Hemophilia?

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I have a paper to write on hemophilia, and I can't find a certain answer, can hemophilia effect women? Any other info would be great also. Thanks.
"About 18,000 people in the United States have hemophilia. Each year, about 400 babies are born with the disorder. Hemophilia usually occurs only in males (with very rare exceptions)."

"Although it is very rare, hemophilia can occur in women."

I hope this helps, this is all the info I could find on it.

Michelle  (+ info)

hemophilia?

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is there any good doctors that have a website that I can use to get info on hemophilia?
Here's some information from WebMD, a trusted medical web site:

What is hemophilia?

Hemophilia is a rare genetic bleeding disorder that almost always occurs in males. A person has hemophilia when he or she inherits problems with certain blood-clotting factors, making them unable to work properly. Blood-clotting factors are needed to help stop bleeding after a cut or injury and to prevent spontaneous bleeding. The hemophilia gene can contain many different errors, leading to different degrees of abnormality in the amount of clotting factor produced.

There are two major types of hemophilia:

* Hemophilia A is caused by a deficiency of active clotting factor VIII (8). Approximately 80% of all people with hemophilia have type A, and most of these cases are severe.1 Approximately 1 out of every 5,000 male babies is born with hemophilia A.2
* Hemophilia B (Christmas disease) is caused by a lack of active clotting factor IX (9). It is less common, occurring in 1 out of every 30,000 male babies.2

Article continues at: http://www.webmd.com/hw/blood_disorders/hw191400.asp

Hope that helps.  (+ info)

What is the frequency of women that carry hemophilia?

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I'm doing a project on hemophilia and i need to know how many people carry the disease.
If anyone knows the number of women that carry the gene for hemophilia, PLEASE let me know.
Thanks!
Corinne,

It is not rare to see a women reach child bearing age with hemophilia. I have mild hemophilia. I am a symtomatic carrier. Means I am a carrier with mild hemophilia. I have heavy menstration cycles and have had 3 children. One with severe hemophilia. So it is not unusual for a women with hemophilia to live. We do not bleed any more it just takes longer to clot. It is controllable also.

nikixox7,

Here is what the hemophilia foundation says:

There are several types of bleeding disorders that affect women. von Willebrand disease (VWD) is the most common inherited bleeding disorder and may affect up to 2.5 million American women. Women may also be “symptomatic carriers” of hemophilia, meaning that in addition to carrying the gene, they also exhibit symptoms similar to mild hemophilia. All of the rare factor deficiencies, which include factor I, II, V, VII, XI and XIII, can also result in bleeding among men and women.

Aside from the fact that women have similar symptoms to men with bleeding disorders, they can also experience added obstetric and gynecological complications. VWD and other bleeding disorders are particularly troublesome for reproductive-aged women. Heavy and prolonged menstrual bleeding, also known as menorrhagia, can lead to serious complications if left untreated. Other common symptoms include recurrent nosebleeds, easy bruising, bleeding from the digestive or urinary tract and excessive bleeding from the mouth or gums.

Some doctors may not be familiar with bleeding disorders affecting women, making a definitive diagnosis elusive. It is common for bleeding symptoms to be attributed to other causes or to simply go unexplained. The troubling aspect to this problem is that non-surgical treatments are available for these conditions. In cases where a woman with a bleeding disorder (or symptomatic carrier) becomes pregnant, she should see an obstetrician as soon as possible. This will ensure that the doctor can consult with the local hemophilia treatment center to provide pre- and postnatal care for the woman and her baby. Decisions about what medical and surgical options to pursue should be based on personal preference, family planning goals and severity of bleeding problems.

In 2000, the National Hemophilia Foundation (NHF) launched a new education program, “Project Red Flag (PRF): Real Talk About Women’s Bleeding Disorders.” PRF is a national awareness campaign to target undiagnosed women with bleeding disorders and their doctors. The campaign includes public outreach, grassroots community efforts, professional education programs and publications. To learn more about PRF visit the NHF Web site at www.projectredflag.org.

Women who suspect they may have a bleeding disorder should contact NHF for information about where to go for help and what to discuss with a doctor. Information and referrals to healthcare providers are also available through HANDI at 800-424-2634 or [email protected].  (+ info)

Hemophilia: What are the symptoms, diagnosis, genetic patterns of inheritance, and cure/ treatment of it?

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I just want to know what the symptoms of hemophilia are, the diagnosis, the genetic patterns of inheritance, and whether or not there is a cure (is there one being worked on?). Thank you for your help!
Hemophilia is a genetic disorder. The symptoms are easy bruising, prolonged bleeding and in some cases can lead to death. Most hemophiliacs fall under the heading of Factor 8 ( hemophilia A) or Factor 9 (hemophilia b). The factor simply put is the clotting that they are lacking. Factor 8 is the most common.

It is important to remember that like many things there is not just one type of Hemophilia. Some hemophiliacs may only need treatment for a major injury or surgery. While others may get muscles and joint bleeds and not know how the bleed started.

Treatment:

Mild hemophiliacs may only get treatment when need to before a surgery. While those with severe hemophilia may treat 3 times a week regardless if there is a bleed or not. This is done to improve the quality of life. Many hemophilics are often taught to treat at home. This means finding a vein and sticking yourself with a needle.

Factor 9 hemophiliacs are often given Benfix. While factor 8 hemophiliacs are now getting Whety more often as it just hit the market in Jan 2008. Both are VERY VERY expensive.

