FAQ - Wolff-Parkinson-White Syndrome
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Wolff parkinson white syndrome?

My fiance was diagnosed with Wolf parkinson white syndrome. Can anyone give me some help in understanding this? The doctor sent us home with 4 pages of information, but mostly diagrams that are a little over my head! ha ha. I understand this is a serious heart condition and I would also like to know of some people who have gone through this and what did they do? We have an option of surgery or medication. My fiance would like to have the surgery so we can "forget about this and move on." but I'm scared of the risks with medication or Surgery as well as the risks of doing nothing at all. please help, we are confused and alone! I have never heard of this before now, and I'm in the medical field!

Wolff-Parkinson-White syndrome is a disorder in which an extra electrical connection between the atria and the ventricles is present at birth. People may have episodes of a very rapid heartbeat.

Most people have palpitations, and some feel weak or short of breath. ECG can confirm diagnosis.
Episodes can be stopped by maneuvers that stimulate the vagus nerve, which slows the heart rate.
WPWhite syndrome is the most common of several disorders that involve an extra (accessory) pathway between the atria and the ventricles. The extra pathway makes fast arrhythmias more likely to occur.

WPWhite syndrome is present at birth, but the arrhythmias it causes usually become apparent during the teens or early twenties. However, arrhythmias may occur during the first year of life or not until after age 60.

Destruction of the extra conduction pathway by radiofrequency ablation (delivery of energy of a specific frequency through an electrode catheter inserted in the heart) is successful in more than 95% of people. The risk of death during the procedure is less than 1 in 1,000. Radiofrequency ablation is particularly useful for young people who might otherwise have to take antiarrhythmic drugs for a lifetime.

I would be inclined to go with your husband's wishes. It is my Nursing View that the procedure is one where the risk is very low.  (+ info)

Wolff Parkinson White Syndrome?

Are people born with it?
Im worried that I have it because I have some but not all the symptoms but my parents say I haven't got it.

People with Wolff-Parkinson-White syndrome are born with an extra connection in the heart, called an accessory pathway, that allows electrical signals to bypass the atrioventricular node and move from the atria to the ventricles faster than usual. The accessory pathway may also transmit electrical impulses abnormally from the ventricles back to the atria. This extra connection can disrupt the coordinated movement of electrical signals through the heart, leading to an abnormally fast heartbeat (tachycardia) and other arrhythmias.
Mutations in the PRKAG2 gene cause Wolff-Parkinson-White syndrome.

A small percentage of all cases of Wolff-Parkinson-White syndrome are caused by mutations in the PRKAG2 gene. Some people with these mutations also have features of hypertrophic cardiomyopathy, a form of heart disease that enlarges and weakens the heart (cardiac) muscle. The PRKAG2 gene provides instructions for making a protein that is part of an enzyme called AMP-activated protein kinase (AMPK). This enzyme helps sense and respond to energy demands within cells. It is likely involved in the development of the heart before birth, although its role in this process is unknown.

Researchers are uncertain how PRKAG2 mutations lead to the development of Wolff-Parkinson-White syndrome and related heart abnormalities. Research suggests that these mutations alter the activity of AMP-activated protein kinase in the heart, although it is unclear whether the genetic changes overactivate the enzyme or reduce its activity. Studies indicate that changes in AMP-activated protein kinase activity allow a complex sugar called glycogen to build up abnormally within cardiac muscle cells. Other studies have found that altered AMP-activated protein kinase activity is related to changes in the regulation of certain ion channels in the heart. These channels, which transport positively charged atoms (ions) into and out of cardiac muscle cells, play critical roles in maintaining the heart's normal rhythm.

In most cases, the cause of Wolff-Parkinson-White syndrome is unknown

Most cases of Wolff-Parkinson-White syndrome occur in people with no apparent family history of the condition. These cases are described as sporadic and are not inherited.

