what's the difference between Myasthenia Gravis and Curare?
they both block acetylocholine receptors dont they?
----------
Myasthenia gravis is a disease and curare is a medication. (
+ info)
My Dad Has just been diagnosed with Myasthenia Gravis. Does anyone have any personal experiences to share?
I know the basics of the condition and treatment. What I would like is someones practical experiences that might be helpful?
----------
The typical methodology and approach the medical people use is based on the "autoimmune" theory that has been debunked by most people in the world, but still remains as "fact" in the U.S. One thing the medical people suggest is to remove the thymus gland! Well if the body isn't working, let's just remove parts and that should fix it! Same logic as, well the gallbladder isn't working right, let's just remove it!
INFECTION is at the root of most problems in the body. Identifying them and dealing with them by using drugs and surgery by treating the symptoms, not the root cause is ludicrous. It's one thing to treat a symptom with a drug to relieve some pain, but doing that while damaging the body and over a long period of time is NOT healing, but abuse. MG is a degenerative disease. Realizing that the body has an innate intelligence and is capable of being healthy and even repairing many problems it only makes sense to tap into that intelligence to work on this MG issue. The real problem is to start the process of making the body healthy early on and not waiting until the nerve tissue is damaged to extensively.
An approach the medical people seem to forget, neglect, and even disregard intentionally, is to focus on making the body healthy, not just treating a symptom to relieve pain. This requires some education and understanding of how the body works. Doctors are sorely inept in this area. You need to consult with a Certified Nutritional Therapist that understands QRA testing to have your dad evaluated on a nutritional basis. They can work with your doctor or not to find the best solution.
Many things medical people tell us is simply NOT TRUE. Diabetes type 2 is NOT something that is incurable as we are told. That is simply not true and a silly statement being told anyone that is diagnosed with diabetes type 2. People are being told they have to take drugs for the rest of their life to be functional. It takes about 4 weeks to get rid of diabetes type 2. It is illegal for people to treat cancer patients with anything other than chemotherapy, radiation, or surgery in the United States. Yet, in Mexico, many people are getting their cancers CURED at clinics like the Max Gerson clinic by focusing on health, not a bunch of drugs and surgery that is clearly not working well with cancer fast becoming the number one killer disease in America over heart disease that is also a degenerative disease that is being exploited by the medical industry in an unbelievable way.
Ultimately, it is up to your dad how he wants to approach this issue.
good luck to you (
+ info)
Can Ocular Myasthenia Gravis progress to generalized after 10 years?
unfortunately yes and even in shorter period ,it has no predictable course , (
+ info)
I am looking for people with Myasthenia Gravis and am feeling so isolated anyone want to talk to me?
I had a thymectomy in Oct of last year and am SO much better. Now I am feeling so useless and don't know what to do with myself. There is too much time to think and not enough energy to do the things I should do. I am fortunate that my symptoms are not as severe as before and I am very grateful. I have so much pain in the back of my neck and shoulders that I get very depressed. Does anyone have any suggestions for this pain and weakness in the neck.
I have never asked a question on this forum because I don't want to complain. I know that many people here are much worse off than I am.
----------
Elizabeth, I am glad you contacted me but I would like to put this online for other people that may have Myasthenia Gravis or do have it.
I did have my thymectomy 5-1-97 and I felt great for a while. want to reinforce here that you don't have pain with MG...you have muscle weakness. You could be overusing the muscles in your neck and shoulders that have become weakened by the MG.
You have to be careful with the meds that you take with MG. There is a list of to take with caution drugs. No muscle relaxers please!! I have been able to take Vicadin with no reaction. When I was given cipro, an antibiotic, I was on the ventilator within 20 mins of it being injected in my IV. That was the doc's fault for he saw the list but laughed. I was too weakened to say to the nurse...what are you going to give me? It is crucial that you educate yourself of this disease. You can't reach out to the ordinary community on this for they don't know of the med restrictions on this disease. Anything that would suppress the breathing isn't good either.
For you feeling of usefulness thus being depression, I recommend that you find a neuropsychiatrist that is educated on the affect of neurological diseases on the psychological aspect. It is real. I have been going to one since 1997. Outside factors like stress, loss of a loved one, etc. can cause MG to flare. I take an antidepressant named Wellbutrim and I do very well with it.
