seeking alternative treatment for dystonia?

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have been suffering from dystonia for close to 2 years - have seen several neurologists but were told no cure. Anyone one know of any person who is suffering from the same disease and have been cured?
distonias, or aberrent posturing can be caused by certain antipsycotic or major tranquilizers. In this case there likely isn't anything that can be done beyond trying different meds.
If this is a stand alone disease then you could try doing cleanses including full body, colon, blood, parasite, candida. Limit caffeine, sugar, any sugar substitutes, especially high fructose corn syrup.
I'm not to informed about this particular disease, so I'm not totally sure what the best steps to take are, but these should at least help the situation. H2o2 treatment may also help.  (+ info)

My mom has dystonia and I just saw the video about it being triggered from a flu shot, should I not get one?

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I'm a 16 year old boy. I'm just going to throw this out there. My mom has distonia. My mom has neck spasms and her legs jerk. I get spasms in my legs all the time and I haven't been diagnosed, but my school wants me to get a flu shot. I'm scared now. Should I not get the shot? Someone please answer. This is serious
Did your mom get it from a flu shot?

Relax. Your odds of a reaction to a flu shot are probably less than getting hit by lightning.  (+ info)

Has anyone been diagnosed with Tardive dystonia and had the DBS implanted?

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nope. but now i have 2 more points.   (+ info)

does anyone know if dystonia can cause short term memory loss?

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do you know of anyone that suffers from dystonia ? my wife suffers from dystonia and would like to here from anyone who suffers from the same condition
there are many types of dystonia characterised by involuntary movements and spasms.they do not cause brain damage but are more likely to be symtyomatic of an underlying neurological disorder,or drug induced side-effect(neuroleptics etc,)primarirly involving the part of the brain known as the basal ganglia.  (+ info)

does anyone else have myoclonic dystonia?

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if you do, what bothers you the most?
do you have any of the non-movement symptoms?
are you treating any of your symptoms with any medication?
are you seeing any results?
you may want to put those sorts of questions to a doctor and he can tell you what sort of percentage chance you are looking at to have any of those problems.  (+ info)

Does anyone have dystonia? Particularly in the feet?

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I have been suffering with terrible muscles spasms for about 5 yrs. now. It started out in my feet and the past couple of months i've had muscle spasms in my hands (not as severe as the feet tho). Could this be dystonia? I've had x-rays, mri's, bloodwork, etc... and all were normal. I cut out aspartame in my diet, and there's plenty of potassium in my diet. Does extreme heat/cold (weather) have any effect to the spasms. My feet are always cold while my hands are hot and sweaty most of the time. I use to play soccer and I ran x-country. This is not genetic, no one else in family has this condition.
I would like to hear more about dystonia, hopefully this will help me. Thanks.
Last night I had another "spasm" in my left foot. It felt like a bunch of rubber bands being stretched and it stayed like it for about 20 mins; it seemed my foot was going to be bent in half. All of my toes started to curl until the bones looked like it was going to break through the skin. Today my foot looks normal (no swelling) but it hurts like hell when I walk and along the side of my foot is numb, no feeling whatsoever.
Bernie, you mentioned something with your eyes. Well every now and then the nerves of my eyelids will "twitch" or it will feel heavy (like I need toothpicks to keep it opened). That will sometimes leave some pain there also.
As for your question of where I came up with dystonia, I use to work with sports medicine doctors and one of them mentioned it to me. I asked my family doctor and he had never heard of it before. I was curious about other people's experience with dystonia.
Thanks for your answers, its greatly appreciated.
I also forgot to mention that I had a serious head injury 8 yrs. ago that led to a concussion and amnesia. And also add to the fact I played soccer since I was kid. I've had a few good cracks over my head, lol.
Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures. The disorder may be inherited or caused by other factors such as birth-related or other physical trauma, infection or reaction to drugs.

Primary dystonia is caused by a pathology of the central nervous system, likely originating in those parts of the brain concerned with motor function, such as the basal ganglia. The precise cause of primary dystonia is unknown. In many cases it probably involves some genetic predisposition towards the disorder combined with environmental conditions.

Secondary dystonia refers to dystonia brought on by some identified cause, usually involving brain damage, or by some unidentified cause such as chemical imbalance. Some cases of (particularly focal) dystonia are brought on after trauma, are induced by certain drugs (tardive dystonia), or may be the result of diseases of the nervous system such as Wilson's disease.

Symptoms vary according to the kind of dystonia involved. In all cases, dystonia tends to lead to abnormal posturing, particularly on movement. For many sufferers, pain due to muscle spasms is also a feature of the condition.

