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US Senate Committee Encourages NIH to Continue SMA-Related Research ...
Spinal Muscular Atrophy [SMA] Translational Research — The Committee commends NINDS for its continued support of SMA therapy development projects across a broad range of therapeutic approaches, including its innovative work on validating SMA ...
Families of Spinal Muscular Atrophy - Fri, 25 Jul 2014 07:48

Families of Spinal Muscular Atrophy Releases a New Care Series Booklet for ...
Families of SMA has released a brand new Care Series booklet all about The Musculoskeletal (MSK) System. The MSK system includes the muscles and bones in the body and the supporting structures like tendons (tissue that connects muscle to bone) and ...
Families of Spinal Muscular Atrophy - Tue, 22 Jul 2014 07:15

Motorcycles to ride for Spinal Muscular Atrophy
Spinal muscular atrophy is a genetic disease that affects the nervous system. Affected babies have problems with motor functions including holding their heads up and swallowing. She said researchers are close to having a drug that can be sent to the ...
Princeton Daily Clarion - Mon, 14 Jul 2014 08:11

AveXis Doses First Patient in Gene Transfer Trial for Spinal Muscular Atrophy
Avexis Dallas-based AveXis, a biotech company developing a synthetic biology platform, has enrolled and dosed the first patient in the Gene Transfer Clinical Trial for Spinal Muscular Atrophy Type 1, performed in collaboration with Nationwide Children ...
BioNews Texas - Fri, 27 Jun 2014 10:37

Collaborative Study to Understand Patient Perspectives on Meaningful Clinical ...
Families of SMA, the SMA Foundation, and several industry partners are co-funding this research project to better understand which clinical trial outcomes are particularly meaningful to SMA patients. To accomplish this work, a number of interviews with ...
Families of Spinal Muscular Atrophy - Fri, 25 Jul 2014 11:11

Families of Spinal Muscular Atrophy Continuing Medical Education Conference ...
Families of Spinal Muscular Atrophy (SMA) held its third Continuing Medical Education (CME), Interdisciplinary Perspectives on Spinal Muscular Atrophy: Defining Your Role in National Harbor, MD. This unique one day event was successfully attended by ...
Families of Spinal Muscular Atrophy - Thu, 10 Jul 2014 08:22

Give 6 Making a Difference
GTN News - Thu, 10 Jul 2014 17:11

Fundraiser for little Aria, battling Spinal Muscular Atrophy
While most 13-month-old babies are happily crawling and learning to walk, every day is a battle for little Aria Manderson. Diagnosed in February with a rare, potentially terminal genetic disorder known as Spinal Muscular Atrophy (SMA), the Cessnock ...
Cessnock Advertiser - Tue, 15 Jul 2014 15:40

Families of SMA Releases a New Request for Proposals for Clinical Care ...
Families of Spinal Muscular Atrophy - Wed, 16 Jul 2014 11:11



Family Friendly Research Poster Session at The 2014 Annual Spinal Muscular ...
At the 2014 Annual SMA Conference, the second Family Friendly Research Poster Session was held. During the event, 31 research groups presented their scientific findings, including 10 different SMA drug programs. The unique event allowed for ...
Families of Spinal Muscular Atrophy - Thu, 26 Jun 2014 10:37

AveXis Announces Dosing of First Patient for Gene Transfer Clinical Trial for ...
PR.com (press release) - Wed, 25 Jun 2014 23:56


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Last update: April 2009
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