Dandy-Walker Syndrome?

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Is there anyone out there that has had a baby with Dandy-Walker Syndrome (it's also known as Dandy-Walker Malformation, Dandy-Walker Variant, Dandy-Walker Cyst)? What did you do? How did you cope?
Mydaugther is three months old and has a dany walker variant, as well as hydrocephalus and hypoplaysia of her corpus collasum. She is only three months old. It was a shock to find out, i knew five days prior to giving birth. I have some websites and resources that are helpful. And i'm in the process of starting a support group in my area. If you would like to talk or have any specific questions, you can e-mail or im me on yahoo messenger. My sceen name is pinkprinmonth.  (+ info)

Does anyone know anybody with Dandy Walker Syndrome? And how does it affect them on a daily basis?

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My daughter was born with Dandy Walker Syndrome. I had never heard of it until she was diagnosed. She had developmental delays and seizures. She passed away in 2006 due to a seizure. She was 9yrs old.
I am sorry to hear that. May she rest in peace.

What happens in Dandy-Walker Syndrome basically is cerebellar hypoplasia and obstruction to fourth ventricle outflow foramina. Let me explain that. Cerebellar hypoplasia basically is underdeveloped cerebellum (a part of the brain that is involved in sensory perception, motor coordination, etc.). Fourth ventricle is actually a space within the brain structure where cerebrospinal fluid (CSF) which bathes our brain is produced and flow through.

Dandy-Walker syndrome leads to hydrocephalus, a condition at which there is excessive volume of CSF in the skull. Since the foramina (or passages) at which the CSF flows out from fourth ventricle are blocked, CSF accumulates in the brain. This accumulation will exert pressure on the brain, causing it to be pushed against the internal wall of the skull.

The cerebellar hypoplasia itself may lead to developmental delay, hypotonia, ataxia, seizures, mental retardation and involuntary eye movements.  (+ info)

Anyone know anything about dandy walker syndrome?

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Over a month ago I had my ultrasound which showed my babys cerebellum or a part of the cerebellum was a little smaller than usual the doctor said this could be a sign of dandy walker syndrome. My next ultrasound is in a week and Im kinda worried something else bad is going to come up or that this really is dandy walker syndrome. Im just so worried. Anyone know what effects this could have on my baby?
What is Dandy-Walker Syndrome?
Dandy-Walker Syndrome is a congenital brain malformation involving the cerebellum (an area at the back of the brain that controls movement) and the fluid filled spaces around it. The key features of this syndrome are an enlargement of the fourth ventricle (a small channel that allows fluid to flow freely between the upper and lower areas of the brain and spinal cord), a partial or complete absence of the cerebellar vermis (the area between the two cerebellar hemispheres), and cyst formation near the internal base of the skull. An increase in the size of the fluid spaces surrounding the brain as well as an increase in pressure may also be present. The syndrome can appear dramatically or develop unnoticed. Symptoms, which often occur in early infancy, include slow motor development and progressive enlargement of the skull. In older children, symptoms of increased intracranial pressure such as irritability, vomiting, and convulsions, and signs of cerebellar dysfunction such as unsteadiness, lack of muscle coordination, or jerky movements of the eyes may occur. Other symptoms include increased head circumference, bulging at the back of the skull, problems with the nerves that control the eyes, face and neck, and abnormal breathing patterns. Dandy-Walker Syndrome is frequently associated with disorders of other areas of the central nervous system including absence of the corpus callosum (the connecting area between the two cerebral hemispheres, and malformations of the heart, face, limbs, fingers and toes.



I HOPE THE HAD MAKE A MISTAKE , AND GOD BLESS YOU AND YOUR LITTLE ONE.. GOOD LUCK!!  (+ info)

Can anyone explain dandy- walker syndrome for me?

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Anyone explain dandy-walker syndrome to me? Someone who has experience. Like with a child who has it or something similer
I can't tell you any thing about it but if you go to web md you can find all kinds of info about just about any disease. I hope this gives you a little help. Good Luck Rita V  (+ info)

Does any body have an adolescent with Dandy Walker syndrome?

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My daughter is twelve and I'm looking for someone to exchange info with.
www.dandy-walker.org its a website for dandy walker alliance:people are able to exchange info and give/get advice.
i hope it helps.  (+ info)

What affects do people with Dandy Walker Syndrome have?

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can they go play like someone normal? does it invovle paying for more things?
They have Hydrocephalus and problem of co-ordination in movements.  (+ info)

If you have one baby with Dandy Walker Syndrome could your next baby have it to?

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This is a question you should ask your obstetrician or your geneticist. They would have the correct information for you  (+ info)

Is there anyone here that has known an adult with Dandy-Walker Syndrome (also known as Dandy-Walker Malf)?

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my mom just found out that she had Dandy-Walker Syndrome and I would like to know what it's all about in adults b/c all's I see on the internet is about children that have it.....
I have never met anyone with Dandy-Walker Syndrome. One place you may be able to find out more information that can be of help is at: http://rarediseases.about.org

Also, you may be able to find group listings for this condition on Yahoo Groups in the way of support groups and such.  (+ info)

Has anyone ever heard of Dandy Walker Syndrome?

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Dandy-Walker Syndrome is a congenital brain malformation ...
I hope this helps....I typed in the syndrome and an entire page came up with sites...  (+ info)

i was wondering if dandy walker syndrome can fix itself?

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im 37 weeks pregnant today and i had my last ultrasound at 19 wks, the told me that theres a chance they found something called the dandy walker syndrome, with is something to do with the fourth ventricle. at my last appointment the doctor told me he wasnt worried about it cause where i wasnt that far along theres a chance it can fix itself. i looked everywhere to see what the chances are and i have no luck.
i really dont trust the doctor as for it took them 2months to even tell me there was anything was wrong. i been fighting for another ultrasound and i dont see any progress.

can anybody tell me what the chances of it fixing itself is???
not really understanding what u mean doodle as for i am talking bout the brain and the fourth ventricle is also a part look it up.;
  (+ info)

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