Does retinoblastoma show up in every photo?...?
or a lot of photo's, or is it possible for it to show up in only one photo or no photo's at all? Is it unusual to have a normal looking eye and no physical signs?
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It tends to show up in most photos. You will notice a difference in the pupil reflexes between the two eyes.
Retinoblastoma is a very aggressive ocular tumor that affects children. If there is any concern then you need to consult and optician or eye doctor immediately. The nature of this tumour means that it grows very quickly in the eyes and can spread if left undetected (
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My Son Has Retinoblastoma!?
i need advice on retinoblastoma, my 2 month old son has been diagnosed with retinoblastoma, im still in shock and now waiting to hear from the hospital in london where hez radiotherapy is gonna start but i would like as much info as possible from people who have gone through similar situation and really want to know if hez gonna be ok, thanks
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hi, i am so sorry to hear! i was diognosed with retinoblastoma when i was 8 weeks old and i am now 13. i unfortunately had to have 1 eye removed(so now i have a prosthetic eye) and with my other eye i had cryotherapy. he will have a different treatment plan to me so its hard to compare but hopefilly he can keep full vision. if it is bilateroll all his kids will get the cancer to which is something to think about. i hope evrything works out ok x (
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Can children with Retinoblastoma still see??
retinblastoma-cancer of the eye found in kids under the age of 5
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I know one little girl with retinoblastoma (still in remission, touch wood).
It depends where the tumor is placed on the retina. In her case, she has good vision in one eye, and much less in the other, because the tumor is dead center in that eye. But yes, she does see well enough, anyway she is able to do alpine skiing. (
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retinoblastoma? flash on camera?
We have a mobile phone with a really good flash and the other night we were taking pictures of our tot with the flash in a dark room. We took about 50 pictures.
On about 5 of them one or both eyes were white.Not always the same eye. About 15 had red eye,the rest she either wasnt in direct focus with the phone or the eyes were blue.
I understand that the white eye can signify a tumour in children but she was tested by a ophthalmologist with dilated pupils a few days ago and it was fine. I have already asked this question but was hoping for anyone to tell me if a really bright flash can cause this - or shouldut was a truly be concerned?
Also would an ophthalmologist really be able to tell? This sounds stupid but she turned the lights off and used the dilation drops and used one of those things on her head to look all around the eye, she said she was happy.
Also, would the eyes show as red in between the white ones if she has retinoblastoma?
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A dilated exam using a binocular indirect ophthalmoscope (that's what the doctor had on her head) would be able to find ANY and ALL retinoblastoma present. I think you can relax and feel VERY confident that the child does not have retinoblastoma. (
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Do i have retinoblastoma?
Well recently i noticed on one of my facebook photos that innit one of my eyes was shining a sort of silver/white colour obviously somehow caused by the flash of the camera. After some Research it struck me that i may have this cancer named 'retinoblastoma' as the symptoms sounded similar, however their were a number of things which troubled me, firstly this is the one and only time my eye has reacted this way to a flash photo being taken so it could be a fluke, and also statistically retinoblastoma occurs over 90% of the time in children between 0 and 5 years old, and im now 18, can anyone shed any light on this please and advice me whether i should visit a GP or eye specialist etc
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At your age, the chances of it being retinoblastoma is near to zero. Retinoblastoma is a very aggressive childhood tumor. If this has just occurred in one picture, then it is just down to lighting illusions. There are other far more common causes of this appearance. It can even be something as simple as an uncorrected prescription in that eye.
Best to go to see an optician to have your eyes examined, just to put your mind at rest (
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Retinoblastoma... Can the pupil reflect white and still be normal?
my son has a few pictures like this that my brother pointed out being a symptom of retinoblastoma...I can't go see a doc til tomorrow but any info or just anything
heres a pic
http://i5.photobucket.com/albums/y159/FlapaliciousGoon/n660813987_844971_555.jpg
not all are like this ...acutally some pics both eyes reflect red or they just look normal but a few the left eye only is that whitish glow...None are very strong all about that strength
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It could be something else besides retinoblastoma, like a cataract. I don't want to worry you but it could be something serious. I'm glad you're seeing someone tomorrow. I hope you're seeing a pediatric ophthalmologist (a medical doctor), rather than an optometrist. If you have trouble getting in with a pediatric ophthalmologist, please call your primary doctor or nurse. The link below has a listing of pediatric ophthalmologists across the country. (
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worried about retinoblastoma?
