My mom has Lupus and Rheumatoid Arthritis. Can I be home bound to take care of her?

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She has lupus seizures and seems to be very unstable when she has these. I can't focus in school because of this. My counselor at school knows about my mom and she has brought up homeschooling before. So what do I do?
Talk with your counselor about the rules concerning home schooling where you live. Who is qualified to help you and teach you things you don't understand? Will the school send a tutor? What is the process for getting approved to home school where you live? Will institutions of higher learning accept your diploma if you are home schooled? Will you have to take a high school equivalency test? What are your future plans?

Have an honest discussion with your mom. She may not want this for you. She might feel guilty and stressed that you are giving up your normal school experience, and stress makes both diseases worth. Your mom gets to be part of this decision. She is sick, not a baby.

There are many considerations. I suggest that you talk with your mom. If she agrees, then have a meeting with your counselor and your mom together.   (+ info)

What are the risks with pregnancy when you have lupus?

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I have lupus and I would really like to have children. My doctor told me that I would be considered a high risk prenancy if I could even concieve at all. What are some of the risks and why?
Ok, I have Lupus and APS. For me I have to take Lovenox and aspirin through out my pregnancy to keep from clotting.

Yes, it is concidered a high risk pregnancy but, if following by a rheumatologist and perinatologist many women go on to have sucessful pregnancies. Conception issues tend to run with APS but not with Lupus.

Although a lupus pregnancy is considered high risk, most women with lupus carry their babies safely to the end of their pregnancy. Women with lupus have a higher rate of miscarriage and premature births compared with the general population. In addition, women who have antiphospholipid antibodies are at a greater risk of miscarriage in the second trimester because of their increased risk of blood clotting in the placenta. Lupus patients with a history of kidney disease have a higher risk of preeclampsia (hypertension with a buildup of excess watery fluid in cells or tissues of the body). Pregnancy counseling and planning before pregnancy are important. Ideally, you should have no signs or symptoms of lupus and be taking no medications for at least 6 months before you become pregnant.

Pregnancy counseling and planning before pregnancy are important.

You may experience a mild to moderate flare during or after their pregnancy; others do not. Pregnant women with lupus, especially those taking corticosteroids, also are more likely to develop high blood pressure, diabetes, hyperglycemia (high blood sugar), and kidney complications, so regular care and good nutrition during pregnancy are essential. It is also advisable to have access to a neonatal (newborn) intensive care unit at the time of delivery in case the baby requires special medical attention.  (+ info)

What is the life expectancy of a person with CRF, lupus, and pulmonary fibrosis?

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My sister-in-law has all three diseases. She has had lupus since 1999, renal failure and pulmonary fibrosis since 2006. She now weighs a small 59 pounds at 36 years old. Everywhere I research and every doctor I ask can not give me an honest answer. All I am told is her "quality of life" speech. I need some answers. How much longer can she expect to live? Please no insulting remarks from anyone.
The weight coupled with the diseases doesn't sound good at all. If her weight continues to drop her life expectancy is shortened dramatically. Prayers with your family.  (+ info)

How do you describe Lupus to someone?

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I was diagnosed with Lupus last summer. I was engaged a the time, and would have hoped my fiancee (now husband), would have researched it a little, but I really don't think he understands what I deal with on a daily basis. How can I get him to understand that there are days when I can barely drag myself out of bed?
Sorry to hear you have Lupus , so does my daughter. She got it when she was a teen and she's 31 now. I describe it by saying the body is turning on it's self. That's what is happening. It's a chronic inflammatory disease. Your immune system loses the ability to tell the difference between foreign substances (antigens) and it's own tissues and cells. Do you have DISCOID or Systemic? Contact your local Lupus Foundation for free information. Also Internet http://www.lupus.org I wish you all the luck and keep your chin up and be a fighter. My prayers are with you. You can contact me if you like.  (+ info)

How likely is someone to die from lupus?

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My dad has had lupus for 2-3 years now. So far, it has affected his muscles, joints, and caused him to be tired, sensitive to sunlight, and has affected his kidneys. Because it has affected one organ, would it most likely affect others?

Does anyone know of statistics for the death rate of this disease?

Also any general or treatment info would be great.

Or if you have Lupus.. It would be great to read your story.

Thanks,
Ashley
Sever lupus can be life threatening.

