Quick Facts on Urologic Cancers
People who have certain inherited conditions, including von Hippel-Lindau disease, are at a higher risk. High blood pressure is also linked to this cancer. How are urologic cancers treated?: Every case is different, but these cancers are frequently ...
Lexington Herald Leader - Sat, 03 Jan 2015 21:52

The more we know about rare diseases, the more likely we are to find safe and ...
Recently The National Organization for Rare Diseases (NORD), has teamed up with the patient advocacy group that represents people with the rare disease known as Von Hippel Lindau disease. This is a condition with many debilitating symptoms that also ...
FDA.gov (blog) - Thu, 23 Oct 2014 08:00

Von Hippel-Lindau Disease - A Case Report and Review of Literature
The familial form of the common clear-cell variant of RCC is von Hippel-Lindau disease. Major manifestations include the development of RCC, pheochromocytoma, retinal angiomas, and hemangioblastomas of the brain stem, cerebellum, or spinal cord [1].
UroToday - Thu, 14 Feb 2013 03:48

Medical Marvels at New York Presbyterian Hospital: Man battles VHL disease
Manuel Greco has Von Hippel-Lindau disease. It's a rare condition that causes tumors to grow in certain parts of the body. Most of the tumors are benign but they often grow back after being removed. Manuel has been battling VHL disease since he was 17 ...
WABC-TV - Tue, 12 Aug 2014 18:41

Southern Alberta woman is ready to fight rare disease
Five years ago, 32-year old Erin Matt was finally beginning her teaching career, when her life was turned upside down. Matt had a massive brain tumor and underwent a successful surgery, but shortly later was diagnosed with a rare condition called Von ...
Globalnews.ca - Tue, 02 Dec 2014 14:35

Grey's Anatomy features patient with von Hippel-Lindau disease
The second episode in a three-part series on Grey's Anatomy features a patient with von Hippel-Lindau disease (VHL). The next new episode in the show is expected to air on January 6. The first episode, "Adrift and at Peace," aired Dec.
News-Medical.net - Tue, 14 Dec 2010 20:53

Hatfields vs. McCoys might truly be a blood feud
The girl's outbursts were the result of a rare genetic disorder — von Hippel-Lindau disease — that can cause surges in fight-or-flight hormones, like adrenaline. The condition itself is interesting to scientists, but its appearance in this one child ...
New York Daily News - Sat, 27 Dec 2014 17:30

What Rare Disorder Is Hiding in Your DNA?
This one predisposed her to long QT syndrome, a condition that dramatically increases the risk of sudden cardiac death. In people with the syndrome, anything that startles them—say, a scary movie or an alarm clock waking them from a deep slumber ...
Scientific American - Mon, 15 Dec 2014 21:00

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Last update: September 2014