How did you feel when you found out that your child had cerebral palsy?

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We always knew that our now 16 month old daughter was a little 'behind' for her age, but when the paeds told us yesterday that she actually had cerebral palsy - I was dumbfounded.

It took a whole day to sink in, and I wasnt hit with the severity of it until this morning (and it felt like I was hit with a shovel on the head).

I'm devistated. How did you feel? What did you tell your family?
I'm a 26 year old female with mild spastic diplegia cerebral palsy, and although I obviously don't remember being diagnosed, I do know that my mother worried more BEFORE the diagnosis than she did afterwards. Like you, she knew something was wrong, and she was relieved when the doctors told her what it was because now "it" had a name.

I suspect what you are most worried about is how your daughter is going to function in a "normal" world. I'm not going to lie, it's very hard, and it's probably going to be harder on you than it will be on your daughter. But one thing my parents did for me that was absolutely invaluable was to tell me from a very early age "Don't ask us for help if you can do it yourself." They would show me how to do things, and then expect me to do them, even if it took me three times longer to get it done than everybody else. It made me feel at times like they didn't really love me; especially when they would just stand there after I fell and watch me pick myself up again--which at the beginning took a full five minutes. I now realize of course, that they were doing this because they loved me. Independence is a LIFELONG process.

As your daughter grows and develops, you will learn what the severity of her disability is, and how much she is really capable of, but I'm going tell you right now, if you push her, she will me MUCH more capable than the doctors give her credit for. Push her, push her, push her! It's painful but oh, so necessary. You cannot begin to teach your daughter independence at the age of 25 and expect her to catch up with everyone else. I am what I am today because I have spent a lifetime learning it.

Your dreams for your daughter will need to be readjusted, but they do not have to die, and this is what I would tell your family. I have been alble to achieve everything I set my mind to, even if it took me a little longer to reach my goal. I'm trusting the same will be true for your daughter. The only thing I cannot do is drive. I am in grad-school for my Masters in Divinity right now (so I can preach), and I would love to get my PhD someday. I walk and do pretty much everything for myself, even if it is awkward. I have some self-image issues because of the fact that my walking gait is ugly, but that's my own junk to deal with.

This is not a death sentence. Please believe that. Inside your daughter is a wonderful, God-made person just waiting to get out with your help. Make sure you have good physicians and physical and occupational therapists, and you will be fine.

Let me know if you need anything else. I'm here to help.  (+ info)

My friend technically has cerebral palsy, does he still actually have it?

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My friend has cerebral palsy. He couldn't walk or go up stairs until the 8th grade. Now that he's a sophomore in high school he can walk and go up stairs just fine; he can even run insanely fast! His only problem is a small shift in how he walks which is barely noticable. Does he still have cerebral palsy?
Yes. CP is the result of brain damage. Brian damage cannot be reversed. However, physical therapy can be very helpful for people with brain injuries.  (+ info)

How long does someone with Cerebral Palsy normally live?

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Iam dating a lady with a child with severs Cerebral Palsy, hope child lives to be a 100, but just wondering how old do one with severe Cerebral Palsy live to be?
They lead a mixed sort of a life, intermingled with better health and health complicated by infections, and usually survive till about 30 years. This age is not sacrosanct and individuals with better health and with freedom from infections may continue to live almost the same duration as is for a normal person.  (+ info)

Does anyone know any exercise programs that someone can do with cerebral palsy?

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I'm 19 and have an extremely mild case of cerebral palsy. I have balance issues and some muscle pain. I am about five to ten pounds overweight and want to lose weight to see if that will help with my irregular periods. Does anyone have any ideas for me? I have been trying so hard but nothing is helping and I am so upset because I can't do fitness programs that are on tv and suggestions?
Hi,
I'm 20yrs old i have moderate CP and currently use a walker (i will be switching to crutches within a few weeks).I go to the gym 5-6 days a week and have been for about 9 months. I've noticed considerable strength gains overall and combined with stretching expect to be walking unassisted within a few months. honestly what i recommend is a change in diet and four days a week on a treadmill and or another cardio machine for somewhere between 15-25 minutes per day
-hope this helps,Austin.  (+ info)

Is California a good place to live with people that have cerebral palsy?