my 8 month old son had an eye exam with an ophthalmologist last month as part of an early intervention program to detect eye problems. they dilated his pupils and everything and said everything was fine. they told me if i ever took a picture of my son and one eye glowed white to call them. all of his pictures were perfectly fine, though. yesterday, however, we took one where his left eye looks like it is glowing white. i am absolutely scared to death now, but will be calling the doctor monday. until then, though, i'm just wondering if the white from retinoblastoma would be showing up in every picture or will it just show up here and there? i've taken several pics since yesterday to see if anymore did that and they are all fine. also, if nothing was seen a month ago would it still be possible that something has popped up this quick to cause it? the picture was taken in a somewhat dark room and he was in his pack and play so there is a mesh screen between him and the camera. could that have mattered in anything? i took some pictures of him today in a somewhat darkened room even (not as dark as it was yesterday, though) and it still didn't do it again.
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Generally this appearance tends to show up in most pictures, so it is very reassuring to know that the same has not occurred since that first picture. It could just be a one off and mean nothing at all. There are lots of other causes of this appearance as well. But you are doing the right thing by getting him looked over on Monday.
In the meantime, try to relax and not worry too much (although I completely understand that this is easier said than done, especially when it comes to the health of your children)
All the very best (
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does anyone knowof a program that can help low income child in mexico come to the US to get medical attention?
he has been through many tests and studies but doctors(in mexico) dont know exactly what it is. so far they think he has retinoblastoma. i tried contacting SHRINERS hospital but they don't do eye conditions any help.?
his eye is now affecting his brain.
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Just have him illegally immigrate and then get a US citizen social security number from one of the anchor babies that other illegal immigrants have had. Once he has that then he gets free medical care. The hospitals cannot ask his parents if they are illegal aliens as long as he is a US citizen. (
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Does this look like retinoblastoma?
I know a lot of people have never heard of this, and this is my main concern. I was looking at my friend's pictures of his son, and I noticed this, and it scares me. He probably has no clue it even exists, and I was wondering if I should be worried and tell him, just so he can catch it early if it is. I'm sure I'll end up telling him anyway, but I am just looking for opinions.
(retinoblastoma is like a tumor behind the eye, not exactly sure, but I know it's dangerous, and it can be caught with photos, if you get a red eye reflection, one eye would be red, and the other would look white-ish.)
http://c2.ac-images.myspacecdn.com/images02/140/l_dc580acd7deb43c1ab7e8ebe08fcdd19.jpg
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It could be - but it could also just be the angle of the picture.
It's definitely worth mentioning to your friend and having a look at some other pictures - if in some pictures both eyes are red - or they are the other way round - then that is fine. If it's consistently the same eye with a white reflex then that is very suspicious.
Certainly no harm in the child having an eye examination too - that would tell you if there is something going on. (
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Im 20 yr's old and was wondering how retinoblastoma effects my brain and other things?
i had retinoblastoma when i was two (eye cancer usually in babies) i had my left eye taken out and now have a glass eye..i've been studying psychology lately in college about the left and right brain so i was wondering since i dont have a left eye how this would effect me and whatnot? i honestly think im fairly smart but i get pretty frustrated and bad headaches very easily..and im distracted VERY easily..doing school work in class is so hard for me to stay on task, im now 20 yrs old, thanks
(my vision in my right eye is perfect other than ocular migranes or 2 much white gel in my eye,,,,or hopefully one of those things, ive been having gray floaters / lines in my vision lately) but i was mainly curious about how it effects my brain
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These articles might be helpful.
Health Qual Life Outcomes. 2007 Dec 3;5:65. Links
Health-related quality of life of child and adolescent retinoblastoma survivors in the Netherlands.van Dijk J, Huisman J, Moll AC, Schouten-van Meeteren AY, Bezemer PD, Ringens PJ, Cohen-Kettenis PT, Imhof SM.
Department of Medical Psychology, VU University Medical Center Amsterdam, the Netherlands.
