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Craigieburn mum nominated for Pride of Australia medal
Following her son's diagnosis, she founded The Friends of Sammy-Joe, a charity aiming to improve the lives of those living with trichothiodystrophy, Xeroderma Pigmentosum and Cockayne syndrome. The group raised more than $100,000 alone in its first ...
Herald Sun - Mon, 21 Jul 2014 07:03

Sara's Aggies
At age 6, Sara May was diagnosed with a rare, progressive genetic disorder called Cockayne Syndrome, but she didn't allow the disorder to stop her from touching the lives of countless students at Texas A&M University. While Sara was a student at Texas ...
Texas A&M University - Tue, 01 Jul 2014 12:07


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