Respond to my email I sent you and I will help you more. I am 11 years down the road with this disease and very educated on it. Plus I went through hell with it and had to get very smart to protect myself!! (
+ info)
What is the life expectancy of a 4 yr old with myasthenia gravis?
only symtoms at this time is droopy eyes
----------
Hello,
Sorry about that,
I do not know alot about this disease, but i know it effect the skeletal system ..
Without treatment
Untreated, the disease is typically 'active' for 5-7 years and symptoms may progressively get worse over this time. Symptoms can vary in severity from person to person and from time to time in the same person. After this time the symptoms may reduce or even go away completely (a spontaneous remission). Up to 1 in 5 people with myasthenia gravis can expect a spontaneous remission where the disease 'goes away'. However, recurrences may occur sometime in the future even if symptoms do clear. Also, without treatment, up to 3 in 10 people would die within 10 years of developing myasthenia gravis.
With treatment
Treatment usually works well. With treatment, most people with myasthenia gravis can expect improvement and many will become free of symptoms. So, although myasthenia gravis literally means 'grave muscle weakness', the outlook is not as 'grave' as it once was. Life expectancy is now normal in most cases. In the cases where the disease 'goes away' after a few years, then treatment such as steroids or immunosuppressive medicines can be stopped.
Here is another researched document i found okay, hope it helps
ABSTRACT - Myasthenia gravis (MG) in childhood is rare comprising 10 to 20 % of all myasthenic patients. We studied 18 patients with MG whose first symptoms started from 1 to 12 years of age, followed at the Department of Neurology of the UNIFESP-EPM, from January 1983 to August 1997. There were 10 girls and 8 boys (1.2:1). Eleven patients (61%) presented moderate or severe generalized disease and 4 (22%) had at least one myasthenic crisis. EMG with supramaximal repetitive nerve stimulation was diagnostic in 8 (47%) out of 17 patients, and chest CT was normal in 14 patients. Seropositivity to acetylcholine receptor antibodies was found in 81.6% (9 out of 11 tested) and the levels had no relation to clinical severity. Nine out of 16 patients (56%) worsened with pyridostigmine alone and were treated with prednisone. Four out of those nine continued worsening despite steroids and were subjected to thymectomy (all showed thymic lymphoid follicular hyperplasia). Three patients (75%) improved markedly after thymectomy and one (25%) worsened, eventually getting better with intravenous immunoglobulin and oral azathioprine. MG treatment, using all resources available, has to be individualized for each child.
Here are some websites that might be helpful to you
http://www.webmd.com/content/article/7/1680_53869.htm
http://www.netdoctor.co.uk/diseases/facts/myastheniagravis.htm
http://www.medscape.com/medline/abstract/15968930
Take care and God bless you and your kid...hope your kid lives a long and healthy life.... (
+ info)
What is the difference between Myasthenia Gravis and Guillain Barre Syndrome?
They are both what is called "Auto-immune Diseases". The body's White blood cells normally produce "Anti-bodies" to fight infection. In these illnesses, the anti-bodies attack the body instead.
In Myasthenia Gravis, the anti-bodies attack the junction between the nerve and muscle, causing weakness that gets worse the more that you try and move. It commonly affects the eye muscles, speach and swallowing muscles, and also the muscles in the arms and legs. It is a lifelong condition, but very often it can be very effectively suppressed so that it doesnt cause any problem.
Guillain Barre Syndrome often comes on after an infection eg diarrhoea, chest infection etc, and the antibodies attack the covering of nerves called the myelin sheath. This typically causes an ascending weakness which can progress over hours or days. If it gets severe, it can even affect the muscles of breathing. It usually takes between a few weeks to a couple of months to recover. Most people fully recover and are never affected again. Treatment can be given when the weakness starts to help prevent further deterioration, and helps to speed up recovery.
If you want any further info, you can email me. (
+ info)
what is the pathology diagram of myasthenia gravis?
myasthenia gravis is a chronic autoimmune disease in which the infected individuals have altered neuromuscular transmissions leading to muscle fatigue and stress.