Familial Wolff-Parkinson-White syndrome accounts for only a small percentage of all cases of this condition. The familial form of the disorder typically has an autosomal dominant pattern of inheritance, which means one copy of the altered gene in each cell is sufficient to cause the condition. In most cases, a person with familial Wolff-Parkinson-White syndrome has inherited the condition from an affected parent  (+ info)

Wolff-Parkinson-White Syndrome?

I am a 41yo male who is in the Army. I live and work in Michigan but I had to go to Fort Knox last week for a routine physical. The PA doing my physical seemed quite PO'd because I had an abnormal EKG and wanted to know why. Of course I dont know why I thought that was his job to explain it to me. Anyway when I got back to Michigan I went to see my doctor who set up an appointment with a cardiologist. The cardiologist told me I had WPW syndrome and he wants me to have an echocardiogram and wear Holter monitor for 48 hours.
I often get palpatations and I seem to always be short of breath. Other than that I feel fine. I have normal BP and pulse rates. I do work 60-70 hours per week.

Do you think this is anything I need to worry about? I am going to retire from the Army in a year and I want to make sure that everything that can be done, is done before I retire. I dont want to be taking medicine for the rest of my life.


WPW is a congenital abnormality in which the normal electrical activity of the heart is short circuited. This may make it prone to the development of rapid heart beating or tachycardia. It also is important in that the EKG abnormality can mimic the pattern of a heart attack. Your doctor needs to find out if your are having attacks of rapid heart beat before he can plan if and how to treat them, There are plenty of medications but now days the problem is often cured by locating and ablating the short circuit by inserting a catheter from a leg vein up into the problem area of the heart. It is a condition that needs attention but I wouldn't lay awake at night worrying about. Wiki it at

http://en.wikipedia.org/wiki/WPW  (+ info)

I am 23 years old and I have Wolff-Parkinson-White Syndrome my heart surgery date is coming?

I am 23 years old and I have Wolff-Parkinson-White Syndrome my heart surgery date is coming up and I am scared out of my freaking mind; so my question is how many people here have gone through this surgery (cryoablation) and how did you handle the feeling of panic and any advise you might give me? How did your surgery go? Just in other words share your story

I have had this same procedure done 6 months ago.

Firstly let me tell you I haven't had an attack since.

Now for how you feel... I felt the same as you do. and it's okay to be worried, It's your heart and anything to do with the heart causes anxiety.

I went into hospital the night before, by 7AM I was being wheeled in for the procedure. I was so scared I was crying. They stripped me off and tied me to the bed, that took about 20mins.(tie you to the bed so you can't move, because they dont want you jump around while they're in your heart) then the Dr said he would start the drip and I remember feeling sleepy. That is the last thing I remember until waking up in recovery. Aparently I was semi awake the whole time but i have no memory of it. I remained in hospital overnite and then went home.

As for where they went in, It was a little tender for about 3 days. And a week after I felt so well you wouldn't have known I had anything done. I went back to work 2 weeks later, fit, well and with no more symptoms of WPW.

I wish I could tell you a easy way to face this. the best way is just to do it, it is so worth it.
Talking to a trusted freind will save you from bottling things up. Even if your repeat your fears to them over and over, that's okay...
Keep as busy as you can in the lead up before you go into hospital. But don't forget to rest too, take special care of yourself.

Try to remember... These Dr's do these procedures everyday, they're miracle workers. If something did go wrong and most likely it won't, you will be in the best hands, they will automaticly know what is needed to pull you through.

Personally I found the stress of waiting much worse than the procedure, it was all over before I knew it and the best part is, I can live again. You will soon be enjoying the same results, I'm sure of it.

Life with WPW isn't living, after this procedure you will be amazed at all of the new and wondeful things you can do.

I'm sorry for the stress you're feeling... Just don't be too hard on yourself, it's normal to feel like you do.

I hope this is soon behind you and you can relax and enjoy some good health for a change.

Best wishes  (+ info)

Does or has anyone here suffered from Wolff Parkinson White Syndrome?

