Southern Alberta woman is ready to fight rare disease
Five years ago, 32-year old Erin Matt was finally beginning her teaching career, when her life was turned upside down. Matt had a massive brain tumor and underwent a successful surgery, but shortly later was diagnosed with a rare condition called Von ...
Globalnews.ca - Tue, 02 Dec 2014 14:35



Bucs' Mike Evans offers special dedication with TD catch
Drew Newsome, 27, of Largo has Von Hippel-Lindau syndrome, a rare genetic cancer that causes vascular tumors throughout the body and has no cure. His brother Adam visited the Bucs' complex Friday and got an autographed jersey from Evans for Drew, ...
Tampabay.com - Sat, 13 Dec 2014 19:56



Little for Bucs to feel good about on this day
A friend of Drew Newsome, a Bucs fan afflicted with Von Hippel-Lindau syndrome, came by to pick up a No. 13 jersey signed by Evans. Newsome is under hospice care while fighting a rare inherited disorder that is characterized by the formation of tumors.
TBO.com - Sun, 07 Dec 2014 18:18

Evans dedicated TD catch to Bucs fan battling cancer
Tampabay.com (blog) - Sun, 07 Dec 2014 16:54



Childhood cancer: Surviving the cure
His doctors also uncovered the rare genetic condition responsible for his tumour, Von Hippel-Lindau syndrome, which affects one in 36,000 people. His parents, already under strain and now arguing about who was responsible for passing on the faulty gene ...
Sydney Morning Herald - Mon, 01 Dec 2014 04:45



Liam Lawton to perform in Port
The concert is a fundraising event for Shirley Feery, Geashill, suffers from Von Hippel Lindau , a rare genetic disease which has left her wheelchair bound. Shirley is hoping to raise enough funds in order to help her build on an extension to her ...
Leinster Express - Tue, 02 Dec 2014 03:48

Latest Release : Von Hippel-Lindau Syndrome Global Clinical Trials Review ...
Most up-to-date research on "Von Hippel-Lindau Syndrome Global Clinical Trials Review, H2, 2014" to its huge collection of research reports. Albany, NY -- (ReleaseWire) -- 11/28/2014 -- GlobalData's clinical trial report, Von Hippel-Lindau Syndrome ...
Digital Journal - Fri, 28 Nov 2014 11:30



The more we know about rare diseases, the more likely we are to find safe and ...
Recently The National Organization for Rare Diseases (NORD), has teamed up with the patient advocacy group that represents people with the rare disease known as Von Hippel Lindau disease. This is a condition with many debilitating symptoms that also ...
FDA.gov (blog) - Thu, 23 Oct 2014 08:00

Von Hippel-Lindau Disease - A Case Report and Review of Literature
The familial form of the common clear-cell variant of RCC is von Hippel-Lindau disease. Major manifestations include the development of RCC, pheochromocytoma, retinal angiomas, and hemangioblastomas of the brain stem, cerebellum, or spinal cord [1].
UroToday - Thu, 14 Feb 2013 03:48


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Last update: September 2014