Pittston couple hosts pool tournament to raise awareness of Cockayne ...
Nearly four years after Decker lost his second child to Cockayne syndrome (CS), a genetic disorder so rare that it afflicts only two in every 1 million children born in the U.S. and Europe each year, he sometimes needs to defer to his wife, Jeanie ...
The Sunday Dispatch - Fri, 03 Apr 2015 07:03



Heartbroken mother Jodie Barden forced to plan funerals for BOTH her ...
Mrs Barden, 28, is mother to eight-year-old Ella and one-year-old Chloe, who both suffer from Cockayne Syndrome and have a life expectancy of just 12. Cockayne Syndrome is a rare genetic disorder, which is characterised by a failure to gain weight, ...
Daily Mail - Thu, 02 Apr 2015 08:32



Witham sisters with life-ending Cockayne Syndrome are being helped by hero ...
Jodie Barden, 28, of Speedwell Close, Witham, is the mother of eight-year-old Ella and one-year-old Chloe, who both suffer from Cockayne Syndrome and have a life expectancy of 12. The former graphic designer, who is now the girls' full-time carer, is ...
Essex Chronicle - Fri, 03 Apr 2015 22:03

Can coconut fat keep brains from aging too fast?
Mice placed on a high-fat diet appear to fight off symptoms of aging that affect the brain. The mice had a defect in their DNA repair system. In humans, this defect causes the disorder Cockayne syndrome, where patients prematurely age as children and ...
Futurity: Research News - Thu, 20 Nov 2014 08:55



Coping with prematurely aged children: Families with Cockayne Syndrome kids ...
Families with children who suffer from Cockayne Syndrome, a rare genetic disease characterized by premature aging, gathered at the weekend in Alexandra, Virginia, to share experiences about a condition that can typically leave them feeling isolated.
Daily Mail - Mon, 05 Aug 2013 13:39

Families Of Children With Rare Genetic Disorder Cockayne Syndrome Convene ...
Medical Daily - Mon, 05 Aug 2013 16:13

Families of Children with Cockayne Syndrome Gather in Alexandria
CBS Local - Mon, 05 Aug 2013 12:41

Butterfly Walk to benefit Cockayne Syndrome
One year-old Eris Carroll who has cockayne syndrome, a rare terminal genetic disorder, Friday, March 28, 2014 . Some of the issues caused by the disease are premature aging, sun sensitivity, multi organ failure, cataracts, and hearing issues. The ...
Knoxville News Sentinel - Fri, 28 Mar 2014 12:49



High-fat Diet May Slow Down Alzheimer's, Parkinson's and Premature Aging
Linked to a defect in the DNA, particularly in the CSB protein, Cockayne Syndrome causes failure in protein synthesis, and leads to dwarfism, mental retardation, hearing, and vision impairments. It has been said that our brains have the ability to ...
Science Times - Tue, 11 Nov 2014 21:37

Triad 2 Y/O Diagnosed With Rare Disease
And at a year and half, he was diagnosed with Cockayne Syndrome (Type II), which is a genetic disorder. The life expectancy for kids diagnosed with the syndrome is around five to seven years. Doctors said Caleb wouldn't speak, and he would never stand, ...
WFMY News 2 - Tue, 26 Jun 2012 13:25


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Last update: September 2014