Need good info from and Org or Gov site on Childhood Minimal Change Nephrotic Syndrome can you help?

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I'm also looking for Steriod Resistant Childhood Nephrotic Syndrome.
Sorry your baby has this. I know he/she is probably not a baby literally but they are always your"baby".
http://www.kidney.org/
http://en.wikipedia.org/wiki/Minimal_change_disease
http://www.kidcomm.org/
http://www.clarian.org/ADAM/doc/HealthIllustratedEncyclopedia/1/000496.htm
http://www.nephcure.org/

http://www.pediatriconcall.com/fordoctor/diseasesandcondition/PEDIATRIC_NEPHROLOGY/steroid_resistant_nephrotic_syndrome_chilfren.asp
This should get you started.
God bless and help you and your child through this.  (+ info)

How fatal is nephrotic syndrome?

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How many years would it take to loose kidney function
Nephrotic syndrome is a condition marked by very high levels of protein in the urine; low levels of protein in the blood; swelling, especially around the eyes, feet, and hands; and high cholesterol. Nephrotic syndrome results from damage to the kidneys' glomeruli (the singular form is glomerulus). Glomeruli are tiny blood vessels that filter waste and excess water from the blood and send them to the bladder as urine.

Nephrotic syndrome can occur with many diseases, including the kidney diseases caused by diabetes mellitus, but some causes are unknown. Prevention of nephrotic syndrome relies on controlling these diseases.

Treatment of nephrotic syndrome focuses on identifying the underlying cause if possible and reducing high cholesterol, blood pressure, and protein in urine through diet, medications, or both. One group of blood pressure medications called ACE inhibitors also protects the kidneys in diabetic patients.

Nephrotic syndrome may go away once the underlying cause, if known, has been treated. However, most of the time a kidney disease is the underlying cause, and these diseases cannot be cured. In these cases, the kidneys may gradually lose their ability to filter wastes and excess water from the blood. If kidney failure occurs, the patient will need dialysis or a kidney transplant.

Prognosis depends on the underlying disorder. Minimal change disease has the best prognosis of all the kidney disorders, with 90% of all patients responding to treatment. Other types of kidney diseases have less favorable outcomes, with high rates of progression to kidney failure. When nephrotic syndrome is caused by another, treatable disorder (infection, allergic or drug reaction), the prognosis is very good.  (+ info)

i have nephrotic syndrome and i am wanting to know what would make me hurt every morning trying to get out of?

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bed and trying to turn over in the night or in the morning when i first wake up. i have sever pain when i try to turn over where my kidney and ribs are and cant hardly move. hurts in ribs and in the front around my front ribs and stomach also. thanks much!
I could be from enlargement of the kidneys (nephromegaly) with pain being referred along nerves to the sides and front. It could be that there may be some stone formation that is producing pain, with backup of urine and distention of the kidney pelvis or ureters If this pain is new, you should call your nephrologist for advice.  (+ info)

My mother is suffering from nephrotic syndrome. Her creatinine level is 4.8 now is there any medicine ?

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I would like to know is there any medicine to control the increase of creatinine in blood or any other remedial measures ?
Creatinine is actually a product of natural metabolism of our muscles. Since creatinine is not toxic, having a high level in the blood does not do any damage to the body. However, creatinine is a marker of decreased kidney function -- the higher the creatinine number, the lower her kidney function.

Unfortunately, at 4.8 mg/dL, her kidney function is most likely below 15% of where it should be. If the creatinine levels have been slowly climbing over the years, there is probably not much more that can be done to recover kidney function. In fact, she may need to consider dialysis very soon.

On the other hand, if her creatinine level was, say, only 2.0 mg/dL a month ago, it is likely the 4.8 represents a temporary drop in kidney function. There is a good chance the kidneys can recover to a lower level (like 2.2), and dialysis will not be needed at this time.

Finally, there are medications that can help reduce the amount of protein in the urine, and also slow down the worsening of kidney function. However, these medications will NOT be able to do much if her creatinine has reached 4.8 after rising slowly for years. (The damage has been done.)

If she has not been seen by a kidney specialist (called a nephrologist), she definitely needs to see one ASAP.

I wish her all the best.  (+ info)

Does Nephrotic Syndrome repeat itself later in life?