It's to do with your heart, and I would love to here from anyone who has this..
I've had it and I've had an ablation done to fix it but I still suffer from palpitations.
I was wondering if anyone else had this expeirence?

no but i met a little girl who had it- she had bouts of feeling odd and feeling her heart racing (anything up to 200 bpm) but she was brilliant- she knew that when she felt it she had to get someone to call her an ambulance. It can be treated though- the part of the heart responsible for the interuption in normal heart rate can be cauterised so it is no longer active.  (+ info)

can anyone tell me about the disease Wolff Parkinson White Syndrome?

I had aurgery for wpw Wolff Parkinson White Syndrome 2 years back and i have made several ecg's and everything was normal but recently i started feeling left side pain of my chest and it goes down to my left arm and it comes twice a day and stays for about 5 to 20 minutes and its so painful, and i want to ask also does the disease wpw comes back again after the ablation surgery or not im 27 years old nowhealthy and in good shape and i work 8 hours a day..

Wolff-Parkinson-White Syndrome is a rare disorder involving irregularities in the heartbeat (cardiac arrhythmia). Patients have an extra circuit or pathway, called the Bundle of Kent, through which electrical signals are conducted to the heart, allowing excessive stimulation. Palpitations (sensation of rapid or irregular beating of the heart), weakness, and shortness of breath may occur.

I have had the exact same thing happen to me. I know it is different for everyone. 2 years to the date I had the pains too, my doc said it was nothing, basically healing pains. now i get them ever so often but only as sharp shooting pains that stop me in my tracks and knock the wind out of me.

Now 5 years since my ablation, and high stress i have PVC's (Premature Ventricular Contractions) where the bottom ventricle beats off from the top ventrical. Makes me short of breath and a pressure feeling on my chest.

My advice to you is see a doctor 1st and foremost it may be different for you. The tests they did for me were a stress-echo which deals with the "electrical" part of your heart, I also wore a heart monitor for 1 month. Both showed nothing.

If you have WPW then after 2 years you will have that rapid heart rate again (same symptoms as before) if it doesn't then you truly dont have WPW (according to my doctor) it is supraventricular tachacardia look it up webmd.com very good info on that website. http://www.webmd.com/hw/heart_disease/ps1737.asp

If you have any more questions about what else I have went through feel free to e-mail me at stefanie1506@yahoo.com  (+ info)

Is there any way to be tested specifically for Wolff Parkinson White Syndrome?

My mother was diagnosed with this a few years ago and the doctors know this but they still can't figure out what is wrong with me. I have exactly the same symtoms that she did.

here is a site for you
http://www.americanheart.org/presenter.jhtml?identifier=4785  (+ info)

what is the normal heart rate for a child age 4 with wolff parkinson white syndrome?

my child has WPW what is a 'normal' herat rate and at what rate should he be brought to hospital?

I'm not completely sure about the average, but you'll know if they need to be taken to hospital as they'll become symptomatic with it: they'll be very distressed and have a very high, irregular heartbeat.I have a similar condition and its not a case of their heart rate gradually increasing which needs to be monitored all the time, but a sudden episode of tachycardia which needs hospital treatment quickly. You'll know straight away when something's wrong.
If you're ever in doubt - take them to hospital anyway, just to be safe.
=)  (+ info)

Do you have Wolff Parkinson White syndrome- if you do can you help me?

i'm 15 and have Wolff Parkinson White Syndrome. i was diagnosed when i was 14 and was told all about it. I know i'm really young and its not effecting me now but, if you have WPWS is it effecting you now and if it is, how old are you? how does it effect you because i was told i could have an operation to have it frozen but because my extra pathway is so close to my normal pathway there's a really high chance of me ending up with a pacemaker. So please help me..

It is a disease characterized by abnormal delta wave in EKG or ECG strip .the patient suffer occasionally from attacks of supra-ventricular tachycardia (rapid abnormal rhythm)  (+ info)

Is it safe for some who has wolff-parkinson white syndrome to take birth control ?

I wouldn't recommend it til checking with your doctor first.  (+ info)

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