FAQ - Polymyalgia rheumatica
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what is polymyalgia rheumatica?


two weeks a go i had a pueumococcal shot now for the last 6 days ihave bad pain in my lags and a am seeing a doctor thay do not now what is wrong can any help
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Was their a underlying health reason for having this Pnuemococcal shot or are they just giving it anyway these days? Usually it is reserved for certain categories of people.  (+ info)

Polymyalgia Rheumatica, what kind of arthritis is this?? ?


what are the effects of this???is it permanent?
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Here's a patient fact sheet. Take a look at it.

http://www.rheumatology.org/public/factsheets/pmr_new2.asp  (+ info)

Polymyalgia Rheumatica (PMR)?


My Mum is suffering terribly from this and can barely move. Its breaking my heart.

She has been on Prednisolone for two weeks now with no improvement. All the doctor seems to do is take blood tests.

Any advice at all particularly from fellow sufferers would be very much appreciated.....
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Probably doing blood tests because probably prescribing steroids which can lead to high blood sugar and a whole new lot of complications. Search for herbal remedies for this condition. I will have look see and come back if I find any.

Have found the following info:-

At first, you will need prednisone for the relief it offers. You also might try aerobic exercise, which a friend affected with this condition has told me makes a big difference. I also recommend whole licorice for treatment of inflammatory disorders. You can find whole licorice as a root or extract. Look for products with six to 10 percent glycyrrhizin and follow the dosage direction on the package. Since whole licorice can worsen high blood pressure, check with your doctor before taking it if your pressure is high. Licorice root capsules can be used in the amount of 5-6 g per day. Concentrated extracts can be used in the amount of 250-500 mg three times per day. This approach may enable you to lower her prednisone dose. In addition, you should try to maintain an anti-inflammatory diet. I also recommend using the herbal anti-inflammatory agent Zyflamend from New Chapter. Chinese medicine and mind/body techniques such as hypnotherapy and guided imagery can also help; visit the Mind/Body/Spirit section on this site for more information on these and other techniques.

Domino38712.8353935185
Also from Dr. Weil's website......

Anti - Inflamatory Diet

I can recommend an anti-inflammatory diet as well as natural remedies that may help ease your pain and stiffness. As you may know, inflammation is regulated by a group of hormones known as prostaglandins. Some of these hormones intensify the inflammatory response while others reduce it. You can affect this system by the kinds of fats you eat since the body makes prostaglandins from fatty acids. You may have to wait six to eight weeks to notice the results of the dietary changes outlined below, but they will occur.

Conventional medicine treats autoimmune diseases including rheumatoid arthritis with steroids and other immunosuppressive medications, most of which are toxic when used long-term. Patients dependent on these strong drugs are less likely to respond to natural treatments, which can moderate autoimmunity and help control symptoms. Here are my recommendations to consider the following natural remedies:


Taking a capsule of Zyflamend twice a day. This anti-inflammatory made by New Chapter, Inc. combines ginger and turmeric with other useful herbs.
Taking 500 mg of citrus bioflavonoids or other flavonoids, such as quercetin, anthocyanidins, or proanthocyanidins three times a day.
Follow a low-protein, high-carbohydrate diet; minimize consumption of foods of animal origin.
Eliminate milk and milk products including commercial foods made with milk.
Avoid polyunsaturated vegetable oils, and sources of trans-fatty acids margarine, vegetable shortening and products made with partially hydrogenated oils of any kind.These fats encourage the synthesis of pro-inflammatory prostaglandins.
Increase your intake of omega-3 fatty acids - eat more cold water fish - salmon, sardines, walnuts or freshly ground flaxseeds or oil and soy foods. Consider taking a fish oil supplement to help keep your protein intake low. Instead of polyunsaturated oils, rely on olive oil. The omega-3s increase production of inhibitory prostaglandins. [NOTE: For those who are allergic to fish or don't like the taste of it, I recommend taking a fish oil supplement with DHA and EPA.)
Make sure your diet includes plenty of fresh fruits and vegetables. Emphasize those known for their high anti-oxidant content - for instance, a half cup of blueberries packs as much antioxidant power as five servings of peas, carrots, apples, squash, or broccoli.
Eliminate or reduce intake of coffee and tobacco - both have been linked to an increased risk for rheumatoid arthritis.
Get regular aerobic exercise (swimming is best for those with rheumatoid arthritis).
Practice relaxation techniques. In addition, visualization can help moderate autoimmune responses, and psychotherapy can help alter emotional states that keep the immune system off balance.
Try hypnotherapy or guided imagery. Look for a therapist willing to take on an autoimmune disease. Meditation and yoga can help, too.
Avoid health care practitioners who make you feel pessimistic about your condition.
Take aspirin and other over-the-counter anti-inflammatory drugs to help relieve symptoms.
In addition to these dietary changes, I would recommend adding the anti-inflammatory herbs - ginger to your diet by eating it in various forms as well as using turmeric as a spice. I recommend Zyflamend, made by New Chapter Company, which includes both. You can safely take these herbs indefinitely  (+ info)

Has anyone had Polymyalgia Rheumatica?


