;t find any one with it!! so, please, give me their email, so i can interview them! Thankyou So much!
Hi, Please visit me at www.laurenourbravelittlehero.blogspot.com then leave your email on the comment section of my latest blog post. I will contact you through email and will not publish publicly your email on my blog. My daughter has FD and I'll be happy to help answer any questions you might have. Thanks for helping to raise awareness of this terrible disease.

Regards,
Tanya  (+ info)

My Husband was diagnosed yesterday as having fibrous dysplasia but we don't know much about it?

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he has it in his upper right leg bone and it was discovered through an x-ray.
He has had no pain in his leg but suffers from back pain.
One dr said it was not common and they don't know much about it and the dr at the hospital said it was very common. My husband was that taken aback that there was something wrong that he didn't ask any questions about it. So does any one have any info on it they could share please?
Here's a link for you: http://www.fibrousdysplasia.org/index.php?page=16  (+ info)

Any one have or know someone with Fibrous Dysplasia?

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My daughter was diagnosed with fibrous dysplasia a rare bone disease...just curious if anyone else is faced with this disease on here! Thanks!
Fibrous dysplasia is a chronic condition of the skeleton where a portion of a bone develops abnormally. The condition begins before birth. It is caused by a gene mutation that affects the cells that produce bone. The mutation causes the cells to form an abnormal type of fibrous bone that gradually grows and expands over a period of years, causing a weakened area of the bone. The area of weak bone can cause pain. It can crack (fracture) the bone, and may lead to deformity. Although the abnormal bone forms before birth, its presence is often not discovered until childhood, adolescence, or even adulthood. Any bone may be affected-the most common bones involved are the thighbone, shinbone, ribs, skull, upper arm bone and pelvis. Usually only one bone is involved (monostotic fibrous dysplasia). Less often, multiple bones are involved (polyostotic fibrous dysplasia). The polyostotic form is generally more severe and is discovered earlier. This form can involve as few as two bones in the same limb or multiple bones throughout the skeleton.


The frequency of fibrous dysplasia is not known but it accounts for approximately seven percent of all benign bone tumors. The cause of the gene mutation is not known. It is not inherited or passed on to the children of affected patients. No dietary or environmental cause is known. It occurs equally among males and females of all races.

The same abnormality that occurs in the bone cells of fibrous dysplasia may also occur in the cells of some of the body's glands that can lead to hormonal abnormalities. This is rare and is generally only happens with severe forms of polyostotic fibrous dysplasia. McCune-Albright syndrome is a condition where polyostotic fibrous dysplasia occurs with pigmented skin lesions ("cafe au lait" spots) and hormonal abnormalities.

A doctor can usually diagnose fibrous dysplasia based in part on X-rays. X-rays show an abnormal area of bone that typically has an appearance similar to that of "ground glass." There frequently is expansion of the involved area of bone. There may be deformity of the bone that is usually seen as bowing. A bone scan will show a "hot spot" in the areas of involved bone; it is a good test to check the entire skeleton for areas of fibrous dysplasia. Magnetic resonance imaging (MRI) will show the involved area of bone and may be helpful to determine whether or not areas have become cancerous. If a fracture is present, it will generally be seen on X-ray and/or MRI. A computed tomography (CT) scan may help the doctor to see fractures and determine the weakness of the bone.  (+ info)

My son was just diagnosed with fibrous dysplasia. Can anyone help me understand this disease.?

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Fibrous dysplasia is a chronic condition of the skeleton where a portion of a bone develops abnormally.

The condition begins before birth. It is caused by a gene mutation that affects the cells that produce bone. Although the abnormal bone forms before birth, its presence is often not discovered until childhood, adolescence, or even adulthood.



Fibrous dysplasia in the upper thighbone. The mutation causes the cells to form an abnormal type of fibrous bone. This fibrous bone gradually grows and expands over a period of years, causing a weakened area of the bone. The area of weak bone can cause pain. It can crack (fracture) the bone, and may lead to deformity.

The frequency of fibrous dysplasia is not known but it accounts for approximately seven percent of all benign bone tumors. The cause of the gene mutation is not known. It is not inherited or passed on to the children of affected patients. No dietary or environmental cause is known. It occurs equally among males and females of all races.

Any bone may be affected. The most common bones involved are the thighbone, shinbone, ribs, skull, upper arm bone, and pelvis. Usually, only one bone is involved (monostotic fibrous dysplasia). Less often, multiple bones are involved (polyostotic fibrous dysplasia). The polyostotic form is generally more severe and is discovered earlier. This form can involve as few as two bones in the same limb or multiple bones throughout the skeleton.

The same abnormality that occurs in the bone cells of fibrous dysplasia may also occur in the cells of some of the body's glands. This can lead to hormonal abnormalities. This is rare and generally only happens with severe forms of polyostotic fibrous dysplasia. McCune-Albright syndrome is a condition where polyostotic fibrous dysplasia occurs with pigmented skin lesions ("cafe au lait" spots) and hormonal abnormalities.  (+ info)

Has any one heard of Fibrous Dysplasia?

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What is it and how do I deal with it?
Fibrous Dysplasia
Description
Fibrous dysplasia is a chronic condition of the skeleton where a portion of a bone develops abnormally. The condition begins before birth. It is caused by a gene mutation that affects the cells that produce bone. The mutation causes the cells to form an abnormal type of fibrous bone that gradually grows and expands over a period of years, causing a weakened area of the bone. The area of weak bone can cause pain. It can crack (fracture) the bone, and may lead to deformity. Although the abnormal bone forms before birth, its presence is often not discovered until childhood, adolescence, or even adulthood. Any bone may be affected-the most common bones involved are the thighbone, shinbone, ribs, skull, upper arm bone and pelvis. Usually only one bone is involved (monostotic fibrous dysplasia). Less often, multiple bones are involved (polyostotic fibrous dysplasia). The polyostotic form is generally more severe and is discovered earlier. This form can involve as few as two bones in the same limb or multiple bones throughout the skeleton.


The frequency of fibrous dysplasia is not known but it accounts for approximately seven percent of all benign bone tumors. The cause of the gene mutation is not known. It is not inherited or passed on to the children of affected patients. No dietary or environmental cause is known. It occurs equally among males and females of all races.

The same abnormality that occurs in the bone cells of fibrous dysplasia may also occur in the cells of some of the body's glands that can lead to hormonal abnormalities. This is rare and is generally only happens with severe forms of polyostotic fibrous dysplasia. McCune-Albright syndrome is a condition where polyostotic fibrous dysplasia occurs with pigmented skin lesions ("cafe au lait" spots) and hormonal abnormalities.

A doctor can usually diagnose fibrous dysplasia based in part on X-rays. X-rays show an abnormal area of bone that typically has an appearance similar to that of "ground glass." There frequently is expansion of the involved area of bone. There may be deformity of the bone that is usually seen as bowing. A bone scan will show a "hot spot" in the areas of involved bone; it is a good test to check the entire skeleton for areas of fibrous dysplasia. Magnetic resonance imaging (MRI) will show the involved area of bone and may be helpful to determine whether or not areas have become cancerous. If a fracture is present, it will generally be seen on X-ray and/or MRI. A computed tomography (CT) scan may help the doctor to see fractures and determine the weakness of the bone.  (+ info)

Fibrous Dysplasia of the skull?

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What is the effect on a person if they have this disorder - theres no pain involved at present? Is treatment necessary if it isnt affecting the persons life? Will this necessarily cause a deformity - will it continue to grow?
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