Can Polycystic Kidney Diseases people buy insurance?

---

Rejected by insurance agent because of these diseases.
Most insurance companies will not sell insurance to people with pre-existing conditions, ironically enough. And if you find a company that will seel the insurance, there is usually a waiting period of up to 9 months or more. Try applying for insurance online.  (+ info)

Does anyone else have a baby with polycystic kidney disease? If so how is the baby doing?

---

I am 7 months pregnant with my fist child and I have recently found out that my little girl has polycystic kidney diesase, the doc told me there is a possibility she could be fine and there is a possibility she couldn't be. I was wondering if anyone else has had and experience with this also?
my friends son had it, she found out at her 20 weeks scan, her son lived for 10 days, i am really sorry to hear your child has this, my friends son was born in 1997 so i'm sure that a lot more is known about the condition now and my prayers are with you  (+ info)

I have polycystic kidney disease, when will i need a transplant by if i was diagnosed at 10 and now am 18?

---

Hi i am a 18 year old female with polycystic kidney disease ! i was wondering if anyone knew about this disease and what could happen to someone with it? would i need a transplant in the near future if i was diagnosed at 10 ?
I'm 17 and was diagnosed when I was nine.
Live about your life like you usually would, but there are a few things you need to watch out for.
Avoid things that involve jumping around, for example, I used to do trampoline gymnastics and horse back riding, I had to stop because the up and down motions make the cysts grow.
Salty foods. avoid those.
And just remember to keep a good diet, be healthy. And if you were given any medication from your doctor, then TAKE IT. I had blood pressure problems too so they gave me a pill to take, and I really don't like taking pills, so i didn't take it. But apparently I just found out that if I DO take the pill it ll elongate the life of my kidneys. pretty much I'm keeping myself alive longer if i take it.
Don't worry about transplants unless your kidneys are really bad and are full of cysts. Just keep it monitored. ex: i go to the hospital every 6 months for ultrasounds on my kidneys to check the cysts, and see if they grew/or there are any new ones.


hope this helped :) peace and love!!  (+ info)

How can I find out if I have PKD(polycystic kidney disease) without the expensive genetic testing?

---

For about 11 years I've had a cyst in my right kidney causing it to enlarge and a liver cyst that was once drained during my gallbladder removal a few years ago.The liver cyst has filled again and my kidney cyst causes severe pain daily.Over the years,I've had ct scans,mri's and sonograms to keep track of how large my kidney has grown.2 out of 3 doctor's(including a nephrologist from the Kidney foundation)suggests I have PKD and has told me that I now need to undergo genetic testing to verify this.I have no health insurance and there is only one income in my household.Due to the daily pain,I am so limited to activities that I can do with my two children.We are so stressed that we cannot get an answer from these "specialist" and can no longer afford any more testing or ER visits.I feel like I am alone.How can i get a diagnosis when i can not afford the testing?I've been to the"sliding scale fee" clinics(they say my husband makes too much money but fail to realise we pay bills with it).
Currently there is no cure for PKD, not with conventional medicine or (despite what you have been told) alternative medicine.

Ultrasound (sonogram) is usually used to diagnose this especially when the cysts are active. Genetic testing confirms the diagnosis. CTs & MRIs can be used but are not ususally required. The extra imaging you have had may have been redundant and unneccessary. For now, get a hold of all your films, reports and labs -- you will need them. The main concern at this time is to prevent or control pain, high blood pressure and UTIs and well as find help.

You may want to contact the Kidney Foundation and see what they suggest. Call to get an 800 number and check their website. They may have programs for someone in your situation, programs that will give you immediate help.

My hope is that you can avoid ESRD (end-stage renal disease), kidney failure and transplant.

I'm not certain if you are eligible for Disability or Supplemental Security Income benefits through the Social Security Administration but it's something to investigate. You would need the medical information I suggested you acquire and any written physician statements you can get concerning the probable diagnosis. If I am able to find additional help for you, a grant perhaps, I will contact you if I'm able.

God bless you and your family. You're in a very frustrating position but I'm sure there are others who will try to help. You're not alone!  (+ info)

is polycystic kidney disease the same as polycystitis?

---

my mom may have polycystic kidney disease. we found out that people in our family have died of polycystitis and we want to know if they are the same thing or if they have anything in common. does anyone know?
  (+ info)

What can't I eat/drink if I have Polycystic Kidney Disease?