I started with this disease a few days after Breast Cancer surgery. I am so tired of this aggravating pain. I've heard it lasts 12 to 18 months
or longer. I'm wondering how other people handle it.
My Doctor misdiagnosed it for 2 mos. When it got so I couldn't get out of a chair & had a fever, My husband took me to Urgent Care where I was given a shot of Prednisone. They said Google PR & see if the description fit. It did.
Then another Dr. sent me to a Rheumatologist. He started me with 30 mg. Prednisone last May, I'm on 7 now but the pain never really goes away. I'm allergic to NSAID's. I have a new Primary Dr. From what I found on Google, it rarely affects under 50 yrs old.
There seems to be no sign of Giant Cell Arteritis except I have headaches. Drs. believe it's muscles. Oncologist couldn't do chemo for me because it would affect bones & muscles too much. I had radiation, it was a nightmare, but I survived. Having a little bout with a foggy brain. Have freequent neck, back, hip, foot & joint pains. I'm taking tylenol & tramadol, helps some.
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I'm very sorry to hear about your breast cancer. I hope the surgery went well, aside from the pains and issues related to the PR diagnosis?

I was diagnosed with this a year and a half ago, but I think it was not a legit diagnosis for me. (I'm in my 30s). Are you also having an issue with the enlarged vein in your temples? (giant cell arteritis) Did a Neurologist diagnose you with this condition? (Are they certain that is what you have?)  (+ info)

What is the difference between fibromyalgia and polymyagia rheumatica?


I've searched the web, but can't seem to find what I'm looking for. I didn't think they were the same thing, but having a hard time differentiating between the two.
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What Is Fibromyalgia?

Fibromyalgia is a disorder that causes muscle pain and fatigue (feeling tired). People with fibromyalgia have "tender points" on the body. Tender points are specific places on the neck, shoulders, back, hips, arms, and legs. These points hurt when pressure is put on them.

People with fibromyalgia may also have other symptoms, such as:

Trouble sleeping
Morning stiffness
Headaches
Painful menstrual periods
Tingling or numbness in hands and feet
Problems with thinking and memory (sometimes called "fibro fog").


What Causes Fibromyalgia?

The causes of fibromyalgia are unknown. There may be a number of factors involved. Fibromyalgia has been linked to:

Stressful or traumatic events, such as car accidents
Repetitive injuries
Illness
Certain diseases.
Fibromyalgia can also occur on its own.

Some scientists think that a gene or genes might be involved in fibromyalgia. The genes could make a person react strongly to things that other people would not find painful.

Who Is Affected by Fibromyalgia?

Fibromyalgia affects as many as 1 in 50 Americans. Most people with fibromyalgia are women. However, men and children also can have the disorder. Most people are diagnosed during middle age.

People with certain other diseases may be more likely to have fibromyalgia. These diseases include:

Rheumatoid arthritis
Systemic lupus erythematosus (commonly called lupus)
Ankylosing spondylitis (spinal arthritis).
Women who have a family member with fibromyalgia may be more likely to have fibromyalgia themselves.

How Is Fibromyalgia Treated?

Fibromyalgia can be hard to treat. It's important to find a doctor who is familiar with the disorder and its treatment. Many family physicians, general internists, or rheumatologists can treat fibromyalgia. Rheumatologists are doctors who specialize in arthritis and other conditions that affect the joints or soft tissues.

Fibromyalgia treatment often requires a team approach. The team may include your doctor, a physical therapist, and possibly other health care providers. A pain or rheumatology clinic can be a good place to get treatment.

The U.S. Food and Drug Administration (FDA) has not yet approved any medicines to treat fibromyalgia. Doctors treat fibromyalgia with medicines approved for other purposes. Pain medicines and antidepressants are often used in treatment.

What Can I Do to Try to Feel Better?

There are many things you can do to feel better, including:

Taking medicines as prescribed
Getting enough sleep
Exercising
Eating well
Making work changes if necessary.


What Research Is Being Done on Fibromyalgia?

The NIAMS sponsors research to help understand fibromyalgia and find better ways to diagnose, treat, and prevent it. Researchers are studying:

Why people with fibromyalgia have increased sensitivity to pain
The role of stress hormones in the body
Medicines and behavioral treatments
Whether there is a gene or genes that make a person more likely to have fibromyalgia.


For More Information on Fibromyalgia and Other Related Conditions:

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892–3675
Phone: 301–495–4484 or 877–22–NIAMS (226–4267) (free of charge)
TTY: 301–565–2966
Fax: 301–718–6366
E-mail: [email protected]
www.niams.nih.gov


Polymyalgia rheumatica

ARTICLE SECTIONS

Introduction
Signs and symptoms
Causes
Risk factors
When to seek medical advice
Screening and diagnosis
Complications
Treatment
Self-care

Introduction
Like most people, you've probably experienced stiff and sore muscles occasionally — maybe after a strenuous hike or a weekend of yardwork. Now imagine feeling that way all of the time. That's what it's like to live with polymyalgia rheumatica (PMR), an inflammatory disorder that causes widespread muscle aching and stiffness, primarily in your neck, shoulders, upper arms, thighs and hips.