Cure:

There is no cure for hemophilia. Much hope was put into genetic engineering and still is however it still seems far away. Oddly enough hemophilia has been cured in mice. Researchers in short with through the mice liver and forced the body to produce the lacking clotting agent. It is important to note that while promising mice and humans are worlds apart.
Sources are listed below I hope this helps.
  (+ info)

How is it possible for Mother Teresa to have hemophilia?

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Hemophilia is a sex linked genetic disease. Males carry the expression where as females are carriers for the disease. How is it possible for her to have it if she was a female?
Haemophilia is a group of hereditary genetic disorders that impair the body's ability to control blood clotting or coagulation, which is used to stop bleeding when a blood vessel is broken.

Females are almost exclusively the carriers of the disorder, and may have inherited it from either their mother or father.

Queen Victoria is a famous haemophiliac. She passed it on to the entire regal family.  (+ info)

What is the chance that their first child will have hemophilia?

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Hemophilia is an X-linked recessive disease that prevents blood clotting. If a woman who is a carrier for hemophilia marries a normal man, what proportion of their sons are expected to have hemophilia? What is the chance that their first child will have hemophilia (Remember sex this child is unknown until birth).
25% is the risk in recessive male child  (+ info)

Why bleeding time in patient with Hemophilia is normal?

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Bleeding time is time taken for a standardized skin puncture to stop bleeding.Hence, patient with Hemophilia supposed should have prolonged BT.Moreover, one of the clinical manifestation of hemophilia is prolonged bleeding.Why is this so?
First, I think you have the wrong test. There's nothing like any BT for the blood or any other test I know. Maybe you're referring to the PT test. which stands for pro-thrombin, the test to see how long it takes for your blood to clot. There are also 3 level of hemophilia,mild,moderate and severe. Depending on which one you have you might just have a normal PT time but a slightly abnormal aPTT test. Please go to webmd.com for more info on this and do the rest of your research there. There is allot more info there that I can only repeat here. Then you'll have whatever info and how much you need too. Good luck and God Bless  (+ info)

How much is Insurance for someone who has Hemophilia?

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How much a month or year does a family or individual pay for insurance with hemophilia? What insurance company are you affliated with? For those who work for the government, would hemophilia be covered in your health care package? Thanks for all answers.
In terms of private insurance that is not given out by a job you can forget about getting coverge from them if you have hemophilia. I had over 40 rejection letters to prove it.

As for insurance that is offered through someones job my own personal experience has been its the same as everyone else. It is important to note that many insurance company's have a "preexisting condition" clause. For most insurance company's this in short states that a person must not of been treaded for their pre existing condition for a year to be able to be covered for it right away. If you have been treated for a pre existing within the last year you must be insured from anywhere to 6 months to a year before the insurance company will cover it.

One last thing to remember is almost all insurance company's have a "Lifetime Cap". This means that the insurance company will only up to a certain dollar amount for a person for their entire life. For many people this is almost never really an issue as it really only comes into play for those who need life long expensive treatments such as hemophilia.  (+ info)

Is it possible to have facial piercings if you have hemophilia?

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This may sound stupid but I'm just wondering if a person with hemophilia could get facial piercings. I'm writing a story so I just wanted to know.
Sure we can. We can even have heart transplants. The key is the factor that a person with Hemophilia would take. The factor they take brings their blood clotting up to normal just any other person. Once the clotting factor is up to normal they are set to go.

As far as facial piercings. It would depend on each person with Hemophilia. Some have very low clotting factors under 1% of normal others are not to bad like myself who have 19% of normal.

If you need more info feel free to ask me.  (+ info)

Do people with Hemophilia usually have a normal lifespan?

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Considering both Hemophilia A and Hemophilia B, what is the average lifespan for people who have Hemophilia? Do they usually live as long as anyone else these days? If they die a death due to the Hemophilia how the death usually occur/what causes it?
My father had Hemophelia B which is a blood disorder where you are missing FACTOR 8 which is a clotting factor that is missing with this disease. It causes internal bleeds throughout the body. It doesn't take an injury to cause it. It just occurs. It is then necessary to get blood transfusions which comes in UNITS of crio-precipitate, which must be thawed, or there are home treatments where the patient can mix their own man-made clotting factor. you must obtain it at a Pharmacy and learn to infuse it yourself if you choose to do it at home.
With this Hemophelia(the one missing factor 8)it can be mild, moderate or severe. My dad's was severe. He was born in 1932 and died in 1998. In his situation, doctors told him he wouldn't live until 25, and he became the oldest living Hemopheliac in Louisville dying at 68. He beat the odds. The internal bleeding over time causes many problems, namely, crippling in the joints, damage to liver from pain meds, transfusions and blood products. Because of years of these problems my dad developed a cancer in his liver which spread and he passed away. Now days though, younger people with this have better treatment and care, than my dad did as a child so they may live even longer. (even the severe ones) This is the disease Nicholas and Alexandra's son(czar and czarina of Russia in early 1900's) had. His was severe. Richard Burton, the actor, had a very mild case. Mostly men get this disease and it is genetic. It is passed down by the mother to her sons. Her daughters most likely will be "carriers" which means the daughter then has a 50-50 chance of having a son with Hemophelia. I am a carrier. I am now 50 and chose not to have children because of this painful, and dreaded disease. My dad suffered greatly throughout his lifetime. I hope this helps!  (+ info)

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