Can Kaden be cured? West Palm Beach parents spread awareness about fatal ...
West Palm Beach couple Katie and Kyle Myers with their 10-month-old son, Kaden, on the beach. Kaden suffers from the often-fatal genetic disease, spinal muscular atrophy (SMA). (Photo by Strictly Bella Photography) ...
Palm Beach Post - Mon, 17 Nov 2014 15:53

Spinal Muscular Atrophy Program Enters Phase 1b/2a Trial in Patients with SMA
SOUTH PLAINFIELD, NJ, USA I November 19, 2014 I PTC Therapeutics, Inc. (NASDAQ: PTCT) announced today that its joint development program in Spinal Muscular Atrophy (SMA) with Roche and the SMA Foundation (SMAF) has started a Phase 1b/2a ...
PipelineReview.com (press release) - Wed, 19 Nov 2014 07:33

Combating spinal muscular atrophy
SMA is a genetic disorder that can rob people of strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat or breathe. Miller-Smith and Fiorenna Fuentes-Israel, who also co-founded the local Cure SMA chapter ...
Sun Sentinel - Wed, 05 Nov 2014 15:08



Area family recruits bands for Spinal Muscular Atrophy benefit
Adyn Bucher, 10, and her family are hosting a benefit concert at Jackie O's Public House on Saturday night to raise funds for Adyn's Dream — a nonprofit that benefits families that have members who are living with Spinal Muscular Atrophy. Adyn was ...
Athens Messenger - Wed, 29 Oct 2014 21:30

CSF-Delivered Gene Therapy Shows Promise for Spinal Muscular Atrophy
Spinal muscular atrophy (SMA) is caused by a mutation in the survival motor neuron 1 gene (SMN1). Because of this mutation, the individual does not produce enough survival motor neuron (SMN) protein. Gene transfer may increase SMN levels by using a ...
PR Newswire (press release) - Wed, 05 Nov 2014 13:00



Dream Big: Area Family Recruits Bands For Spinal Muscular Atrophy Benefit
Adyn and her family are hosting the first-ever benefit for Adyn's Dream, a non-profit charity dedicated to providing assistance to families that have members who are living with Spinal Muscular Atrophy (SMA). The benefit concert will feature one of ...
WOUB - Mon, 27 Oct 2014 13:33



Viewpoint: What's troubling disabled people about the Tania Clarence case?
Katherine Araniello, who has type 2 spinal muscular atrophy (SMA), the same condition as the Clarence children that died, stated on her Facebook page: "This mother acknowledged and understood what she had done and appears to have planned to kill her ...
BBC News - Wed, 19 Nov 2014 05:32

Allison Pearson: The unimaginable sorrow of Tania and Gary Clarence
Telegraph.co.uk - Wed, 19 Nov 2014 13:00

Tania Clarence's letters show a mother's despair
Daily Mail - Wed, 19 Nov 2014 01:11



Tania Clarence sentenced: Husband of depressed New Malden mother who ...
All three suffered from the genetic condition type 2 spinal muscular atrophy, sometimes described as 'floppy baby syndrome', which can dramatically shorten life expectancy and can leave children with little control over their movements. Her husband ...
The Independent - Tue, 18 Nov 2014 04:19

Tania Clarence sentenced for manslaughter of her children
BBC News - Tue, 18 Nov 2014 04:42

Husband stands by Tania Clarence as she is detained for killing their children
The Guardian - Tue, 18 Nov 2014 10:58

Mum Tania Clarence was under 'unbearable pressure' before killing her three ...
Mirror.co.uk - Tue, 18 Nov 2014 12:31

Mercy for killer mom
Times LIVE - Tue, 18 Nov 2014 14:38

Mother sentenced for children's manslaughter
The Daily Star - Tue, 18 Nov 2014 03:42

S. African killer mother sentenced to hospital
GlobalPost - Tue, 18 Nov 2014 04:45


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Last update: September 2014