FAQ - Spondylitis, Ankylosing
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My father has been diagnosed with Ankylosing Spondylitis.?


Immedialtely after diagnosis he was prescribed corticosteroids such as Methylprednisolone and after some time he was put on Remicade Therapy (two shots given). I have come across information regarding Seatone, which claims to be very promising supplement. I would like to know is there any interference of Seatone with Remicade if given paralllely. Has anyone taken remicade and Seatone simultaneously. I would also like to know regadign uses of fish oil in treating such conditions.
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I greatly admire your quick response to your father's condition and reading up on it and trying to help him. There are no reactions regarding remicade and seatone, however, seatone has been tested in RA (rheumatoid arthritis) which is very very closely related to A.S. and shown to be ineffective--you will be wasting your precious money. There are other publications on it, but they are mostly looking at osteoarthritis not rheumatoid, and osteoarthritis does not operate by a similar mechanism to A.S.
http://www.ncbi.nlm.nih.gov/pubmed/3883918

On the other hand, a small scandinavian study suggests that taking 4.5 g of omega 3 a day (fish oil here we come!) might reduce Ankylosing Spondylitis activity.
http://www.ncbi.nlm.nih.gov/pubmed/17062435
However, the study was very small, and it is important to remember that these diseases are genetic, so when you have a small study, what works in Scandinavia often doesn't work if you aren't of Scandinavian origins.

If your dad takes either Seatone or Omega 3, I suggest he starts doing it after he has been on Remicade for a while and then he can check his ESR (erythrocyte sedimentation rate). If he both does not feel better and his ESR doesn't decrease, he can stop the supplement. If he feels better--placebo response or not, who really cares?! If he starts it at the same time as the Remicade, he should take a little break from it later on just to see if his ESR goes up.

Good Luck.
  (+ info)

Anyone has or know someone that has "Ankylosing spondylitis" & "HLA-B27 in the blood?


I am lookin to see what is in my future as a 43 yr old that has this. Alot of ppl have it & don't even know BUT alot of lower back pain is the key to seeing a doctor
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Ankylosing spondylitis is a type of arthritis that mainly affects your spine, especially your lower back, but can also affect your joints. It occurs because inflammation of your joints causes bone to be worn away and your body then attempts to repair this damage. This can lead to stiffness and reduced movement as some of the bones of the spine may fuse together.  (+ info)

Can a person get Disabilty for Ankylosing Spondylitis?


Yes. But you would need your doctor to back you up on the forms.  (+ info)

Ankylosing Spondylitis with Osteoporosis?


I am 30 years old male infected by both Ankylosing Spondylitis and Osteoporosis. My doctor say this is very uncommo to have both at the same time. I need help. Anyone do come accoss this uncommon situation.
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I am an A.S. patient, and I know of a few others. In my particular experience and in my reading about the ailment, I have not really encountered discussions of AS and osteoporosis.

But apparently it is not uncommon - a study indicates that anywhere from 20-60% of AS patients suffer:
http://www.spondylitis.org/press/news/018.aspx?PgSrch=osteoporosis

This is news to me, so I thank you for asking this question. After suffering from AS for over 20 years I have learned something here.

I am not sure if I trust this source, but this doctor indicates there are studies that show that medications for osteoporosis are beneficial to AS patients.
http://www.drmirkin.com/joints/J103.htm

This is one of the best sites for resource material on AS. It is where I found my first link. Spend time on this site, and search for the osteoporosis references on it. I will be doing the same.
http://www.spondylitis.org/main.aspx

Good luck with it.

TJ

Addendum:
You want to make sure you see a specialist as well - a rheumatologist with experience treating A.S. Accept no substitute, at least until you have the disease under control.  (+ info)

Is there a cure for ankylosing spondylitis?


There is no cure for ankylosing spondylitis but there are things you can do to lessen your pain and maintain your movement and function.


