FAQ - guillain-barre syndrome
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Guillain - Barre Syndrome?


If somebody has Guillain - Barre syndrome ... is it helpful to have regular massage therapy? How about Acupuncture?
My friend has it but I thought it was from being a pilot who flew in a uncompressed plane for a while.
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What are the characteristics of guillain-barre syndrome?


I'm supposed to research about guillain barre syndrome. I need to know its charectistics and traits. Thanks!
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Well, the disease varies a lot. At the lowest level, a person might feel a bit weak or slugglish for a couple weeks and then recover – never knowing that he had the syndrome. At the extreme, a person will be paralyzed from the bottom of his toes to the top of his head, requiring mechanical assistance to breath, eat, and eliminate body waste. He may stay in this condition for several years.

Most cases fall somewhere in the middle. I have had Guillain Barre Syndrome twice – once in Sept. of 1986 and then again in Aug. of 1988. These were separate (distinct) occurrences. The first time, I ended up in intensive care, paralyzed from my chest down. I could move my shoulders and head/face, but nothing more. However, I was able to breathe without a ventilator. I spent most of that year in the hospital. In those days, the primary treatment was mega doses of steroids.

But in 1988, I had a new treatment that involved plasma flushing. That was highly effective. When it started, I was paralyzed from the neck down. I left the hospital about ten days later walking without assistance.  (+ info)

Can anyone tell me about the side effect of the bird flu called the guillain-barre syndrome?


I am trying to learn more about the side effect of the bird flu. its called the guillain-barre syndrome. When was this and what happened? when i look it up i just find stuff about the swine flu and if you could get it from that. can anyone help me?
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Guillain-Barre syndrome is NOT the flu. It's an immune system disorder in which the nervous system is damaged by the body's own defenses. Viral infections can precede the onset of G-B, but according to the NIH, it is not currently known what triggers the syndrome.

http://www.ninds.nih.gov/disorders/gbs/detail_gbs.htm  (+ info)

Need medical advice on leg pain after having Guillain-Barre syndrome earlier in the year?


Every month during my period i keep getting severe pain in the back of my left leg. Its so bad i can only walk in heels because it is difficult to flex my foot. i've been thinking its just muscle strain, but now im not so sure since it keeps re-occuring at that time of the month. It is not warm to the touch. i also had guillain barre syndrome in september of this year, if that makes a difference.
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GBS tho rare does cause peripheral neuropathy,a nerve disorder..Some take several years to recover others always have residual effects :-(

Since your GBS was so recent,if the cramping gets worse suggest you see your Dr..

Best wishes  (+ info)

Has anyone had Guillain-barre syndrome? How long was it before you could walk again?


My daughter has been critically ill - struck down with Guillain-barre syndrome on 20th October. She was totally paralysed, only able to blink, and on a ventilator until today. She still is being fed through an NG tube and cannot move her legs at all but has some movement in her arms. Thank god she can talk to us at last! I was just wondering how long it took others with the syndrome to be able to walk unaided again.
My daughter is 20 by the way.
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Guillain-Barré (Ghee-yaw Bah-ray) Syndrome, also called acute inflammatory demyelinating polyneuropathy and Landry's ascending paralysis, is a disorder of the peripheral nerves, those outside the brain and spinal cord (peripheral nerves and spinal roots are the major sites of demyelination in GBS patients). It is typically characterized by the rapid onset of muscle weakness and often, paralysis of the legs, arms and breathing muscles. The cause of Guillain-Barre' syndrome is not known; and why the disorder only occurs in certain patients is still not known. Research to date indicates that the nerves of the GBS patient are attacked by the body's own defense system against disease-antibodies and white blood cells. As a result of this autoimmune attack, the nerve insulation (myelin) and sometimes even the covered conducting part of the nerve (axon) is damaged.



it took me about 2 years.  (+ info)

can guillain barre syndrome take along time to reach its worse point?


My grandfather has the Syndrome and has been in the hospital for the past five weeks and was numb in hands and feet for two weeks before that. He went on the resporater two days ago. Doctors are begining to question there diagnosis? I just want to haer from anyone who has dealt with this first hand.
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Treatment for this disease is usually supportive., and sometimes steroids are used.
Recovery may take months and is usually incomplete.  (+ info)

Guillain Barre Syndrome again or what is going on?