----------
An autoimmune condition. Autoantibodies bind and blocks the ACh receptor at the postsynaptic neuromuscular junction, preventing the stimulatory effect of acetycholine and giving the symptoms (
+ info)
Anyone have or know someone who has Myasthenia Gravis?
I think I may have this disorder and needs some advice on what I should expect and what any of you have gone through. I am really scared!
----------
Marlena, my father has had MG for almost 10 years. We have been through alot in first getting a diagnosis and then treatment. With my medical background it has been helpful through all of this, and since this is not prevelant, not many know of the complexities- the good news is that it is manageable and treatable. My father is doing very well now (he is 80) and has been in remission for 4 years. It is scary- but you need to find a MD who is up to date on the current literature and treatments. Each person is treated differently depending on their symptoms/age other medical problems, tolerance to medication. Have you actually had any testing for this? (
+ info)
Can people with Myasthenia Gravis donate blood?
If it depends on whether you're displaying symptons, I always have ptosis of the right eye, though it varies from almost not noticeable to slightly interrupting my vision. I do NOT take any of the "regular" medications; I only take vitamins.
----------
Bravo!
You can be a blood donor!
No problem in blood donating even if you are a patient suffering from myasthenia gravis.
But if you have difficulty in breathing, your blood oxygen will decrease, in that instance, it will be hazardous for you to give blood!
Otherwise, it's ok!
Here is a link for your references.
May God bless you!
Good luck! (
+ info)
Do i need to explain to everyone that i have Myasthenia gravis??
i am a 22 year female with myasthenia gravis 2 years ago. I'm getting sick and tired of myself for not being healthy enough and quite embarass to look at people straight in their eye for my left eye is cross which make me see double evey time i look up. i just want to be back to be normal, even with medicine, it not helpng at all! I'm still young and this illness is making me losing my social life. What kind of health insurace out there that approve me for this illness? are there any alternative medicines, herbal treatment beside western meds?
----------
I was diagnosed with MG at the age of 46 and I am now 57. No matter what the age, if still affects your life for I was in the prime of a career and life. It came on me with droopy eyes 3/4 shut, drunk walk upon taking a walk, and I looked like I had a stroke on right side of my face. I was diagnosed by a positive test on the AcHr test conducted by a neuroopthomoligist. I didn't have insurance at the time but the Muscular Dystrophy Association linked me up with an MDA clinic which my visits were no charge. I did have my thymectomy 7 months after the test and 4 months after the MDA doc did the final confirmation from a strenuous workout. I did improve after the thymectomy but went downhill real bad to the point I ended up on the ventilator 2 times in May 1997. I do contribute that to not enough aggressive treatment. I was first put on prednisone at high doses and then later my neuro near home took from June 1997 to March 1998 to put me on Imuran, an immunsuppressant. It took to October 1998 to kick in and I felt great. I came off prednisone and was doing well. I did allow another neuro to take me off Imuran and I crashed very severely in July 2002. Now I am working part time which is set by my neuro. I will never work full time again and I get my SSD. It was rough for I got to the point I was a ragdoll. My advice to you is to treat this disease very aggressively. Mestinon wasn't enough. As you find the right combination of meds, you can lead a near normal life. I did go through the emotional part for the love of my life of 6 years did leave once I was diagnosed but that was his own ignorance. My life has changed tremendously for now I take care of me and have set boundaries in my life. I do know different people get IVIG's and instead of Imuran take Cellcept. Also most mgers do take an antidepressant to allow you to stay emotionally stable through the ups and downs of this disease. I keep the philosophy that if it is broke, fix it so DO NOT give up. I have fired 5 docs in my MG life and I have a great team right now. Also I know of women that have given birth but with the supervision of their neurologist. I recommend you to join a support group online at yahoo which is bettesmyastheniagravissupport. You will learn alot and talk to people that do understand what you are experiencing. Anytime you want to talk, email me:
[email protected] and I will help you as much as I can. Go out and reach for that wellness that is there and don't settle for less!!
Good luck and God Bless (
+ info)
Vi utvärderar inte eller garantera riktigheten i innehållet i denna webbplats. Klicka här för Full Disclaimer