Edmonton student with Spinal Muscular Atrophy better able to communicate ...
Enna Lohan McKee School grade 1 teacher Deborah Santos speaks with Enna. Enna Lohan attends McKee School via Skype in Edmonton, Alberta on Friday, October 21, 2014. Enna has Muscular Dysatrophy and have severe mobility issues.
Edmonton Sun - Tue, 21 Oct 2014 17:56

Unable to speak or walk, Edmonton first grader attends school via Skype
Edmonton Journal - Tue, 21 Oct 2014 19:26

Grade 1 student uses Skype to join the classroom
CBC.ca - Tue, 21 Oct 2014 19:48

Edmonton Grade 1 student “Skypes” to school thanks to eye-gaze technology
MetroNews Canada - Tue, 21 Oct 2014 19:26

Isis: progress with spinal atrophy drug
Infants with severe spinal muscular atrophy showed improvement in a Phase 2 clinical trial of a drug from Isis Pharmaceuticals, the Carlsbad biotech company said Friday. Infants given the medication ISIS-SMNRx are surviving longer than historical ...
U-T San Diego - Fri, 10 Oct 2014 16:37

REFILE--Isis launches pivotal trial of drug for rare spine disorder
Reuters - Fri, 10 Oct 2014 01:32

Isis rolls into Phase III with an orphan drug as it waits on Biogen
FierceBiotech - Fri, 10 Oct 2014 07:48

Isis Pharmaceuticals Reports Data From ISIS-SMN Rx Phase 2 Studies in Infants ...
Stockhouse - Fri, 10 Oct 2014 01:26

AveXis' Experimental Treatment for Spinal Muscular Atrophy Granted Orphan ...
The orphan drug designation granted to ChariSMA by the FDA Office of Orphan Drug Products enables novel treatments in early stages of development with potential value in treating rare diseases to be eligible for several incentives outlined in the ...
BioNews Texas - Mon, 06 Oct 2014 05:00

Baroness Campbell 'disappointed' by media coverage of spinal muscular ...
All three children had spinal muscular atrophy, a disease affecting the nerve cells which can be life-limiting in young children. Baroness Campbell, who has spinal muscular atrophy, said: “There has been a lot of email, Twitter and Facebook traffic ...
Your Local Guardian - Sun, 19 Oct 2014 20:00

EMSA helps young boy with spinal muscular atrophy attend fair
Luke Knapp, 3, takes in the petting zoo at the Tulsa State Fair in Tulsa, Okla. with his father Jeremy (left) on Friday, October 3, 2014. Luke, who has muscular dystrophy, was treated to a fair tour led by EMSA medics. MATT BARNARD/Tulsa World.
Tulsa World - Fri, 03 Oct 2014 21:18

Isis Pharmaceuticals launches phase 3 study of treatment for spinal muscular ...
Isis Pharmaceuticals launched a pivotal phase 3 trial of ISIS-SMNrx, an experimental treatment for spinal muscular atrophy, according to a Reuters report. Spinal muscular atrophy is a rare, genetic disease that causes severe muscle atrophy and weakness ...
Becker's Orthopedic & Spine - Fri, 10 Oct 2014 11:45

Winsley runners stretch their legs to raise more than £1k for muscular atrophy
Organisers of a charity fun run in Winsley say they have surpassed their £1,000 target and are looking to make it an annual event. Four-year-old Alfie Feilden, of Winsley, suffers from Spinal Muscular Atrophy, a degenerative muscle wasting disease, and ...
Wiltshire Times - Sat, 25 Oct 2014 00:11

Anything for Auni: A community rallies to help Utah family
But Auni has a disease called spinal muscular atrophy (SMA) which, according to curesma.org, “is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to sit, crawl, walk, eat, or ...
Deseret News - Fri, 24 Oct 2014 10:50

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Last update: September 2014