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If I suffered from this disease when I was like 3-4 years old, will this repeat itself? As in, some ppl say that this repeats itself when a person is 16-17.... is it true?
Usually Nephrotic Syndrome in children is a minimal change type. That's the usual type of Nephrotic syndrome in children which account for almost 95%. The others are due to more serious kidney disease in which if you have, I'm not expecting this question from you. BUT in adult, minimal change type of Nephrotic syndrome only account for about 3%. As we grow older we tend to get more disease and problem. So, most commonly in adult, the Nephrotic syndrome happened due to underlying serious kidney disease. Did you need to be admitted several times because of it previously? Or you need to increase your medication several times? If not, I will say, you are fine. Difficult cases like needing lots of hospital admission is more problematic than the simple one. Don't worry too much. But, if you are starting to swell especially on your eyes, seek doctor immediately. Otherwise, just enjoy your healthy life.   (+ info)

Can a person previously diagnosed to have nephrotic syndrome regressed to kidney malfunction?

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Nephrotic syndrome can be caused by a number of different diseases. The common mechanism which seems to cause damage involves the immune system. For some reason, the immune system seems to become directed against the person’s own kidney. The glomeruli become increasingly leaky as various substances from the immune system are deposited within the kidney. A number of different kidney disorders are associated with nephrotic syndrome, including:
• minimal change disease or MCD (responsible for about 80% of nephrotic syndrome in children, and about 20% in adults) MCD is a disorder of the glomeruli
• focal glomerulosclerosis
• membranous glomerulopathy
• membranoproliferative glomerulonephropathy Other types of diseases can also result in nephritic syndrome. These include diabetes, sickle-cell anemia, amyloidosis, systemic lupus erythematosus, sarcoidosis, leukemia, lymphoma, cancer of the breast, colon, and stomach, reactions to drugs (including nonsteroidal anti-inflammatory drugs, lithium, and street heroine), allergic reactions (to insect stings, snake venom, and poison ivy), infections (malaria, various bacteria, hepatitis
B, herpes zoster, and the virus which causes AIDS), and severe high blood pressure. The first symptom of nephrotic syndrome is often foamy urine. As the syndrome progresses, swelling (edema) is noticed in the eyelids, hands, feet, knees, scrotum, and abdomen. The patient feels increasingly weak and fatigued. Appetite is greatly decreased. Over time, the loss of protein causes the muscles to become weak andsmall (called muscle wasting). The patient may note abdominal pain and difficulty breathing. Because the kidneys are involved in blood pressure regulation, abnormally low or abnormally high blood pressure may develop.  (+ info)

Yes I am a 11 year boy with the diesese called Nephrotic syndrome?

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I need help please, when my urine contains i lot of protein what can I do to help lower it down? I am very frustrated and so is mom and i get really fat and swollen and my friends make fun of me but my mom says it will recover so I just want to know when protein leaks out what can I do?
my husband has this.. go see a nephrology dr.. he'll give u medicine to help u lose the water... with something like prednisone... to help prevent it from coming back... be sure to take it everyday.. the dose he gives u... so it doesnt keep coming back.... or else u'll need dialysis if u dont take care of it now.. my husband gets swollen every once in a while... but the medication really helps.. within a week... he gets realllllllllllly skinny again.... but u have to see a doctor bc it can get serious if u dont take ur meds.. remember to take it!!!  (+ info)

Edema in Acute Glomerulonephritis Vs Nephrotic Syndrome?

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Hi. Can anyone tell me what is the difference between the pathophysiology of edema in acute glomerulonephritis and nephrotic syndrome?
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Has anyone had Nephrotic Syndrome, is it hereditary, What causes it?

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My daughter has had it, I hear only boys get it, and it's not hereditary, but when I look back on my family records I see something that is described as similar to my daughters condition that they have died from. So can this be hereditary? I'm figuring that it is passed on from generation to generation, I just want to know more about it and if anyone has had it, and if you know of hereditary possiblites.
Nephrotic syndrome is urinary excretion of > 3 g of protein/day due to glomerular disease. It is more common in children and has both primary and secondary causes. Diagnosis is by measurement of a spot urine protein/creatinine ratio or a 24-h urinary protein; underlying causes are diagnosed based on history, physical examination, and renal biopsy. Treatment and prognosis vary by cause.
Please see the web pages for more details on Nephrotic syndrome and Minimal change disease.  (+ info)

difference between minimal change nephrotic syndrome and iga nephropathy?

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impaired kidney function, and non-existant kidney function  (+ info)

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