i have polycystic kidney desease im 36 and i thinkmy kidneys are failing what am i suppossed to do?

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i dont have insurance im a single mom i feel like my life is over i have children to raise i have all the symptoms but no one seems to think im sick except my mother who has had a transplant i dont want to tell her what im going through because she already blames herself forme having this disease
  (+ info)

Polycystic Ovarian Syndrome and Polycystic Kidney Disease?

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How likely is it to have both.... I know I am positive for the PCOS....but they are reading my ultrasounds for the Kidney Disease.... On Wikipedia it says this can be fatal...and many other terrible things... How many of these are true? What are some things I can do? I just really hope I don't have the Kidney Disease.. I'm an only child...and my mom is worried and I already have enough on my hands. I'm only 17 and I'm really scared..

Thanks..
There are actually a few different forms of Polycystic Kidney Disease (autosomal dominant, autosomal recessive, etc).http://en.wikipedia.org/wiki/Polycystic_kidney_disease#Genetics

The autosomal dominant form (ADPKD) is the most common, affecting about one person in a thousand (1 in 1000, or 0.1% of the population). People with this kind of kidney disease tend to have cysts in the liver and pancreas as well, but ovarian cysts are quite different from kidney/liver/pancreas cysts. In other words, it is possible, but not likely, to have both PCOS and ADPKD.

People with ADPKD often end up with end-stage kidney disease, and require dialysis. However, people can live for decades on dialysis, so having ADPKD is not automatically fatal. Not to mention, about a third of patients with ADPKD don't end up needing dialysis.

Wikipedia is a very helpful resource, but depending the contributors writing them, some topics are better written than others. If you are really worried about polycystic kidney disease, I would suggest you visit the Polycystic Disease Foundation website. For example, the Q&A on ADPKD may address many of your questions:
http://www.pkdcure.org/tabid/590/Default.aspx

All the best.  (+ info)

What is a polycystic kidney disease?

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Is a polycystic kidney disease:
a). an autosomal dominant trait
b). an autosomal recessive trait
c). an X-linked recessive trait
d). a chromosomal error
e). a multifactorial trait (polygenic disorder)

Thanks for any help!
Chromosomal errors may take several types:
a). a particular missing chromosome
b). an extra chromosome
c). damaged chromosome
a.

There is one type of polycystic kidney disease that is autosomal dominant: Autosomal Dominant Polycystic Kidney Disease (ADPKD)  (+ info)

Is it true that people working in construction industry have more chance for kidney diseases?

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Because they have to be in sites which doesn't hav proper toilet facility
That would more likely affect their bowels.

But from what I have experienced construction workers and males in general when they are outside or away from general public find a toilet for number ones in the strangest of spots and just about anywhere.

If people in construction have more kidney diseases it might be because they forget to drink water.  (+ info)

Is it dangerous to get pregnant and have a child if you have PKD (polycystic kidney disease)?

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i also wanted to ask what are the chances of my child having PKD is it 100%? i dont want to risk this burden upon a future child....
hiya,i also have pkd and i,ve had 2 perfectly healthy children.it isn,t dangerous getting pregnant but they do monitor you closely because of your blood pressure,which can raise during pregnancy.I also suffered with more protein and blood in my urine but they will look after you more than usual.Also they can now tell by your first detailed scan if your baby has a problem with kidneys,and i don,t no what age your pkd was detected,mine was 18 im 33 now but they told me they can,t scan my children till 18.Your chances are as good as anyones and please don,t let this stop you having children,and even if you do your children might miss the generation so they could end up not having pkd anyway.Ihop i have helped in some way.
it would be nice to have someone to talk to about this disease because i don,t no many people with it,please get in touch with me its nice to no you are not alone with this and you can talk to someone.Good luck and please don,t worry.  (+ info)

what are the causes of kidney pain. polycystic kidney?

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i have terrible kidney pain. what could be a cause. its just in my left kidney. i drink plenty of water....anyone who knows about polycystic kidney disease?...is it painful?
drink alot of water and stay away from pop and coffee, this could be a sign of kidney stones. but the fact that you drink alot of water and it still hurts is strange, so i suggest you go to the doctor.

Personal expirience.  (+ info)

if a guy has polycystic kidney disease does it affect his fertility in any way ?

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Nope.

Other than the fact that he might not always feel up to performing.  (+ info)

Any medicine for Polycystic Kidney Disease ?

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My sister is living in Turkey. I'm living in Usa. I want to send a medicine to my sister. She's Polycystic Kidney Disease. Please help me about medicine. Drug or etc.
Here is a link to a clinical trial that they did for polycystic kidneys that took place in Turkey. They tested Tetracosactin.
http://www.clinicaltrials.gov/ct2/results?term=polycystic+kidneys&cntry1=ME%3ATR

There are trials in other countries that you can find by going to http://www.clinicaltrials.gov and putting "polycystic kidneys" in the search box, and hitting the map tab to see where trials are taking place

If her doctor has prescribed a drug and she can't afford it, she could try this website..
http://www.pparx.org

I believe that they often do kidney transplants for this condition and she would need to see a urologist or a nephrologist about that. This is what Steven Cojocaru (Cojo) had that necessitated his kidney transplants.
http://www.usatoday.com/life/people/2005-01-02-cojocaru_x.htm  (+ info)

Polycystic kidney disease, anything out there that can help this condition?

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Waray, i know what they are and what the long term solution is, i have them! I wanted to know if there was something outhere to alleviate the condition, help the kidneys function etc
There are some good herbal medicines out there that can be quite helpful with kidney disease - but you need to be VERY careful.

The best approach is to seek the advice of a herbalist who is experienced in treating somebody with this condition, and they will be able to look at your whole situation and advise you on a blend of herbal medicines to suit you.

Do NOT try it alone - don't depend upon your local health food shop, although they have your best interests in mind they are not trained in herbal medicine, and some herbs (and nutrients) can be unhelpful (so say the least - some may be damaging).

Vitamin C is something to avoid in large dosages, but make sure that your nutrition is good overall, plenty of water and avoid large quantities of alcohol!

I hope this helps and that you find somebody that can help - if not please do get back to me for further advice.

Kindest Regards,  (+ info)

Does anyone know much about polycystic kidney disease?

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Polycystic kidney disease (PKD) is a genetic disorder characterized by the growth of numerous cysts in the kidneys. The cysts are filled with fluid. PKD cysts can slowly replace much of the mass of the kidneys, reducing kidney function and leading to kidney failure.  (+ info)

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