Although some people develop these symptoms gradually, polymyalgia rheumatica can literally appear overnight. People with polymyalgia rheumatica may go to bed feeling fine, only to awaken with stiffness and pain the next morning.

Just what triggers polymyalgia rheumatica isn't known, but the cause may be a problem with the immune system, perhaps involving both genetic and environmental factors. Aging also appears to play a role — polymyalgia rheumatica almost always develops in people age 50 and older.

Polymyalgia rheumatica usually goes away on its own in a year or two — often as mysteriously as it came. But you don't have to endure the pain and disabling effects of polymyalgia rheumatica for months or years. Medications and self-care measures can improve your symptom  (+ info)

What can you tell me about the Management of acute Polymyalgia with Prednisone induced Cushing's Syndrome ?


I've had very bad Polymyalgia for a couple of years. I was only diagnosed a year ago. I was placed on Prednisone and the dose was gradually increased to 10mg a day. The pain and stiffness were still quite bad. They introduced Methotrexate 20mg once a week with the necessary follow-up calcium folinate the following day. The pain is still present but bearable. The Cushing's Syndrome is terrible, my face and neck are so swollen and red, I look like Santa Claus, and my ENT specialist says my trachea is collapsing from the pressure. I've been very careful not to put on too much weight with it, but the swelling is another matter. I'm so self-conscious that I've cut off personal contact with my friends, stopped going out unless I have to, I just stay alone because I'm so ashamed of how strange I look. I'm just feeling like this will never end.I know that the Cushing's is the trade-off for the pain. I'm feeling pretty desperate.
Thank you Empress Jan, You are right, and you're wrong.

The cause of mine is definitely huge doses of prednisone.. no tumour!
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Cushing's is caused by a pituitary tumor (adenoma) and you need to see an endocrinologist. The tumor is causing the pit to give false hormones to the rest of the body, including weight gain (I know, went through this!). I had my tumor removed and the hump went away, but still had the weight gain. I eventually went on Topiramate for the weight (under dr. care), but I also had high choloestrol too (which caused fatty liver). So far that is working, but it's a slow weight loss, but it's working. My joints are not hurting any more; my migraines are minimal...you need to see doctor again. I believe the Prednisone is doing you more harm than good and do not take hormones!  (+ info)

Is polymyalgia rheumatic considered an autoimmune disease? I couldnt find any source that says that? Does any?


anyone know if its autoimmune disease or not?
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  (+ info)

What is the difference between POLYMYALGIA and FIBROMYALGIA?


Am really interested in knowing from someone who has experienced either. ThankX
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http://www.mayoclinic.com/health/polymyalgia-rheumatica/DS00441

poly has inflammtion

fibro does NOT

poly seems to me based on a musculoskeletal problem
fms is based on a neuro problem  (+ info)

Looking for a Hospital in the Miami area that has a Rheumatology Department that specializes in Polymyalgia Rh


I am 63 years old and been suffering from Polymyalgia Rheumatica for three yers mow and need a second opinion on the prespriptions being taken
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The University of Miami has several specialists.

You might want to check with one of their clinics:
University of Miami Hospital and Clinics
First Floor Outpatient Department
Monday, Tuesday, Thursday and Friday
by appointment only
Phone: 305-243-7545



Jackson Memorial Hospital Rheumatology Clinic
ACC East, clinic area 3A
Monday, Tuesday, and Wednesday
8:30a.m.-12:30p.m.
Phone: 305-585-6226



JMH Pediatric Rheumatology Clinic
ACC East, clinic area 3A Monday
8:30a.m.-12:30p.m.
Phone: 305-585-6226


Miami Veterans Affairs (VA) Medical Center Clinic
Clinic area - 6th floor
Wednesday
1:00p.m.-2:30p.m.
Thursday
8:30a.m.-1:00p.m.
Phone: 305-324-4455; Ext

I hope this helps!  (+ info)

I have a friend who has Fibromyalgia and /polymyalgia- when she is on her feet she sweats profusly and?


shuffles when she walks as she cant pick up her feet-she needs help walking down off of a curb.
Shes not an old woman-shes 59 but has suffered with this for a number of years - any suggestions as to what else this could be?
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The problem with theses illnesses is that they have such a wide array of symptoms the symptoms she is experiencing could be caused by them.

However, if she hasn't been to a doc and had other things ruled out she should. Meds can cause sweating. She could have a type of arthritis causing the walking issues. She could have Lupus, MS or several other syndromes. If a doc rules out all the other symptom causing possiblities than it is most likely the Fibro/poly.

Get her to a Doc as if it is something else there may be some meds that can help.  (+ info)

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