'Courageous butterfly': 7-year-old who captured hearts succumbs to fatal disease
Gwendolyn Strong, a girl who captured readers' hearts with her remarkable determination to be a regular second-grader despite having Spinal Muscular Atrophy (SMA), a degenerative disease that affects all voluntary muscles, has died. She was 7.
Today.com - Mon, 27 Jul 2015 07:44

Gwendolyn Strong Passes Away
Santa Barbara Independent - Mon, 27 Jul 2015 15:52

Benefit for spinal muscular atrophy set for Saturday
NEWARK – The seventh annual benefit concert for the Cade and Katelyn Fund for spinal muscular atrophy will be from 3 to 10 p.m. Saturday at the Beverage Source, 1551 W. Church St. Performing will be Reptile Smile, Johnny Thief and the Kleptones and ...
The Newark Advocate - Thu, 23 Jul 2015 07:12



Slight Protein Imbalance Linked to Spinal Muscular Atrophy
A team of researchers from the University of Malta and the Institut de Génétique Moléculaire de Montpellier (CNRS/Université de Montpellier) recently published a study that suggests fruit flies and brewer's yeast can shed light on the root of Spinal ...
SMA News Today - Thu, 23 Jul 2015 06:18



Lylah's Arms: GVSU students 3D print device for child with spinal muscular atrophy
Holly Gritter told FOX 17 News that her daughter Lylah was born with spinal muscular atrophy or SMA, known as the number one genetic killer in children two years old and under, with one in 40 people carrying it. Gritter describes SMA as similar ...
Fox17 - Tue, 07 Jul 2015 12:42



Cookout helps family of toddler suffering from spinal muscular atrophy
Tarrah Osmulski helps her daughter Kennedy Osmulski, 1, wave to guests during the cookout at Sweet Briar College in Amherst on Saturday. The cookout helped raise donations for Kennedy, who was diagnosed with Spinal Muscular Atrophy (ASA) at six ...
Lynchburg News and Advance - Sat, 18 Jul 2015 21:44



Taunton family rallies behind 6-year-old with spinal muscular atrophy
A fundraiser is being held Saturday at a Taunton city landmark for 6-year-old Aubriana Navarro, who has Type 1 spinal muscular atrophy, which is known as SMA. The fourth annual SMA Fundraiser for Aubriana Navarro is slated for 11 a.m. to 7 p.m. at The ...
Wicked Local Dighton - Tue, 14 Jul 2015 09:54



Isis Pharmaceuticals Reports Data On Spinal Muscular Atrophy
Isis Pharmaceuticals, Inc. recently revealed its latest data on the Phase 2, open-label and multiple-dose study of ISIS-SMNRx in children diagnosed with spinal muscular atrophy (SMA) who are still receiving treatment in an open-label extension (OLE) study.
SMA News Today - Tue, 07 Jul 2015 05:22

Researchers use pioneering stem cell techniques to better understand causes of ...
New research from the Advanced Gene and Cell Therapy Lab at Royal Holloway, University of London has used pioneering stem cell techniques to better understand why certain cells are more at risk of degenerating in Spinal Muscular Atrophy than others.
News-Medical.net - Wed, 01 Jul 2015 03:42


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Last update: September 2014