Here is a link with LOTS of info.  (+ info)

Does anyone have good, first hand experience of the usefulness of anti tnf treatment in ankylosing spondylitis


Any anecdotal evidence welcomed. Basically, does it actually work!
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Please see the webpages for more details on Ankylosing spondylitis and anti-TNF therapy..  (+ info)

How can anybody help me out for ANKYLOSING SPONDYLITIS. Is there any perfect treatment in proper manner? pls s?


ANKYLOSING SPONDYLITIS
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Well, there is no such thing as perfect treatment, but typically doctors treat anklosing spondylitis (AS) with a biologic drug such as Enbrel. A biologic drug is a drug that helps suppress your immune system. This aids in preventing your body from attacking your joints which is the main concern with AS. The problem with the biologic drugs is while suppressing your immune system, this makes your body more vulnerable to getting sick with the flu and the common cold. In addition to a biologic drug, doctors also give you a anti-inflammatory drug such as Naproxen to help with the inflammation and help ease the pain. If the pain is still too much to endure, a doctor may give you percription pain meds such as Oxycotton or Ultram. AS is a serious desease and should be taken care of properly. If left untreated your back can fuse leading to life long disability, so please see a rheumatologist and get the help you need.  (+ info)

Ankylosing Spondylitis and abdominal pain?


i got AS for almost 1 year...i got abdomen pain on lower right side, does it have to do with AS? maybe it's ulcerative colitis or crohn's disease?
or maybe Irritable bowel syndrome?
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It is very unlikely that ankylosing spondylitis is causing the pain.
There are so many possibilities and there is so little information in your post that it's qhicker to give tou the link,,,
http://www.abdopain.com/lower-right-abdominal-pain.html

You should see your doctor for a proper diagnosis, it's too easy to get it wrong by guessing.  (+ info)

sample of soap notes in ankylosing spondylitis in physical therapy?


S: Patient is a 22 y/o M, self referral, c c/c of symmetrical low back and posterior pelvic pain which has gotten progressively worse over the past several months with an insidious onset. Pain behavior: constant and ranges from 3-8/10 on the NPS. The pain is worse in the AM and is met with profound, persistent stiffness and difficulty bending over. He reports after the first few hours, the pain is much less and he generally feels better with exercise and feels more flexible as well. However, symptoms and stiffness always return in the AM. PMH: non contributory. Imaging: none. Medical testing: positive ESR, pending HLA-B27. Patient hobbies: cycling. Occupation: customer service agent, prolonged sitting. Patient goals: learn how to manage his pain.
O: Posture: slouched with forward head, correction feels somewhat better.
AROM: Major loss of flexion. Minor loss of extension, rotation and bilateral sidegliding.
Neurological screen: sensation is intact to lt touch and sharp/dull discrimination. DTRs of the LEs are 2+ B. SLR is negative.
MMT: 5/5 B LEs in major myotomes.
MM length: restricted hamstrings, moderately and B.
A: Patient is a 22y/o M with constant LBP with persistent AM stiffness. He is currently undergoing further medical testing from his physician and his presentation is suggestive of non-mechanical presentation.
P: Refer back to PCP prior to resuming PT.


...something I just made up, but certainly consistent with an AS history.  (+ info)

What is ankylosing spondylitis? And what are the symptoms?


FORGET THE DICTIONARY definition

In simple terms its an inflamatory disease which can affect
some or all your joints at different times, and it can also cause eye problems such as iritis. Also fatigue is a common ailment. Blood tests will determine whether you are likely to have it, HLA B27 is a number you may be familiar with.

The feelings are of stiffness and pain in joints, the dictionary definition will waffle on about it eventually fusing the spine together, this can happen but .............

Heres the good bit. I've had it for 25 years and apart from a number of flair ups I've been able to live with it without too much discomfort. Eye problems have been the main issue with me & fatigue. Doctors will prescribe anti inflamatory drugs to help with the pain when it is particularly bad. not everyone will end up walking around with a hunched back so if you are a sufferer don't feel too down, keep your chin up as they say.

Please be aware I also have Sarcoidosis which has some very similar symptoms therefore it is difficult to determine whether the eye & fatigue problems are being caused by AS or Sarcoidosis or BOTH.

Hope that helps you :-)  (+ info)

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