 | "The fear of what lay ahead" - Erythropoietic ... Raising children with Erythropoietic Protoporphyria (EPP) is a traumatising experience, one ... youtube.com - Tue, 09 Feb 2010 17:19 07:05 | |
 | A life in the shadow - Erythropoietic Protoporphyria ... Continuing and persistent burning pain, isolation and a lack of understanding from peers has a ... youtube.com - Mon, 12 Jul 2010 19:38 05:47 | |
 | Part One - "Absolute intolerance to light ... This is the first webcast in a series featuring Mikey, an Australian man with Erythropoietic ... youtube.com - Tue, 07 Sep 2010 00:46 01:57 | |
 | Absolute light intolerance: Erythropoietic ... Erythropoietic protoporphyria (EPP) is a rare and severe UV/light related skin disorder. This ... youtube.com - Sun, 20 Dec 2009 20:14 05:06 | |
 | Australian man with an unbearable genetic disease ... Adrian was diagnosed with the genetic disease Erythropoietic Protoporphyria ( EPP) when he ... youtube.com - Sun, 20 Dec 2009 15:56 07:53 | |
 | Liver transplantation in erythropoietic ... Erythropoietic protoporphyria (EPP) is a rare disease causing absolute intolerance of skin to ... youtube.com - Wed, 30 May 2012 03:54 12:24 | |
 | Part Three - Burning in shadows - Erythropoietic ... There is no escape from light when outside for those with the rare light intolerance disorder ... youtube.com - Mon, 11 Apr 2011 17:25 02:40 | |
 | Part Four - The impact of Erythropoietic ... This is the fourth webcast in a series featuring Mikey, an Australian man with Erythropoietic ... youtube.com - Mon, 07 Nov 2011 05:29 01:37 |
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