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I'm a 22 year old male who has cerebral palsy and I'm thinking about moving from Tennessee to California.How is California toward people in my condition,and where would be the best place to live at?I know San Francisco is to hilly so please can some one help me out here.
I am not familiar with CA and how they react to people with Cerebral Palsy as I live in another part of the country, but one way you can find out is to check with United Cerebral Palsy's chapter in the San Franscico area. You can find out more about this by going to: http://www.ucp.org or find them on Facebook.  (+ info)

What is a good paying job for people with cerebral palsy?

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I have cerebral palsy And i would like to know what is few a good paying job that i could do for years. I want to have a profession that at least pays 50-60k a yr or more. Currently i am a junior in high School and do not have any clue on what a good Career for me would be. Remember I have Mild Cerebral Palsy and want to make enough to live comfortable
My hubby has CP and has a good job with the government.

Don't let anyone tell u that u cant do this or that because u have cp. The doctors told my hubby's parents that he may not for some amount of years,or go to school,graduate, marry, have kids, hold a job, lots of thing. he did ALL this because he did not let people tell him that he could not do them. He even has two kids and he is the bread winner of his family. he make enough to send his kids to private school and take care of his wife's medical bills cause i have epilepsy. I don't let ppl tell me no either.

Anyway, go to college after high school and get your degree in what your interested in. Don't think of what job might take u, go for the degree that u like. When u are finished getting that degree go look for that job and don't let ppl tell u no u cant have it. Find a way u can get a job in that field. Don't shout or demand that u will get this or that just be confident. do research, it helps. It is good that u are looking into this now.Look into places in your field that have disabled ppl already there or have accommodations for the disabled like ramps and accessible bathrooms. Accommodation's that are up to really nice level not something that was just put together to make it accessible.

how can i stress it. go with confidence, don't let people tell u no!

Good luck in the future  (+ info)

Does anyone know if cerebral palsy and epilepsy can be related?

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I have cerebral palsy and epilepsy, both of which have caused various other problems; like sciatica, arthritis, asthma, anxiety, hypersensitivity, occasional aphasia, sensory integration disorder, ADD, and dyscalculia. I have noticed that many adults with cerebral palsy whom I have talked to have epilepsy or some sort of seizure disorder, as well as one or more of the additional disorders mentioned. Are these two main disorders intertwined? Can anyone relate?
Cerebral palsy is the result of some sort of insult to the central nervous system in utero, during birth, or during early infancy.

Epilepsy is not much different. It occurs because the brain is miswired so that the electrical signals can start jumping out of control. The miswiring can occur because of a developmental mistake, or it can occur while recovering from an injury to the brain (a stroke, for example).

We may not be able to see anything different on imaging (CT or MRI), but we know that ultimately both are the result of a physical abnormality in how the neurons are wired together in the brain.  (+ info)

Why did my friend and her husband have 2 kids with cerebral palsy?

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What could cause a couple to have 2 kids with cerebral palsy? I know that she did some drugs back then... namely LSD. but could drug use make that happen?
Although CP is associated with problems at delivery, or with premature birth that requires the newborn to be on a ventilator, there are cases where doctors never do figure out what caused it. It is possible that her drug use did play a part, because many of them do cross the placental barrier. Drug using mothers also don't tend to eat right or have prenatal care, and those also raise the risks of having problems with the newborn. It's not a genetic problem, but it can be a developmental problem during the pregnancy itself or injury during the birth process. Given the history of drug use, especially if it was during pregnancy or in between them- yes, that could be part of the explanation.  (+ info)

My cousin has cerebral palsy and wants to know if he is able to have kids or not?

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He's got a mild case of it and has had many surgeries. Can he have kids or does cerebral palsy make him unable to?
People with many disabilities, including Cerebral Palsy can have children.  (+ info)

Can someone help me on my Cerebral Palsy paper?

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So I have this Genetics paper due tomorrow on Cerebral Palsy. I have most of it done. I just need a closing paragraph. It has been very difficult finding information because technically CP may or may not be genetic.

Could someone give me ideas or an outline of what I could write?
check out this site! www.webmd.com Hope it helps  (+ info)

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