Struggling to deal with the death of my father, Motor Neurone Disease!?

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I recently lost my dad to Motor Neurone Disease,
and im struggling to cope with it,
he was ill for a very long time, and i was heartbreaking seeingomeone i loved so much have to go through that!
i was wondering if anyone could give me some advice on what to do from now on, or could just give me some advice if they have been through it too,
would be much appreciated,
thanks x
First, please accept my sincere condolences. Your pain reaches out where others can feel it, too, so that your burden may be shared and lessened.

I have two suggestions for coping.

You could volunteer with, contribute to, or otherwise work for any groups who do research or help with programs dedicated to neurological diseases such as the Motor Neurone (or Motor Neuron) Diseases. In doing this you will help others, a thing that surely your father would have admired.

Here is an address to start with:

Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

The second suggestion stems from my own experience in my mother's death. She didn't suffer in the same ways your father undoubtedly did, but there were some things I wanted to do for her to make her proud of me and to have a richer life. Some such promises made both to her and to myself were fulfilled, but some others were not. In fact, I am still working on some of them.

For her funeral I wrote a short piece that was read by the minister. I offer here only the last five words. The gist of the item was to describe a woman of tough skin but warm, soft heart--a woman whom we loved but for whom recognition seemed insufficient for her subtle greatness. Thinking of how to honor her the best way possible, I chose to live my life better.

In living life better "...so doing you pay tribute."
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Carry on, friend. Make the world better in your father's memory, and you will be and feel better yourself.  (+ info)

My father is suffering from moto neuron disease. Is there any treatment for this disease?

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  (+ info)

I have been diagnosed with Behcet's Disease for seven years now, I have been having a motor like feeling in my?

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legs and in my arms, sometimes in my chest. I just had a EMG to rule out a nerve or muscle problem, the results came back ,no problems in those areas.Any idea what is causing this, it's not painful just uncomfortable.
My niece was recently diagnosed with that disease. The symptoms vary from person to person but its one of those diseases that might go away after many years. There is no real cure for it. You just have to monitor your symptoms and keep your doctors informed. You will have more than one doctor with this disease. And you will need one doctor to orchestrate the treatments with the other doctors. You will need to have your eyes checked regularly.

Go here for starters.
http://www.mayoclinic.com/health/behcets-disease/DS00822  (+ info)

what is motor neuron diseas?

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(ALS) THE NAME OF SUCH DISEASE
A group of disorders in which motor nerve cells (neurons) in the spinal cord and brain stem deteriorate and die. ...

The motor neurone diseases (or motor neuron diseases) (MND) are a group of progressive neurological disorders that destroy motor neurones, the cells that control voluntary muscle activity such as speaking, walking, breathing, and swallowing.

more on this click the links
http://en.wikipedia.org/wiki/Motor_neurone_disease
http://www.healthinsite.gov.au/topics/Motor_Neurone_Disease  (+ info)

has anyone found a cure for motor neurone disease yet?

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I've heard that noni juice may work and also Q10 might help. Has anyone sufferred from this terrible affliction. In the USA I believe its called LOU GEHRIGS DISEASE. Any advice would be very welcome.
Amyotrophic Lateral Sclerosis is the technical term. although there is no perfect cure, i know for a fact that there are several ways to slow down the process,  (+ info)

In terms of reflexes, how will you differentiate lower motor neuron problems with upper motor neuron problems?

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Upper motor lesions are often characterised by increased reflexes whereas lower motor neuron lesions have decreased reflexes.
However, during the acute stage of upper motor lesion, the client will initially experience a flaccid state of the muscle and decreased reflexes. With time(may be from hour to weeks), gradually they will experience an increased reflexes and tone.
Hope, this helps.  (+ info)

since dopamine is transferred to your body when smoking weed, does it do good to parkinson's disease sufferers?

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"The primary symptoms are the results of decreased stimulation of the motor cortex by the basal ganglia, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the brain." -Wikipedia

my grandfather has parkinson's disease, but is really chill. would him smoking weed help his disease at all? because parkinsons is a disease that is caused by "insufficient formation and action" would smoking pot help him?
The answer is maybe.

Dopamine does not transfer to the body because of smoking marijuana, however. The short version is that higher doses of grass can indeed cause more dopamine to be released in the brain. The problem is that higher doses at sustained levels can also be not only self-limiting but also can produce or aggravate symptoms of PD.

http://www.scienceclarified.com/Io-Ma/Marijuana.html

That said, low doses can produce a feeling of well being, assist breathing and relieve some of much of the pain of Parkinson's patients as caused by the muscle rigidity which is a prime symptom of PD.

There has been a longer history of using marijuana to treat Parkinson's disease. It is not a cure and it doesn't impact many symptoms but since one of the often unspoken symptoms is pain, I don't think it should be overlooked.

A number of states now include Parkinson's disease on the medical marijuana list.
http://parkinsonsfocustoday.blogspot.com/search?q=marijuana

One thing you will read in the articles at the above site is that far from leading your grandfather astray, it may reduce his reliance on certain far stronger medications...depending.

If your grandfather is not too uptight, get him a one-hitter and show him how to use it.

Oh yes, one last thing, while marijuana smoking in serious intensity can cause the same lung issues as smoking tobacco, this is not a concern here. There are plenty of "old" tobacco smokers. One reason that you don't see that many with PD is that tobacco smokers do indeed appear to have a lower incidence of Parkinson's.

Addendum:
Your grandfather might also benefit from hemp oil. It can be used as a salad dressing. Hemp seed butter can be used just the way it sounds or actually mixed with butter. While there is vitrually nothing little left to give you a high, there is plenty of nutritional value here in providing the right kinds of essential fatty acids. Should be used daily.
http://www.manitobaharvest.com/nutrition/index.asp?itemID=73  (+ info)

Scared I have Motor neurons disease?

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Hey guys,,
I'm 23 years old. When I was 19 ...I went to emergency room feeling weakness,head pressure etc .... It was awful. It lasted for 3mths and I was told it was panic attacks.

Recently I have been really clumsy... I knock over my cup all the time etc.. Sometimes at night my face feels numb and my arm ...I'm not sure if this is anxiety or not. I also have muscle spasms.

Should I be worried?
.  (+ info)

can someone tell me about motor neurone disease?

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General information about it.
What are the results of it?
what are the effects of it?

just want to know really i dont have it,but i want to know about it.
do you know anyone who has it?
x
The motor neurone diseases (or motor neuron diseases) (MND) are a group of progressive neurological disorders that destroy motor neurones, the cells that control voluntary muscle activity such as speaking, walking, breathing, and swallowing  (+ info)

anyone know about motor neurone disease?

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Just a few questions.

1) I have had a twitch in my calves for 5 weeks and can still stand on my toes and heels. I hear you have to be weak first then the twitches come, is that right?

2) If twitches can come first how long does it take for weakness to kick in?

3) I can raise myself from the seat on my toes is that a good sign of strength?
Sadly my mother died from this horrible disease, there are two types one that starts with your body first and the other is the reverse where you loose your speech and swallowing first, my mother had the reverse, you must see a doctor about your concerns as it could be anything, its too early to tell and twitches could be a number of things so please see your doctor and good luck lets just hope its not that.  (+ info)

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