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Emily B eliminated from "The Voice," will perform in American Falls
Five years ago she was diagnosed with the rare genetic disorder, von Hippel–Lindau or VHL disease that caused tumors in and around her retinas which led to several eye and brain operations. In 2007, her gospel singing talent made her a top four ...
Idaho State Journal - Fri, 11 Apr 2014 15:47



Dreams do come true
His wife, Erin, is diagnosed with Von Hippel-Lindau (VHL) disease, a rare genetic condition that predisposes people to develop tumours. A teacher, Erin has been unable to work steadily due to the surgeries she's had. Greg applied to the contest in the ...
Lethbridge Herald - Thu, 03 Apr 2014 19:37



Mother of man who died from rare gentic illness talks of his legacy
As always, the trio made the most of the occasion, celebrating an achievement that was all the more considerable given that Matt suffered from the rare genetic disorder von Hippel-Lindau syndrome. The disease prompted tumours to grow in his brain and ...
Hampshire Chronicle - Tue, 01 Apr 2014 07:02

Emily B's voice carries the night
Five years ago she was diagnosed with the rare genetic disorder, von Hippel–Lindau or VHL disease that caused tumors in and around her retinas. It's been nine months since her last surgery, one of several eye and brain operations she has undergone.
Idaho State Journal - Tue, 01 Apr 2014 08:06



Chandler's Ford man died as a result of nurses' failings, inquest hears
Matthew Simmonds, who died at his mother's home in Oakmount Road in Chandler's Ford, was dying from a rare genetic condition called von Hippel-Lindau syndrome resulting in the need for round-the-clock care and invasive ventilation. The court heard ...
Hampshire Chronicle - Thu, 20 Mar 2014 08:14


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