I had guillain barre syndrome in 2004. I am extremely fatigued and having back pain....I can't tell if my feet are tingling or numb because they still do that from my previous GBS. Could this be GBS again or after you have GBS do you still get extremely fatigued even years down the road? Just concerned. Thank you, Tiffany
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My son 12 is acctually getting over guillain barre right now and the dr told me that even years down the road he may feel really fatigued. After getting guillain barre you can relapse in a 3% chance. My son spent 59 days in the hospital and was on a ventolater for 8 days of that. They said he may never be 100%. He just learned how to walk again about 1 month ago. He is really scared he wont skateboard again. It is a scary thing to go thru my prayers are with you. Please email me and let me know what you have found out. I may have this same question in a few years. [email protected] put GBS in the subject so I know it is you
Here is what I just found and below I will post a couple web sites. the second is where I got this info.

10-20% of the patients are still somewhat weak 3 years later, while 5-10% have severe permanent motor problems and may require a wheelchair to get around.

Although the majority of patients recover fully, most of them suffer from mild forms of weakness and/or sensory disturbances. They may experience periodic bouts of tingling and numbness in their fingers and toes, and days where their hands "don't work right" and they drop things. Very few patients require wheelchairs, and few have such severe problems that they cannot resume their jobs, unless they are physically very demanding.

These residual symptoms and their impact on the lives of post-GBS patients is not very well researched or documented, and many doctors may be at a loss to treat them.
This website is working to create a collection of resources based on real-life experiences. Patients who suffer or have overcome residual symptoms are encouraged to share them here: See "Focus on Post-GBS residuals" .


'Pain: A part of life in the future' below deals with the issue of post-GBS pain. 'Case histories' and 'Focus on Post-GBS residuals' contain valuable tips on how to tackle residual symptoms and experiences of continuing recovery many years after the initial attack.

Patients are urged to be mindful of the fact that because they have GBS, they are not immune to getting another illness simultaneously. If you experience new symptoms, or an unexpected worsening of the symptoms you have already, they may have a connection to the GBS or they may not. So please report them to both your doctor and your neurologist.  (+ info)

Have you had an experience or know someone that had with Guillain Barre Syndrome?


It's very rare, I had it myself two years ago, thank God I'm fully recovered. Since I had it, I became really interested with the subject, and since it is so rare I'm using this method to know about other cases. Thank you for your attention.
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Hi, I am diagnosed with the Guillain-Barré Syndrome variant CIDP. I am a liaison for the GBS Support Group in the UK and also run two websites and a very active forum for those with the disorder. My CIDP has been fairly consistent since 1976. It seems that the majority of those on the forum have indeed had longer than the 'average' dose of GBS. There are many amazing stories and I never cease to be amazed by how resilient these patients can be!!

Below are the URL's for our current forum, the web-site, and our original (now closed) forum. As an ex-sufferer you are more than welcome to join and offer your experiences, and hope, to members.

All the best, Kezzi. . .  (+ info)

Does anyone have first hand experience with Guillain Barre Syndrome?


Do people usually recover, or does it leave a person paralized?
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If you can catch the disease in it's primary progressive state and treatment is begun in a timely manner the disease will eventually regress to a minimal state. However, I have found that the person will usually have some numbness or residual tingling in the feet or lower legs. It is unfortunate in that this disease is one in which patience so demanded of the person struck with it. You don't say if the person is yourself or a loved one. I can tell you that if it is a loved one be kind and gentle as that person is trapped in their own body and may at times be unable to fully communicate. Think about how frightened they might be. One the brighter side there is newer and better threatments being developed by a Dr. B. Khatri. He is a world reknown neurologist and has been making great strides in his treatment with plasmaphoresis.  (+ info)

What is the difference between Myasthenia Gravis and Guillain Barre Syndrome?


They are both what is called "Auto-immune Diseases". The body's White blood cells normally produce "Anti-bodies" to fight infection. In these illnesses, the anti-bodies attack the body instead.

In Myasthenia Gravis, the anti-bodies attack the junction between the nerve and muscle, causing weakness that gets worse the more that you try and move. It commonly affects the eye muscles, speach and swallowing muscles, and also the muscles in the arms and legs. It is a lifelong condition, but very often it can be very effectively suppressed so that it doesnt cause any problem.

Guillain Barre Syndrome often comes on after an infection eg diarrhoea, chest infection etc, and the antibodies attack the covering of nerves called the myelin sheath. This typically causes an ascending weakness which can progress over hours or days. If it gets severe, it can even affect the muscles of breathing. It usually takes between a few weeks to a couple of months to recover. Most people fully recover and are never affected again. Treatment can be given when the weakness starts to help prevent further deterioration, and helps to speed up recovery.

If you want any further info, you can email me.  (+ info)

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