FAQ - Myoclonic Cerebellar Dyssynergia
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Hello everyone out ther, My question is......Does anybody know a good medication for cerebellar ataxia?


I been diagnosed with cerebellar ataxia, head injuries they (DRS) said they have give me many medications and none seem to work.
I have to use a walker and thats embarrissing, its been about 3 1/2 years and I still haven't got better.. I see the neurolgist twice a year for about 3 mintutes, I know I should go to a more professional Neurolist but the funds aren't allowing it, so if anybody out there have a similiar situation please tell me the medication, Cerebellar controls most all functions in your system, there has to be something out there that would at least help.
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All I can give is hope. BF had botched brain surgery and has gone from needing someone to feed him, to back to collage and mechanic work. Took five years but he said the brain can eventually reroute some of the connections. Don't forget to enjoy what you can of the present, don't wait to have fun. Try to make the walker something people smile at when they see it. I've seen old fashioned bulb horns on walkers or racing stripes. It might help with the embarrasment. If people know it makes you uncomfortable then they start looking around like they're trying not to look and thats so hard to put up with for you. Make it a little funny and that will make them feel like it's ok to look at it and you . They will see you instead of just your walker. Hope this helps.  (+ info)

What is left cerebellar hemorrhage with obstructive hydrocehpalus?


The obstructive hydrocephalus means that the cerebrospinal fluid, which bathes the brain and spinal cord, cannot be reabsorbed. This is bad because it is still being made, but it can't go anywhere. The fluid is accumulating, which is a hemorrhage. It this case, the accumulated fluid is in the cerebellum.  (+ info)

In the summer i was diagnosed with juvenlie myoclonic epilepsy could a seizure happen at night?


this past summer i was diagnosed with juvenile myoclonic epilepsy. could a seizure happen at night or in the afternoon? most of the seizurs i had were in the morning. i am on medication. i haven't had a seizure since the summer.
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Yes they can happen any time. I'll send U some sites too. It is generally outgrown.

This syndrome typically arises after three years of age and is considered benign because children usually outgrow it by adolescence. In most children with benign rolandic epilepsy (BRE), seizures are infrequent and in some cases do not require medication. Characteristic manifestations of the syndrome begin with a sensation at the corner of the mouth and drooling, followed by jerking of the mouth that can progress to the rest of that side of the face, and sometimes to that entire side of the body. Although children remain conscious during this type of seizure, they are usually unable to speak for a period of time during and after the seizure. Seizures occur more commonly at night, especially during particular stages of sleep.

Juvenile Myoclonic Epilepsy (JME)
This syndrome typically begins in late childhood or early adolescence. It is characterized by mild myoclonic jerks as the individual is going to sleep or waking. Children describe intense feelings of jumpiness that generally subside after about 30 minutes. In addition to the myoclonic seizures, children with juvenile myoclonic epilepsy (JME) may also have periodic tonic-clonic seizures

http://www.massgeneral.org/childhoodepilepsy/overview/seizure_types.htm
http://www.my.epilepsy.com/
http://www.ionchannels.org/showabstract.php?pmid=12027575
http://www.ncbi.nlm.nih.gov/

This is a world of information 4 U. I hope this helps U.  (+ info)

persistent myoclonic jerks what should i do?


Ive had myoclonic jerks in my legs for weeks now... ive been getting enough sleep should i see a doctor?
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Yes, you should see a doctor because myoclonic jerks can be a serious problem.  (+ info)

Could I have Juvenile Myoclonic Epilepsy?


I have twitches 5-15 times daily. I can feel the twitch building for about 1-3 seconds before it actually happens. I get them mostly on my upper body and I don't know why. I am 13 years old. I have been having these just before summer. Our family doesnt have enough money to take me to the doctor and we dont have medical insurance, so please dont tell me to go to the doctor.
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  (+ info)

What is olivopontine cerebellar atrophy?


What are the characteristics?
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Olivo-ponto-cerebellar atrophy is a disorder of multiple system atrophies including SND and SDS. Olivopontocerebellar atrophy is a group of genetic diseases in which there is progressive degeneration of the olivopontocerebellar pathway in the brain connecting the inferior olive, pons, and cerebellum. The cerebellum is the part of the brain that plays a role in maintaining balance and posture as well as coordinating voluntary movement.

More article http://neurology.health-cares.net/olivopontocerebellar-atrophy.php  (+ info)

Hi I have just been told that I have cerebellar ataxia any help?


Hi three years ago I woke up with my head spinning I have very poor balance and walk with a stick and have nysagmus which is wobbly eyes and get tired easily
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You are not alone.
Hi,

My name is Michel Beaudet, I'm 46, have FA and live in Quebec, Canada.
I'm sending this message to invite people on this list to also join
another list for those with ataxia. The list is called Internaf and
there's also a website full of info at http://internaf.org

International Network of Ataxia Friends is a mailing list for ataxia
patients and family which serves as a support group and information
exchange vehicle. There are currently over 680 subscribers from more
than 40 countries worldwide.
Subscriptions to INTERNAF is free.
For info on how to subscribe, go see, http://internaf.org/network/services.html or
for email only access click here and send: internaf-subscribe@yahoogroups.com or
for full yahoogroups features access go to http://groups.yahoo.com/group/internaf/join

Bye
ps: Don't hesitate to email me if you have questions about internaf
--
Michel Beaudet
michel.beaudet@videotron.ca
Internaf - INTERnational Network of Ataxia Friends
http://pages.infinit.net/macmike
http://groups.yahoo.com/group/internaf
http://www.internaf.org  (+ info)

does anyone else have myoclonic dystonia?


if you do, what bothers you the most?
do you have any of the non-movement symptoms?
are you treating any of your symptoms with any medication?
are you seeing any results?
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you may want to put those sorts of questions to a doctor and he can tell you what sort of percentage chance you are looking at to have any of those problems.  (+ info)

What is alcohol cerebellar degeneration?


Its when you start forgetting about alot of sh!t  (+ info)

Diag: Cerebellar dysfunction 2nd degree to vestibulitis, intracranial neoplasm, subdural hemotoma?


this diag. is from 1971

This is a diagnosis that was given to me when I was a child - can anyone help me with definitions of this.

I know it has to do with the brain being inflamed and having abnormal growth and a blood clot.
I would just like to know what it really means.
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As a supplement to what essentiallysolo answered it should be mentioned that not all intracranial neoplasias are malignant (ie cancers). For instance most menigiomas are considered benign. Also some astrocytomas, ("pilocytic astrocytomas" are often seen in childhood in the cerebellum) behave benign. Was that what you had?.  (+ info)

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Last update: September 2014