[email protected]
BACKGROUND: To assess health-related quality of life (HRQoL) in children (8-11 years) and adolescents (12-18 years) who survived retinoblastoma (RB), by means of the KIDSCREEN self-report questionnaire and the proxy-report version. METHODS: This population-based cross-sectional study (participation rate 70%) involved 65 RB survivors (8-18 years) and their parents. Child/adolescents' and parents' perception of their youth's HRQoL was assessed using the KIDSCREEN, and the results were compared with Dutch reference data. Relations with gender, age, marital status of the parents, and visual acuity were analyzed. RESULTS: RB survivors reported better HRQoL than did the Dutch reference group on the dimensions "moods and emotions" and "autonomy". Increased ratings of HRQoL in RB survivors were mainly seen in perceptions of the younger children and adolescent girls. RB survivors with normal visual acuity scored higher on "physical well-being" than visually impaired survivors. Age was negatively associated with the dimensions "psychological well-being", "self-perception" (according to the child and parent reports) and "parent relations and home life" (according to the child). "Self-perception" was also negatively associated with visual acuity (according to the child). Only parents of young boys surviving RB reported lower on "autonomy" than the reference group, and parents of low visual acuity and blind RB survivors reported higher on "autonomy" than parents of visually unimpaired survivors. Survivors' perceptions and parents' perceptions correlated poorly on all HRQoL dimensions. CONCLUSION: RB survivors reported a very good HRQoL compared with the Dutch reference group. The perceptions related to HRQoL differ substantially between parents and their children, i.e. parents judge the HRQoL of their child to be relatively poorer. Although the results are reassuring, additional factors of HRQoL that may have more specific relevance, such as psychological factors or coping skills, should be explored.
PMID: 18053178
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Health Qual Life Outcomes. 2007 Jun 4;5:30. Links
Quality of life of adult retinoblastoma survivors in the Netherlands.van Dijk J, Imhof SM, Moll AC, Ringens PJ, Cohen-Kettenis PT, Rijmen F, Huisman J.
Department of Medical Psychology, VU University Medical Center Amsterdam, The Netherlands.
[email protected]
BACKGROUND: To assess the quality of life (QoL) and predictors thereof in Dutch adult hereditary and non-hereditary retinoblastoma (RB) survivors. METHODS: In this population-based cross-sectional study, a generic QoL questionnaire (SF-36) and a disease-specific interview were administered to 87 adult RB survivors aged 18 to 35 years. Their QoL data were compared with those of a Dutch healthy reference group. Among the RB hereditary/non-hereditary survivors, the QoL was compared and predictors for QoL were identified by linear multiple regression analyses. RESULTS: As a group, RB survivors scored significantly lower than the reference group on the SF-36 subscale 'mental health' (t = -27, df = 86, p < 0.01). Hereditary RB survivors scored lower on the subscale 'general health' (t = 2.6, df = 85, p < 0.01) than non-hereditary RB survivors. Having experienced bullying, as a child was a predictor for the SF-36 subscales: 'physical functioning' (p < 0.05), 'role functioning physical' (p < 0.01), 'role functioning emotional' (p < 0.05) and 'social functioning' (p < 0.01). Having experienced bullying (p < 0.01), but also subjective experience of impairment related to RB (p < 0.05), was predictors for 'general health'. Subjective experience of impairment was a predictor for 'vitality' (p < 0.01) and 'bodily pain' (p < 0.01). CONCLUSION: In this exploratory study, it appears that the group of adult RB survivors experience a relatively good overall but slightly decreased QoL compared with the reference group. However, they report more problems with regard to their mental health (anxiety, feelings of depression, and loss of control). Hereditary RB survivors differ significantly from non-hereditary RB survivors only in 'general health'. Bullying in childhood and subjective experience of impairment are the main predictors of a worse QoL. In order to prevent worsening of QoL, or perhaps to improve it, clinicians should make an inventory of these issues at an early stage. We recommend further research to assess the specific psychological factors that may lead to mental health problems in this population.
PMID: 17547767
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This is not part of the answer to your question and I certainly do not mean to frighten you but you also always need to be aware of the potential for you to develop secondary malignancies due to your previous cancer treatments. If anything feels odd to you about your health then see your Dr and make sure it is nothing serious.
major congrads on being a survivor (
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