FAQ - Xeroderma Pigmentosum
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Xeroderma Pigmentosum?


Are there ways to help children that have this disease? I have no idea where to look. I read about it in a magazine
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Treatment

The most important part of managing the condition is reducing exposure to the sun.

The number of keratoses can be reduced with Isotretinoin ([1]) (though there are significant side-effects.) Existing keratoses can be treated using cryotherapy or fluorouracil. ([2]).  (+ info)

can people with Xeroderma Pigmentosum, and if so is massage cryotherapy helpful to this condition?


Can people with xeroderma pigmentosum.... what? Get a massage? Should be fine, as long as there is no current sunburn or painful skin. I don't think cryotherapy would do very much, though; the disease is aggravated by exposure to UV rays, not heat.  (+ info)

Does anyone know of any OB/GYNs who have hours at night?


I am really sensitive to the sun and burn really easily. (I have something like xeroderma pigmentosum meaning I can't take ultraviolet light. It's a totally natural condition!)

I know I asked this before, but it went into voting sooner than it said it would, so I could not pick a best answer. I only got one answer anyway and it wasn't very helpful, so you'll probably get an automatic best answer just for answering :/
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It might be helpful to tell people what city you are in to get the best answers. I would start by checking your insurance companies list of covered providers and call the offices of a few docs to explain your situation. I am sure you can find one willing to work with you.  (+ info)

What are the chances of getting Squamous cell carcinomafrom a pilonidal cyst from this?


What are the chances of getting Squamous cell carcinomafrom a pilonidal cyst from this?

So yeah I had this cyst for about 2.5 years.
It doesn't hurt, and it leaks sometimes.
The skin above where the cyst is a normal color.
It looks about it's about .5'' - .75'' wide and about 1'' - 1.5'' long.

Not sure if the normal risk factors Squamous cell carcinoma have anything to do with getting it this way but...

Chronic sun exposure. A lifetime spent in the sun: Nope, I don't even go tanning.
Fair skin. If you have very light skin or freckle or sunburn easily: I think I burn easilly.
Your age. The average age at which this condition is diagnosed is 66. However, squamous cell carcinoma is occurring with increasing frequency in younger people. : I'm only 22.
Your sex. Men are far more likely to develop squamous cell carcinoma: I'm a male.
A personal history of skin cancer. If you've had squamous cell carcinoma once: I've never had it or any other types of skin cancer.
Weakened immune system. People with weakened immune systems are at greater risk of many diseases, including skin cancer. : Nope, nothing
Rare genetic disorder. People with xeroderma pigmentosum: I don't think I've have it.
Smoking. Smoking increases your risk of squamous cell carcinoma: I've never smoked.
Skin inflammation or injury. You have a slightly higher chance of developing squamous cell carcinoma if you have a large scar, skin infection or an inflammatory skin disease, such as psoriasis. : Only if this cyst and pimples count as skin inflammation.
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  (+ info)

Should I be worried about getting cancer from this cyst?


Should I be worried about getting cancer from this cyst?

So yeah I had this cyst for about 2.5 years.
It doesn't hurt, and it leaks sometimes.
The skin above where the cyst is a normal color.
It looks about it's about .5'' - .75'' wide and about 1'' - 1.5'' long.

Not sure if the normal risk factors Squamous cell carcinoma have anything to do with getting it this way but...

Chronic sun exposure. A lifetime spent in the sun: Nope, I don't even go tanning.
Fair skin. If you have very light skin or freckle or sunburn easily: I think I burn easilly.
Your age. The average age at which this condition is diagnosed is 66. However, squamous cell carcinoma is occurring with increasing frequency in younger people. : I'm only 22.
Your sex. Men are far more likely to develop squamous cell carcinoma: I'm a male.
A personal history of skin cancer. If you've had squamous cell carcinoma once: I've never had it or any other types of skin cancer.
Weakened immune system. People with weakened immune systems are at greater risk of many diseases, including skin cancer. : Nope, nothing
Rare genetic disorder. People with xeroderma pigmentosum: I don't think I've have it.
Smoking. Smoking increases your risk of squamous cell carcinoma: I've never smoked.
Skin inflammation or injury. You have a slightly higher chance of developing squamous cell carcinoma if you have a large scar, skin infection or an inflammatory skin disease, such as psoriasis. : Only if this cyst and pimples count as skin inflammation.
----------

  (+ info)

Should I be worried about getting cancer from this cyst?