---

I went to the ER with bad back pain and lower abdominal pain. They did a CT scan and found a couple of kidney stones and multiple cysts on both kidneys. The ER Doc and Radiologist both thought it was polycystic kidney disease, but I don't have an appointment with the Urologist for another month and a half. Does anyone know of any guidelines I should follow in the meantime?
I googled it and got one site that said "low salt diet" (salt retains water and fluid is in the cysts).
https://health.google.com/health/ref/Polycystic+kidney+disease

I too, wonder why they didn't fix you there or admit you to the hospital since you were having severe pain. Maybe you don't have insurance so they just did as little as they could to help you? It is bad what hospitals are doing nowaday to people without insurance. I am glad Obama and congress got this new law passed to help everyone get insurance, even if it is not a perfect bill. I think you should get a lawyer and sue the hospital if you have an emergency with this before the urologist appointment. But if it gets bad, call the urologist and see if they can bump the appointment up sooner. Hopefully they gave you enough pain meds to last until your urologist appointment in one month. If not, I would call the ER and ask to speak to a supervisor and complain about the service you got and insist they give you enough pain meds to last until your appointment.  (+ info)

My mum has polycystic kidney disease and i don't - its hereditry but will i still be a carrier?

---

My sister has the disease so we knew that she will pass it on to her children 1 if not more -she has 3. But if i am a carrier will i pass it on to my children? Confusing i know but the doctors don't seem that keen to test the children although my sister and i were tested straight away! Thank you so much to anyone who knows or can point me in the right direction.
50 percent chance of developing it. Not tested for as there is nothing that can be done anyways.
Not always genetically based.
50 percent chance of passing it on to your children if you are a carrier.

You can be tested to see if you are a carrier now. Some carriers choose not to have children.
See a geneticist for counselling.

http://health.lifestyle.yahoo.ca/condition_info_details.asp?disease_id=261  (+ info)

Does anyone have any information on how to live more comfortably with polycystic kidney disease?

---

My dad has been suffering from PKD for about 5 years now.Even the pain meds aren't helping him with the pain.He is unable to work due to the pain that he is in, and no one wants to hire someone to drive trucks who are taking pain meds.He has been so depressed, thinking he has let my mom down because he hasn't had any income coming in to help with the bills.He has tryed for disability but is having a hard time getting signed up for it. Is there any relief for this pain that he is in daily?What can he do to live in less pain?
I also have PKD and I am stage 5 (dialysis will start soon) I have found that a strict diet that restricts protein (30 gm./day) and phosphorous is helpful. I avoid foods like nuts, seeds, all dairy products, whole grains, bananas, and citrus fruit. Beer is one of the worst offenders. One must be careful not to become anemic by using high iron substitutions (like blackstrap molasses for sugar) I have also been advised to avoid being shaken ( no bicycle riding, horseback riding or long bumby car rides)  (+ info)

how many people with polycystic kidney disease are here?

---

i just wanted to take a little poll, sometimes it feels like there's no one who understands. so if you have PKD ( poly-cystic kidney disease) say hi, it's been in my family for quite a while and im always curious to see who else can relate.
Hi! Yep! I have it too!

It's a bit of a nightmare isn't it? My mom had it, and me and my brother and two sisters all have it. My sisters kids seemed to have escaped though, so that's a relief.

If you look at the statistics, it's horrifyingly common. I was talking to a Doc at my hospital a few weeks ago. He's doing research into the genetics of it, and he was saying that they have identified the gene which causes it, but you can't genetically engineer it out yet. He was saying that some drugs are being trialled which halt the growth of the cysts and may stop the kidneys failing. I guess it depends on how far the disease has progressed on how effective they will be. There is some great research going on though and I have big hopes for the future.

Ten percent of all cases mutate spontaneously. The disease occurs in an individual who has no family history of the disease That must be a real nightmare mustn't it?!?! At least when all four of us have it, we can rely on each other for support and information.

What stage are you at? Some people have the disease but it doesn't progress to End stage renal failure. Hopefully you are one of them!

I have done the whole dialysis thing and the transplant thing and I feel great now. It's not what you'd ever choose for yourself, to have this disease, but you've just got to not let it get you down - easier said than done though eh?

Take care and try not to feel so alone, because you're definitely not.

Regards

Jo  (+ info)

What are the inheritance patterns for polycystic kidney inheritance?

---

Two of my mother's brothers have polycystic kidneys, so I was wondering, is there any chance that I could have the kidney disorder too? Like it could have passed by my mom but I might have it? Just wondering, thanks. :)
Either or both parents can carry the gene. Carriers don't necessarily have it but can pass it on. If both parents have it, you are more likely to have PCKD.  (+ info)

---

---

• Home
• Our method
• Usage examples
• Index

• Statistics
• Contact

---