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Second “Bug Run” to benefit children with Spinal Muscular Atrophy
OLATHE, Kan. – A year ago, we told you about a three-year-old Olathe boy who was born with a deadly disease, Spinal Muscular Atrophy. A walk/run was held in his honor to raise money for others living with SMA. The second annual event is coming up this ...
fox4kc.com - Wed, 02 Apr 2014 08:22

Families of Spinal Muscular Atrophy is Thrilled to Announce that Registration ...
Families of Spinal Muscular Atrophy - Wed, 02 Apr 2014 13:48



Update on Families of Spinal Muscular Atrophy Funding to The California ...
Developing new therapies to treat and ultimately cure SMA is the driving force behind Families of SMA. To achieve this goal, Families of SMA aggressively invests in drug development research, funding the most successful and innovative scientists and ...
Families of Spinal Muscular Atrophy - Tue, 15 Apr 2014 08:56

NIH Holds SO-SMART Workshop: Significant Outcomes-Spinal Muscular ...
NIH Holds SO-SMART Workshop: Significant Outcomes-Spinal Muscular Atrophy (SMA) Readies for Trials on June 11, 2014. March 27, 2014. On June 11, the day prior to The Annual SMA Conference in Washington DC, the NIH is hosting a workshop on ...
Families of Spinal Muscular Atrophy - Thu, 27 Mar 2014 13:48



Presenters Announced for The Family and Researcher Poster Session at The ...
-Diane V. Murrell LCSW from Texas Children's Hospital presenting on “The Experience Of Families Of Children With Spinal Muscular Atrophy Type 1 Across Health Care Settings”. -Elizabeth McNeil MD from National Institute of Neurological Disorders and ...
Families of Spinal Muscular Atrophy - Wed, 16 Apr 2014 05:22

Secaucus meatball benefit to raise funds to fight spinal muscular atrophy
At just 7 months and 16 days old, Daniel Cevallos lost his fight with a fatal disease known as spinal muscular atrophy or SMA. This weekend, Cevallos' family and the Mary Immaculate Council Knights of Columbus in Secaucus will host their Third Annual ...
The Jersey Journal - Fri, 11 Apr 2014 00:17

Meatball tasting event will help infants with SMA
Hudson Reporter - Fri, 11 Apr 2014 10:44



Families of Spinal Muscular Atrophy Awards New Research Funding of $50000 ...
Families of Spinal Muscular Atrophy Awards New Research Funding of $50,000 to Dr. Lyndsay Murray. April 9, 2014. Families of SMA is leading the way to a world without SMA by advancing a comprehensive research program, of which basic research is a ...
Families of Spinal Muscular Atrophy - Wed, 09 Apr 2014 06:18

New Morning Call column: Laughing at My Nightmare, Life in the Lehigh Valley
Hello! Welcome to my new (and first!) column about life in the Lehigh Valley. My name is Shane Burcaw, and I was born with a disease called spinal muscular atrophy type two. You have most likely seen me at least once around the Valley – cruising ...
Pennsylvania Ave. (blog) - Fri, 18 Apr 2014 17:33



Families of Spinal Muscular Atrophy Announces Panelists for The Research ...
The Annual SMA Conference will bring together well over a thousand families and researchers from around the world. During the conference there are several sessions where families and leading researchers interact. This includes the Research Q&A ...
Families of Spinal Muscular Atrophy - Tue, 08 Apr 2014 08:33


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