Should I be worried about getting cancer from this cyst?

So yeah I had this cyst for about 2.5 years.
It doesn't hurt, and it leaks sometimes.
The skin above where the cyst is a normal color.
It looks about it's about .5'' - .75'' wide and about 1'' - 1.5'' long.

Not sure if the normal risk factors Squamous cell carcinoma have anything to do with getting it this way but...

Chronic sun exposure. A lifetime spent in the sun: Nope, I don't even go tanning.
Fair skin. If you have very light skin or freckle or sunburn easily: I think I burn easilly.
Your age. The average age at which this condition is diagnosed is 66. However, squamous cell carcinoma is occurring with increasing frequency in younger people. : I'm only 22.
Your sex. Men are far more likely to develop squamous cell carcinoma: I'm a male.
A personal history of skin cancer. If you've had squamous cell carcinoma once: I've never had it or any other types of skin cancer.
Weakened immune system. People with weakened immune systems are at greater risk of many diseases, including skin cancer. : Nope, nothing
Rare genetic disorder. People with xeroderma pigmentosum: I don't think I've have it.
Smoking. Smoking increases your risk of squamous cell carcinoma: I've never smoked.
Skin inflammation or injury. You have a slightly higher chance of developing squamous cell carcinoma if you have a large scar, skin infection or an inflammatory skin disease, such as psoriasis. : Only if this cyst and pimples count as skin inflammation.
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There are approximately 485 cases per 100,000 white Americans each year. There are about 473 per 100,000 for all races combined.  (+ info)

What are the chances of getting cancer from a pilonidal cyst from this?


What are the chances of getting cancer from a pilonidal cyst from this?

So yeah I had this cyst for about 2.5 years.
It doesn't hurt, and it leaks sometimes.
The skin above where the cyst is a normal color.
It looks about it's about .5'' - .75'' wide and about 1'' - 1.5'' long.

Not sure if the normal risk factors Squamous cell carcinoma have anything to do with getting it this way but...

Chronic sun exposure. A lifetime spent in the sun: Nope, I don't even go tanning.
Fair skin. If you have very light skin or freckle or sunburn easily: I think I burn easilly.
Your age. The average age at which this condition is diagnosed is 66. However, squamous cell carcinoma is occurring with increasing frequency in younger people. : I'm only 22.
Your sex. Men are far more likely to develop squamous cell carcinoma: I'm a male.
A personal history of skin cancer. If you've had squamous cell carcinoma once: I've never had it or any other types of skin cancer.
Weakened immune system. People with weakened immune systems are at greater risk of many diseases, including skin cancer. : Nope, nothing
Rare genetic disorder. People with xeroderma pigmentosum: I don't think I've have it.
Smoking. Smoking increases your risk of squamous cell carcinoma: I've never smoked.
Skin inflammation or injury. You have a slightly higher chance of developing squamous cell carcinoma if you have a large scar, skin infection or an inflammatory skin disease, such as psoriasis. : Only if this cyst and pimples count as skin inflammation.
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i'm not sure it increases your risk of cancer but it definitely increases your risk of infections. the only way to get rid of pilonidal cyst is to have it surgically removed, along with the tract. i worked in an operating room and you do NOT want it to get worse, trust me. i would recommend talking to a general surgeon about it, and see what course he/she recommends. but it's not normal to have a cyst that leaks. get it checked out, for your own sake.  (+ info)

What are the chances of getting cancer from a pilonidal cyst from this?


What are the chances of getting cancer from a pilonidal cyst from this?

So yeah I had this cyst for about 2.5 years.
It doesn't hurt, and it leaks sometimes.
The skin above where the cyst is a normal color.
It looks about it's about .5'' - .75'' wide and about 1'' - 1.5'' long.

Not sure if the normal risk factors Squamous cell carcinoma have anything to do with getting it this way but...

