FAQ - Vasculitis
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Anyone out there with Leukocytoclastic Vasculitis?


I've been dealing with this condition for more than a month now. It never goes away completely, it seems like I always get petechiae on my hands and arms and back. I had just started seeing someone new two weeks before this happened. As soon as this happened we stopped having sex, and I wonder if it's okay to start again.
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Hello,

I felt compelled to respond to your posted question. I was diagnosed with leukocytoclastic vasculitis in 1996. I am very familiar with it, and the nature of the flare-ups, the many different types of vasculitis, steroidal treatments, and the fact that for me as well--it never seems to "completely go away". My understanding (I say, because I am not a physician) is that each severe flareup (and subsequent blood vessel blockage) can also cause nerve damage in that area. This can make the affected area(s) tender, even without a full-blown flare up. I also share this painful part of the condition. If you were diagnosed specifically with LCV by a physician, then I can't see where it has any relation to your sexual activity. I have not heard of that being a factor in all the years I have been dealing with my vasculitis (which initially presented itself in 1991) as a self-advocate who has researched the subject since my diagnosis was made--through blood work and multiple biopsies in 1996.

Rather than dealing with bad information and wild speculations (from what I am reading in many medical-related responses here), I strongly suggest your going to the vasculitisfoundation.org website. Vasculitis is still a rare disease, and is still largely a mystery to the vast majority of the medical community, in spite of any ego grumblings to the contrary. This foundation of medical researchers and other medical professionals is the leading vasculitis research and treatment organization--without question, and can give you suggestions for regional doctors that specifically research and treat this condition.

Additionally, the website is a wealth of information on the various types of vasculitis, symptoms, and support information. I highly recommend it. I know that this can help you. I hope this assists in giving you some degree of comfort, through information and support.  (+ info)

Is there LCV leuoko cystoclastic vasculitis diagnosis center?


I have LCV leuoko cystoclastic vasculitis for which it was diagnosed as idiopathic... Is there any good specielist centre to give second opinion and further evaluation
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try googling and www.webmd.com  (+ info)

difference between stromal punctate keratitic , iritis and pan uveritis with paripheral retinal vasculitis?


i was having a a slight complaint in my right eye of some cotton ball vision so i consulted three doctor for the same all the three doctor gave me three reasons (1) stromal punctate keratitic (2) iritis (3) pan uveritis with paripheral retinal vasculitis....please if anyone can tell me the difference and who can i relieve on?
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stromal punctate keratitis means inflammatory deposits and reaction in the stroma of the cornea ,its a sign of uveitis .iritis is inflammation in the iris (color diaphragm of the eye)pan uveitis is inflammation in the all uveal tissue and choroid ,perpheral retinal vasculitis means inflammation in peripheral retinal tissue ,from what u say all doctors diagnosed u correctly ,its mostly tuberculosis or connective tissue disease,behcets ,and the list is long,treatment needs mydriatics to prevent synechiae,steroids ,or immune modifiying drugs and treating underlying pathology ,,,  (+ info)

How do you cure vasculitis?


Someone close to me has vasculitis and i am wondering how serious it is and i would also just like to hear more about it if any of you could explain it to me.
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Vasculitis is a general term that refers to inflammation of blood vessels. Vasculitis can affect very small blood vessels (capillaries), medium-size blood vessels (arterioles and venules), or large blood vessels (arteries and veins). If blood flow in a vessel with vasculitis is reduced or stopped, the tissues that receive blood from that vessel begin to die.

Some of the many forms of vasculitis may be restricted to particular organs. Examples include vasculitis that affects only the skin, eye, brain, or certain internal organs. There are also types of vasculitis that may affect many organ systems at the same time. Some of these generalized forms may be quite mild and may not require treatment. Others may be severe, affecting critical organs.

What Causes Vasculitis?
In most cases, the cause of vasculitis is unknown; however it is clear that the immune system (the system that keeps the body healthy) plays a role. While the immune system usually works to protect the body, it can sometimes become overactive, attacking parts of the body. Sometimes an allergic reaction to certain medicines can trigger the immune system to go awry. In other cases, the origins may be traced to recent or ongoing infections, such as those caused by certain viruses. Vasculitis also may be related to other diseases of the immune system that the person has had for months or years. For example, it could be a complication of rheumatoid arthritis, lupus or Sjogren's syndrome.

How Serious Is Vasculitis?
Vasculitis can be very serious. In an extreme situation, when a segment of a blood vessel becomes weakened, it may then stretch and bulge (called an aneurysm). The wall of the blood vessel can become so weak that it ruptures and bleeds, possibly causing death. Fortunately, this is a very rare event.

If a blood vessel becomes inflamed and narrowed, the blood supply to the area of the body it serves may be partially or completely blocked. If alternate blood vessels (called collateral blood vessels) are not available in sufficient quantity to carry the blood to such sites, the tissue supplied by the affected vessels will die. Because vasculitis can occur in any part of the body, any tissue or organ can be affected.

