Does anyone have both fibromyalgia and myasthenia gravis?
I have myasthenia gravis which causes severe weakness and
fibromyalgia which causes severe pain. Treating one affects the other. For example taking flexeril helps the pain of fibro but it causes me to have trouble talking and swallowing. To not treat the pain is out of the question because it's #10 pain. Suicidal pain has been a part of my life for twenty years. Please give me some feedback.
I don't have Myasthenia gravis, but I do know the severe pain of fibromyalgia. I have been disabled for 2 years, diagnosed 10 yrs ago. I also have been hospitalized for sever depression and attempted suicide due to the constant pain. I haven't found Flexeril very helpful for the pain although it does help the constant tight muscles in my neck and back. I also get trigger point injections and take opioid pain killers 4 times a day which helps alot, I take an antidepressant, an anti anxiety med, a sleep med along with the flexeril. If your not taking anything but the flexeril I would recommend that you see another doctor, your not being treated properly, I recommend a pain clinic, the doctors there are very familiar with Fybromyalgia. My prayers are with you good luck :) P.S. There are also some good web sites, type in chronic pain and search. (+ info
Any information on the progression of myasthenia gravis?
My husband was diagnosed with myasthenia gravis about three weeks ago. (He had a droopy eye and some facial sagging, along with one shoulder, for about two weeks before the diagnosis.)
Since then, even on the meds, the drooping has moved into the other side of his face. He has found that he cannot see well enough to even work most days, what with the drooping and also double vision and similar things.
Is there anyone with insight into what we/he can expect over the next however long? What can he do about things like his job, everyday life, etc? Will this spread to the rest of his body as quickly? Please help...
I have Myasthenia Gravis diagnosed October 1996 with my eye 3/4 drooped, looked like I had a stroke on right side of my face. Eventually it affected my speech. I also had the arm and leg weakness, swallowing and then eventually, I stopped breathing.
Because this disease is rare and some neuros don't treat it properly, it can get very severe. I suggest an aggressive treatment. I was started on only Mestinon which didn't help me at all obviously. Myasthenia Gravis is antibodies that are blocking the signals sent to the receptors at the endplate of voluntary muscles. You have to take meds that halt the antibody production that are called immunosuppressants. These are the same drugs that are used like to prevent kidney transplant rejection. After 2 intubations in July 1997, I was started March 1998 on Imuran and Prednisone. After 7 months, the imuran kicked in and I was like a normal person. Because of the severity of the disease that I experienced, I am able to work part time now and live a near normal life.
Look in your phone book for the Muscular Dystrophy Association. Call them and tell them of the diagnosis and you need to get into a MG clinic doctor. You can also go to the www.mda.org site and click your zip code and that will tell you a clinic nearest you.
Also after diagnosis, the procedure is for your husband to have a catscan of his thymus. Often the thymus is enlarged and/or has a thymoma, whether benign or malignant, is determined by the catscan. Some people get remission just having the thymus removed.
Hope this helps. Feel free to contact me at: firstname.lastname@example.org (+ info
Is it possible to have complete cure of Myasthenia Gravis?
I have rare diseace of Myasthenia Gravis, I wana know its complete cure if it is, Please let me know .........!
Myasthenia gravis is a chronic autoimmune neuromuscular disease characterized by varying degrees of weakness of the skeletal (voluntary) muscles of the body. The name myasthenia gravis, which is Latin and Greek in origin, literally means "grave muscle weakness." With current therapies, however, most cases of myasthenia gravis are not as "grave" as the name implies. In fact, for the majority of individuals with myasthenia gravis, life expectancy is not lessened by the disorder. (+ info
the pathology of multiple sclerosis to that of myasthenia gravis can you explain in layman term?
compare multiple sclerosis to that of myasthemin gravis. please help I dont understand the medical term maybe if it was in layman term it would make more sense to me.
I found this answer online.
What is the difference between Myasthenia Gravis and Multiple Sclerosis?
Both Myasthenia Gravis and Multiple Sclerosis are autoimmune diseases, but differ in that MS affects the central nervous system (brain and spinal cord), while MG affects the nerve-muscle communication point of the peripheral nervous system (outside the brain and spinal cord).
There is no clear connection between MG and MS.
Hope that helps. (+ info
How fast does myasthenia gravis move through the body?
My husband has just been diagnosed, and we are wondering what to expect. Things like how likely is he to end up with it in his arms, legs, etc, and if so, how soon?
There is no way to know for sure if your husband will end up with it in his arms and legs, but many people do. The good news is that he has gotten a diagnosis, so now he can get proper treatment. Take a look at the sources below, which give you some more detailed information about it, but of course your husband's doctor will know more about what to expect in his particular case. I hope all goes well. (+ info
What is the difference between Eaton Lambert Syndrome and Myasthenia Gravis?
I see they both have many similarities but what is the major difference? I am doing a case study with a patient who was diagnosed with both, which is one of only 6 cases known.
That's kinda complex! You're quite right in that Eaton-Lambert and MG both have similar features - they usually manifest as weakness, either of limb muscles or eye movements, although MG more frequently affects the eyes.
MG is auto-immune, and has a characteristic antibody that can be detected in the blood (anti-cholinesterase), whereas Eaton-Lambert does not. The electromyogram findings can be similar in that they both show reduction in the muscle potential with repeat stimulation at low frequencies - the difference in Eaton-Lambert is that with high frequency stimulation, the potentials classically will INCREASE.
One other thing to note is that Eaton-Lambert is often associated with the presence of cancer - it's one of the 'paraneoplastic' syndromes. (+ info
how can massage help with a person that has Myasthenia Gravis?
How can massage help with a person that has Myastenia Gravis?
It can't. Massage has never been shown to help or cure any disease. Some people find it relaxing, and that's about it.
Isn't it strange that people who claim massage can cure disease can't actually back it up with any solid evidence? I can claim that snorting dirt cures Myasthenia Gravis all day long, but my worthless claim alone doesn't make it fact.
Where's the proof? It is too bad the other person answering cannot provide examples of specific research or growing body of evidence for massage. (+ info
Is it possible to get Myasthenia gravis in your heart?
Just wondering. I know that's how Christopher Robin Milne died, and I wanted to know if it goes so far as to affect organ-muscles as well.
On wikipedia it says :
Since the heart muscle is stimulated differently, it is never affected by MG.
By which mechanism do pistachios affect people with myasthenia gravis?
The nutrition guides say it should be avoided, but they don't tell me the reason!
Hi Christian B,
Myasthenia gravis is a neuromuscular disorder marked by a significant decrease in muscle contractility. Thus, normal muscle function is weakened. Since muscle function such as chewing is compromised, any hard foods should be avoided. If a person does not chew their food properly, the food could lodge in the windpipe causing severe respiratory distress or even death. The recommendation is a precaution to prevent the above mentioned scenario. Thanks.
Dr. Roshin (+ info
Myasthenia Gravis Information Is Greatly Welcome?
I was wondering if anyone could tell me ANY information regarding this condition, Myasthenia Gravis. A loved member of my family has it, and I would like to know all there is to know, any stories you might be able to share, and where major treatment facilities are located. Many thanks in advance.
It is an "auto immune disease" that affects transmission of signals from nerves to muscles.
The hallmark of MG is muscle weakness that increases during activity and improves after rest. MG often involves muscles that control eye and eyelid movement, facial expression, chewing, talking, and swallowing. usually the "thymus gland" will be defective in these people.
Today we have treatment for it(like thymectomy and medications). Most people can expect to lead normal or nearly normal lives. :-) Nothing to worry about! (+ info
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