Chronic sun exposure. A lifetime spent in the sun: Nope, I don't even go tanning.
Fair skin. If you have very light skin or freckle or sunburn easily: I think I burn easilly.
Your age. The average age at which this condition is diagnosed is 66. However, squamous cell carcinoma is occurring with increasing frequency in younger people. : I'm only 22.
Your sex. Men are far more likely to develop squamous cell carcinoma: I'm a male.
A personal history of skin cancer. If you've had squamous cell carcinoma once: I've never had it or any other types of skin cancer.
Weakened immune system. People with weakened immune systems are at greater risk of many diseases, including skin cancer. : Nope, nothing
Rare genetic disorder. People with xeroderma pigmentosum: I don't think I've have it.
Smoking. Smoking increases your risk of squamous cell carcinoma: I've never smoked.
Skin inflammation or injury. You have a slightly higher chance of developing squamous cell carcinoma if you have a large scar, skin infection or an inflammatory skin disease, such as psoriasis. : Only if this cyst and pimples count as skin inflammation.
----------

  (+ info)

What are the chances of getting Squamous cell carcinomafrom a pilonidal cyst from this?


What are the chances of getting Squamous cell carcinomafrom a pilonidal cyst from this?

So yeah I had this cyst for about 2.5 years.
It doesn't hurt, and it leaks sometimes.
The skin above where the cyst is a normal color.
It looks about it's about .5'' - .75'' wide and about 1'' - 1.5'' long.

Not sure if the normal risk factors Squamous cell carcinoma have anything to do with getting it this way but...

Chronic sun exposure. A lifetime spent in the sun: Nope, I don't even go tanning.
Fair skin. If you have very light skin or freckle or sunburn easily: I think I burn easilly.
Your age. The average age at which this condition is diagnosed is 66. However, squamous cell carcinoma is occurring with increasing frequency in younger people. : I'm only 22.
Your sex. Men are far more likely to develop squamous cell carcinoma: I'm a male.
A personal history of skin cancer. If you've had squamous cell carcinoma once: I've never had it or any other types of skin cancer.
Weakened immune system. People with weakened immune systems are at greater risk of many diseases, including skin cancer. : Nope, nothing
Rare genetic disorder. People with xeroderma pigmentosum: I don't think I've have it.
Smoking. Smoking increases your risk of squamous cell carcinoma: I've never smoked.
Skin inflammation or injury. You have a slightly higher chance of developing squamous cell carcinoma if you have a large scar, skin infection or an inflammatory skin disease, such as psoriasis. : Only if this cyst and pimples count as skin inflammation.
----------

No chance of it. I have had my Pilondial Cyst on and off since the age of 10. I am now 43 and have one right now as we speak. Apply warm compresses to it, and neosporin it will heal on it's own.  (+ info)

Should I be worried about getting cancer from this cyst?


Should I be worried about getting cancer from this cyst?

So yeah I had this cyst for about 2.5 years.
It doesn't hurt, and it leaks sometimes.
The skin above where the cyst is a normal color.
It looks about it's about .5'' - .75'' wide and about 1'' - 1.5'' long.

Not sure if the normal risk factors Squamous cell carcinoma have anything to do with getting it this way but...

Chronic sun exposure. A lifetime spent in the sun: Nope, I don't even go tanning.
Fair skin. If you have very light skin or freckle or sunburn easily: I think I burn easilly.
Your age. The average age at which this condition is diagnosed is 66. However, squamous cell carcinoma is occurring with increasing frequency in younger people. : I'm only 22.
Your sex. Men are far more likely to develop squamous cell carcinoma: I'm a male.
A personal history of skin cancer. If you've had squamous cell carcinoma once: I've never had it or any other types of skin cancer.
Weakened immune system. People with weakened immune systems are at greater risk of many diseases, including skin cancer. : Nope, nothing
Rare genetic disorder. People with xeroderma pigmentosum: I don't think I've have it.
Smoking. Smoking increases your risk of squamous cell carcinoma: I've never smoked.
Skin inflammation or injury. You have a slightly higher chance of developing squamous cell carcinoma if you have a large scar, skin infection or an inflammatory skin disease, such as psoriasis. : Only if this cyst and pimples count as skin inflammation.
----------

Most cysts are benign, however if you are concerned about this particular one, see your general practitioner and they will check it for you.

Cysts come and go in all parts of your body. They can be internal or external.  (+ info)

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