FAQ - Chorea
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Does anyone have any idea how bad tics get during pregnancy if you have Sidenhams Chorea/ PANDAS?


Please someone help me. During pregnancy are you still able to function? I heard Tics can get really bad, and if so for how long?
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Hello,

Primarily the tics will affect face, hands and feet of patients with Sydenham's chorea. Three months is the general course of the disease, and full recovery is the prognosis.

Physically, the symptoms should only cause brief, momentary loss of function in the affected part/s, (these are commonly seconds in duration) but can at times be severe, (usually following an 'aura' of feeling awkwardness and experiencing facial grimace).

As much physical and mental rest as possible helps. And drugs are available to control the symptoms of tic. Pregnancy will factor in the prescription of suitable drugs. So please consult your Doctor, who will give you the best advice.

Emotional instability common with Sydneyham's can be heightened to some degree by hormone level changes that occur during pregnancy. So emotional support from friends, relatives, and a phone number of someone to call on speed-dial are good measures to have ready at times when you may feel sad or any strong emotion.

I know that PANDAS is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infection. Is PANDAS something you have been diagnosed with? Or is it something that a doctor may have said is a possibility for your baby? I am wondering how PANDAS is a factor. So if you would like to contact me in a less public way (by email) then I will be happy to hear from you, and be able to help you more with advice.

May I add that pregnancy is a time of joy and some anxieties for every mother-to-be. It is quite normal to have happiness, mixed with a few doubts and fears. I can fully understand how those doubts and fears can deepen by a shade or two when there are considerations like chorea to factor in. But please know that your Doctor is able to develop a good support plan, and make sure that you receive the best so that your baby, too, can receive the best.

If you have contact with a Doctor for regular pre-natal check-ups, then feel free to disclose to him/her all your concerns. If you haven't chosen a doctor for pre-natal checks yet, then you may wish to do so soon, just so that a health-care professional can help develop the best support plan, individualized to suit your needs.  (+ info)

could medical marijuana help with my huntingtons chorea?


i hav hd.......and am wondering if weed could help
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Read this article http://www.idmu.co.uk/medicinal.htm  (+ info)

how long to live if you have huntingtons chorea?


i am 20 had it all my life
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huntingtons chorea has a good survivial  (+ info)

I was wondering if anybody knowed anything about Sydenham's Chorea"?


"Sydenham's Chorea" is also called "SAINT VITUS DANCE".We was told this is what our 8yr old son has..i was wanting info anybody had on it..I have been reading online about it but i want to know all there is to know about it to better understand what my son is going threw and how to help him the most i can.
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St Vitus Dance or sydenham`s chorea is a form central nervous system involvement in rheumatic fever. It is characterised by involuntary movements weakness and instability.Carditis(heart involvement)is usual.It is (chorea)is self limiting but cardiac involvement is permanent.It is always preceded by a :"Streptococcal" sore throat.  (+ info)

i have a patient with chorea gravidarum. does anyone have an experience with this kind of case?


Yes. But i'm not a doctor though


But i'm medically trained

By medically trained i mean i know how to put on a band-aid
And patient means my barbie doll  (+ info)

chorea in acute rheumatic fever??


why do u get chorea in acute rheumatic fever
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Sydenham chorea is one of the major signs of acute rheumatic fever. It may be the only sign of rheumatic fever in some patients.
If acute rheumatic fever affects the brain, loss of coordination and uncontrolled movement of the limbs and face may occur. These movements are called chorea — from the Greek word "choreia," which means "choral dance." They're also sometimes called Sydenham's chorea, rheumatic chorea or St. Vitus' dance. Chorea occurs in about one in 10 rheumatic fever cases. Chorea usually subsides or disappears within weeks to months.
Please see the web page for more details on Sydenham's chorea.  (+ info)

Can you die from Huntington's Chorea?


ofcourse you can I have worked with several older people that have had it,, eventally pople require a feeding tube because they cannot remain still to eat..its actully very sad to see.  (+ info)

PANDAS/ Sydenhams Chorea.?


I have medical history of PANDAS which is not very well known but its very similar to Syndenhams Chorea. I'm looking for a hormonal birth control method which will not make my tics worse. Does anyone know if that Is possible?
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Estrogen is known to contribute to Sydenham's chorea, so I would guess that most estrogen-containing hormonal BC would have a tendency to aggravate PANDAS.  (+ info)

Huntington's chorea. what is it?


can anyone explain (very Simply) what this is and what it does please?
i tried searching on the internet, and when i went on the website(s) they all come up with very scientific words and stuff. i don't get any of it, and this is for my coursework at school.
NO offensive answers please. Thanks in advance.
=D
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"Huntington's Disease (HD) is an inherited disease that causes certain nerve cells in the brain to waste away. People are born with the defective gene, but symptoms usually don't appear until middle age. Early symptoms of HD may include uncontrolled movements, clumsiness or balance problems. Later, HD can take away the ability to walk, talk or swallow. Some people stop recognizing family members. Others are aware of their environment and are able to express emotions.
If one of your parents has Huntington's disease, you have a 50-50 chance of getting it. A blood test can tell if you have the HD gene and will develop the disease. Genetic counseling can help you weigh the risks and benefits of taking the test. (Read more) "

http://vsearch.nlm.nih.gov/vivisimo/cgi-bin/query-meta?v%3Aproject=medlineplus&query=huntington%27s+chorea&x=0&y=0

Hope this helps. Medlineplus is good.
So is the Mayo Clinic:

http://www.mayoclinic.com/health/huntingtons-disease/DS00401  (+ info)

Huntington's Chorea Disease?


My father just recently passed away from Huntingtons Chorea and I was wondering if anyone had any advice on handling the fact that i may have the disease and that i cant get tested until im 18 because im not showing any symptoms. I personally think that the age should be lowered because i am living a mystery for a year because i cant have anwsers. I am scared that ive inherited this cruel disease from my dad. Im also scared to actually get the test but i really need to know. So how can you deal with this situtation?
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