Healthy helpful steps to prevent lupus flares include:

* maintain a healthy diet
* get enough rest and quiet
* pay attention to your body
* moderately exercise when possible
* limit the time you spend in the sun
* develop coping skills to help limit stress
* learn to recognize when a flare is coming
* slow down or stop before you get too tired
* learn to pace yourself by spreading out work and other activities
  (+ info)

Is it possible to have lupus and not have the butterfly rash?

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Also, my doctor said he thinks my problems could by autoimmune like lupus because I show so many symptoms that match that and only predisone helps my symptoms, but my autoimmune test came back good, does anyone have any suggestions on what avenues to take to figure this out and how to get a diagnosis?
There are four different types of lupus: one that affects skin, one that affects the body, one that happens to newborns, one that is caused by certain medications. Not everyong get the rash. I never had the rash but the lupus affected my organs.

5% of people with systemic lupus (that affects the body) will have a negative anti-nuclear antibody test. This is documented in the medical text book "Systemic Lupus Erythematosus" by Dubois, and in "The Lupus Book" by Daniel Wallace MD.

Lupus is difficult to diagnose because there is no specific test. You need to see a rheumatologist. Most general doctors do not have the training to make an accurate diagnosis.  (+ info)

What are some great ways to hide my hair loss from Lupus?

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I have Lupus. I'm having a flare up so my hair is really thinning.
I look terrible in hats, what else can I do? What about hair extentions?
I know exactly how you feel. I have thick hair so its not as noticeable but I have found that if you don't have bald spots yet then brush over and spray with a good alcohol free hairspray. Or you can use a real pretty scarf to wrap your hair. The thing about hair extensions is they are expensive and they don't last forever. Our hair ( Lupus patients) go's when it pleases so if we spent a gob of money on them and all of a sudden we are missing a clump we are really going to be upset then. But you should do what you feel is the Best. If your not comfortable and you want them ,you do what you want. This is all on how you feel. Good Luck  (+ info)

How can my friend treat her Lupus without gaining weight on the Corticosteroids?

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My friend has Lupus and is so very weak from the disease. When she takes the steroids they give her then she gains alot of weight - and she hates that. Any other options?
Yes there are many option in her fight the main thing she wants to do is start taking grape seed extract. It has the most powerful antioxident known to man. It will help to stop her body from attacking itself because it gets rid of the free radicals that are causing the miscomunication in her body. Plus it is also a antiinflamitory. If you want more info look me up on messenger.  (+ info)

What happens if a person with lupus gets pnuemonia?

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If a person who has lupus becomes ill with pnuemonia, what can happen and what sort of treatments would they receive, and for how long?
All infections must be treated aggressively in lupus patients. Uncontrolled infection is one of the leading causes of death in lupus patients, along with cardiovascular events and kidney disease.

The other person who answered was correct, the type of treatment and length of treatment depend on the type and severity of the pneumonia.

The patient should discuss the pneumonia vaccination and flu shot with his or her rheumatologist, avoid people who are obviously sick, and use hand sanitizer liberally and often. Prevention is extremely important. It is not recommended that lupus patients get vaccinations with weakened live viruses (the nasal spray flu immunization is a live vaccine)

With lupus, it's always better to be safe than sorry. Call the doctor at the first sign of sickness!  (+ info)

How can a person know how long they have had Lupus before they were diagnosed?

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I have just been told that I have Lupus SLE and was wondering if anyone knew how to tell how long you have had it, before it was detected? I can't remember ever having any of the symptoms before, but I have read a lot of articles that stated that some people were misdiagnosed for 5 to 7 years before they found out that they had Lupus. Thanks for any help you can give me!
I don't think there's any way to be certain how long you've had the disease before being diagnosed. Lupus is very hard to diagnose because the early symptoms are so mild that they are dismissed as just "normal" illnesses. Some of the warning signs are persistent colds, headaches, joint pain, rash, swollen lymph glands, extreme tiredness, and depression that don't respond to medication or treatment. Most times these things are blamed on stress. My daughter suffers from Systemic Lupus. It took several years for her to be diagnosed. By then the disease had progressed and symptoms became more apparent. I am sorry to hear of your diagnosis. If I can be of any help to you, please feel free to email me. I know what you're going through and I can probably answer a lot of questions you might have. If ever you need a friendly ear, I'm available.  (+ info)

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