Irish physio with rare form of cystic fibrosis is now preparing or the Rio ...
The Dunshaughlin native, who runs the Scully Sports Therapy Clinic in Rathoath Co Meath, was diagnosed with the most aggressive form of cystic fibrosis, the double delta f508 strain, when he was just six months old. He keeps himself very fit and hasn't ...
Irish Independent - Mon, 26 Jan 2015 00:19

Cystic Fibrosis: Very Rare Disease Diagnosed at Early Age
Approximately 30,000 people in the U.S. are diagnosed with cystic fibrosis; it is a very rare disease which is diagnosed at a very early age. Tara Halvax's newborn had cystic fibrosis. A mutated gene causes the disease. "My first baby I did not think ...
TWC News - Sat, 03 Jan 2015 03:45



Vertex Pharmaceuticals Going to Get Fat on Cystic Fibrosis Pie
Cystic fibrosis affects 75,000 people in North America, Europe, and Australia, but it isn't a one-drug-fits-all kind of disease. Different mutations in the cystic fibrosis transmembrane conductance regulator, or CFTR gene, result in different problems ...
Motley Fool - Fri, 16 Jan 2015 05:36



Idiopathic Pulmonary Fibrosis Macrophage Activation in Acute Exacerbations ...
Idiopathic Pulmonary Fibrosis (IPF) is a disease of the lung characterized by a progressive scarring, fibrosis, of the lung tissue that leads to a decrease of functional lung volume and oxygen uptake. The origin of IPF is not known; many people live ...
Lung Disease News - Thu, 29 Jan 2015 03:44

Surviving Cystic Fibrosis: CF Patients Face Daily Challenges
It's a genetic, life-threatening disease that affects more than 70,000 Americans. Cystic fibrosis is a condition that causes massive fluid buildup in the lungs. In part one of the Surviving Cystic Fibrosis series, Alexa Green introduces us to one ...
TWC News - Fri, 09 Jan 2015 06:03



The Cystic Fibrosis Foundation's Statement on President Obama's Precision ...
BETHESDA, Md., Jan. 30, 2015 /PRNewswire-USNewswire/ -- "We are honored that President Obama discussed how our efforts to treat cystic fibrosis reveal the promise of precision medicine and excited that he is launching a national initiative to support ...
PR Newswire (press release) - Fri, 30 Jan 2015 15:03

Obama gives East Room rollout to Precision Medicine Initiative
Science AAAS - Fri, 30 Jan 2015 13:26

Precision Medicine Is Already Working to Cure Americans: These Are Their Stories
The White House (blog) - Fri, 30 Jan 2015 07:55

What precision medicine is, and how it might save your life some day
Reuters Blogs (blog) - Fri, 30 Jan 2015 03:54

Obama 'precision medicine' plan would be boon to Mass.
Boston Globe - Fri, 30 Jan 2015 06:49

White House fleshes out Obama's $215 million plan for precision medicine
Science Now - Fri, 30 Jan 2015 03:17

Obama Lifts Curtain on 'Precision Medicine' Plan
WebMD - Fri, 30 Jan 2015 07:47



PARI snags FDA approval for cystic fibrosis nebulizer platform
Respiratory devicemaker PARI picked up an approval from the FDA for its eRapid nebulizer system, which is the first electronic one to deliver Genentech's cystic fibrosis treatment Pulmozyme. A nebulizer from PARI featuring the eRapid platform--Courtesy ...
FierceDrugDelivery - Wed, 28 Jan 2015 07:40



UAB Included in PFF Care Network for Focus on Pulmonary Fibrosis
large uab wordmark The University of Alabama at Birmingham recently reacted to news of its inclusion into the Pulmonary Fibrosis Foundation Care Center Network, stating that it is an honor in recognition of their commitment towards patients who suffer ...
Pulmonary Fibrosis News - Fri, 30 Jan 2015 07:22


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