Is there any treatment?
Treatment for vasculitis depends on the severity of the disorder and the individual's general health. Treatment may include cortisone or cytotoxic drugs. Other treatments may include plasmapheresis (the removal and reinfusion of blood plasma), intravenous gammaglobulin, and cyclosporin. Some cases of vasculitis may not require treatment. Treatment for temporal arteritis and its associated symptoms generally includes corticosteroid therapy. Early detection of temporal arteritis and immediate treatment are essential to prevent vision loss.

What is the prognosis?
The prognosis for individuals with vasculitis varies depending on the severity of the disorder. Mild cases of vasculitis are generally not life-threatening, while severe cases (involving major organ systems) may be permanently disabling or fatal.

The prognosis for individuals with temporal arteritis is generally good. With treatment, most individuals achieve complete remission, however vision loss may be irreversible.


Click the below links for more information.
http://www.webmd.com/pain-management/vasculitis-cause
http://www.webmd.com/pain-management/vasculitis

Hope this helps and good luck  (+ info)

is it possible that a previous p.e can produce vasculitis?


I wonder if I have vasculitis, and would it possibly be caused by blood clots(dead blood) having to be cleared from my system on such a large scale?that the immune system now sees dead blood as hostile, so causes inflammation of arteries ect, when small deposits come in contact with the artery walls? My previous P.E gave me a whole lattice of blood clots over my lungs. So caused a lot of extensive damage.
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yes it is possible  (+ info)

I have been dignoised with vasculitis how do i deal with the pain to keep working?


For a month I have had horrible pain in my right foot up to my hip.After 3
dr. a trip to the ER gave me dign. I have blood blisters on my toes .Is this disease fatal
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I will attempt to explain in as comprehensive and understandable way as possible. Vasculitis is serious disorder, but for many patients, Vasculitis, especially if confined to the skin, may be annoying but not life-threatening. Vasculitis can cause many different symptoms, depending upon what tissues are involved and the severity of the tissue damage, but pain is often involved in Vasculitis. Anti-inflammatory supplements that may also help with pain are among the more important supplements to consider taking, such as Grape Seed Extract which also supports the vascular system and Cox2 inhibitors and enzymes. For the vast majority of people with Vasculitis, treatment is very effective. The Vasculitis may disappear only to reoccur later and require treatment. Because Vasculitis is caused in part by an overly active immune system, the treatment usually involves the use of medications that suppress parts of the immune system. Methotrexate MTX needs to be prescribed when a disease needs to be controlled. Methotrexate (MTX) is used to treat forms of Vasculitis. Methotrexate (MTX) decreases the needs for steroids. MTX is a serious medicine we use to treat vasculitis. Without it, many forms of vasculitis would cause longer courses of illness and greater damage. But the effectiveness of MTX has certain trade-offs these relate to its possible side-effects, so talk to your doctor because careful management by experienced doctor of medicine is a must.

Dima
PGY-1  (+ info)

Anybody out there have vasculitis of any kind? what type of treatment have you received?


Just curious how many people have this uncommon disease and what treatment you have received or are receiving? Have you managed to get it into remission at any point? Did it return? I have leukocytoclastic vasculitis only involving the skin but interested in anyone's response with any kind of vasculitis. Did they ever figure out what caused it? Any and all info someone has will be appreciated. Thanks
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I have vasculitis for the past 2-3 years. I think I got an allergic reaction to a medication I was taking. I just woke up one morning and started limping. I went to my doctor and had blood work done and basically it showed lots of imflamation. I went to a RH Specialist and had a MRI and he also sent me to a Neurologist. Basically I was put on Predisone. I still had symptoms even though my inflamation was controlled. I stopped seeing him because he wanted to put me on lots of muscle relaxers and I still had pain but nothing like what I had in the beginning. I can't walk up stairs because it flares up the inflamation in my legs. I also have it in my arms.  (+ info)

what is the difference between vasculitis disease and peripheral artery disease?


  (+ info)

Can Rheumatoid Vasculitis affect breast tissue?


I know that RV can affect your organs and limbs, but I'm not sure about breasts.
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Yes it can.  (+ info)

Can you have gastric bypass when you have systemic vasculitis (Churg Strauss Syndrome)?


I am on prednisone @ 20mg bid and cytoxan @ 500 mg bid, but am otherwise stable. I have not had a flareup of the vasculitis within the last year (finally).
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I would think it would be fine as your looking at 2 completely different systems being effected. Regardless the best person to ask is a surgeon that specializes in bariatrics and since most provide free consultations it really shouldn't be hard to sit down with one and have all your questions answered you might even be able to do it all online if you have problems getting around.  (+ info)

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