These are the most common dystonias and tend to be classified as follows:

Cervical dystonia (spasmodic torticollis). This affects the muscles of the neck, causing the head to rotate to one side, to pull down towards the chest, or back, or a combination of these postures.
Blepharospasm. This affects the muscles around the eyes. The sufferer experiences rapid blinking of the eyes or even their forced closure causing effective blindness.
Oculogyric crisis. An extreme and sustained (usually) upward deviation of the eyes often with convergence causing diplopia. It is frequently associated with backwards and lateral flexion of the neck and either widely opened mouth or jaw cletching. Frequently a result of antiemetics such as the neuroleptics (e.g. prochlorperazine) or metoclopramide.
Oromandibular dystonia. This affects the muscles of the jaw and tongue, causes distortions of the mouth and tongue.
Spasmodic dysphonia. This affects the muscles of the larynx, causing the voice to sound broken or reducing it to a whisper.
The combination of blepharospasmodic contractions and oromandibular dystonia is called Meige's syndrome.

Drugs, such as anticholinergics which act as an inhibitor of the neurotransmitter acetylcholine, may provide some relief. Clonazepam, an anti-seizure medicine, is also sometimes prescribed. However, for most sufferers their effects are limited. Botulinum toxin injections into affected muscles have proved quite successful in providing some relief for around 3-6 months, depending on the kind of dystonia. The injections have to be repeated and around 15% of recipients develop immunity to the toxin.

Surgery, such as the denervation of selected muscles, may also provide some relief. Recently, the procedure of deep brain stimulation has proved successful in a number of cases of severe generalised dystonia.

But I don't think it is dystonia for your case. It might be something else. If it affects you very much on your daily activities, please take care and seek medical advice. It is more cheaper for early treatment than late treatment you know?  (+ info)

Are you aware of what Dystonia is?

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Just wondering if mainstream America has heard of or knows of this. It will be interesting to hear back. Just let me know if you have no idea, or what you think it is.
Dystonias are sustained involuntary muscle contractions, often distorting body posture. Dystonias can be primary or secondary, and they can be generalized, focal, or segmental. Diagnosis is clinical. Treatment is with an anticholinergic drug or reserpine for generalized dystonia and botulinum toxin for focal or segmental dystonias.
Please see the web pages for more details on Dystonia.  (+ info)

What is a medical condition called "dystonia"? Is it painful ?

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( no dictionary, and the computer won't take me out of Yahoo spell check--hope I spelled it correctly)
Dystonia is a neurological disorder, it causes twitching, pulsing, twisting of the muscles. It is painful/   (+ info)

Has Dystonia scared you out of getting a flu shot?

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i know its only a 1-1,000,000 chance but still i havent got one yet though...
i know its only a 1-1,000,000 chance but still (its that girl who cant walk forward correctly off the news)
Not at all. I'm more likely to get the disease.  (+ info)

what is the difference between dystonia, tremor, and parkinson's disease?

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since those three are world's most common movement disorder, what makes them different from each other? plz, need answer ASAP. best answer gets 10. its for general knowledge.:D
Dystonia is one of the dyskinesias which are characterized by uncontrolled involuntary movements and diminished voluntary movements. Dystonia is can be a separate condition or part of another disease or syndrome.

I actually like the Wikipedia description: "Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures.
The disorder may be hereditary or caused by other factors such as birth-related or other physical trauma, infection, poisoning (e.g., lead poisoning) or reaction to drugs, particularly neuroleptics" or dystonia can be a side effect caused by the decreased supply of levodopa in the system or part of the "wearing off" as seen in Parkinson's disease. Dystonia often involves the body or head. The movement is often large, sweeping and very disruptive.

Tremors are rhythmic involuntary muscle movements which are not intentional. The tremor can fall into several types. There is a series of tremors known as essential tremor which can fall into several categories. Essential tremor can be a resting tremor or an intentional or action tremor which occurs when a person initiates an action. There are several more types of Essential Tremor. Tremors can involve any part of the body including the voice but commonly involve the limbs, especially the hands. The movements are smaller movements, more rhythmic than dystonia. Tremors can be symptoms of a condition, early warning signs, temporary, or a specific tremor disorder. In conditions other than S, tremors often appear bilaterally.

Parkinson's disease is classified as a neurodegenerative disorder. Although symptoms vary from patient to patient, tremor is one very common and easily recognizable symptom. In PD tremor usually begins on one side of the body, often in the hand and progressing to the leg and foot on the same side. As the disease progresses, the same symptoms appear on the other side of the body. Dystonia or Dyskinesia actually often occurs when levodopa wears off. It is often such symptoms as dystonias and extreme tremor which cause people to seek a surgical solution through DBS.

There are many other symptoms of PD. Slower movements, stooped shuffling gait, balance issues, stiffness, pain, swallowing problems, cognition problems, sleeping disorders, PD depression, hallucinations, freezing, vision problems, loss of sense of smell, constipation, urinary problems and ED are just some of the most common.

One of the best sources of information about your key words can be found at WeMove.org
http://www.wemove.org/
Here you can find not only the best answers to your question but many more questions.  (+ info)

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