Who has experiences w / Long QT Syndrome?
My boyfriend has LQTS and I was woundering what I need to do in case of a situation? If he goes in arrest I do CPR right?
We have a really active life style. Running every morning (uphill), swimming, sex, skiing ...our life is anything else than calm or boring.
This is so new for us both and so scary! No insurance does want to cover him anymore! Is anybody out there who has the same and can give advise? We are both in our mid-thirties and very healthy and active.
Thank you.
Thank you :) He is on medication. How much lower is the risk of cardiac arrest if he is on meds? Is it 0 or 50% or 80%???
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We have been diagnosed with genetic tests with LQTS. I am an RN by education, and know tons about LQTS, as our 22 year old daughter, died from an undiagnosed case.
You can find tons of Information at:
www.sads.org
Also the drugs to avoid when you have been diagnosed with Congenital LQTS at:
www.qtdrugs.org
I belong to a group that is trying to save youth from sudden cardiac arrest. It is called Parent Heart Watch.
You can find us at: www.parentheartwatch.org
Anyone can join who is interested in raising awareness of these totally treatable heart conditions that can strike people down even when they are young, when left untreated.
How can I give you my contact information without it appearing on the Internet?
I would love to answer your questions.
What area of the country do you live in?
No one could give you a % I don't think of how much the meds will help lower the risk.
Has he had genetic testing with Familion?
The reason I ask is the LQT-3 gene, does not respond to beta blockers, and those people who are symptomatic usually need the placement of an ICD, to be totally safe.
It is probably important that he be tested to be sure he does not have type 3.
I have been found to have the LQT-2 gene, which has now been associated with seizures. It could explain sudden death from "seizures" when the victim does not sustain a head injury during the episode, but still dies anyway. This could fit the profile of the Jett Travolta case.
I think you can E-mail me through my profile information.
Hope that helps. (
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Whats the difference between Long QT and Short QT Syndromes?
As far as clinical significance is concerned, the difference is marginal. If the duration of QT is short, it is short QT syndrome and vice versa with the long QT version. An overview:
The "QT" interval is found on an electrocardiogram (ECG). The QT represents the electrical activity of the heart. It is measured from the initiation of the QRS complex to the end of the T-wave.
The duration of the QT-interval in normal people at a heart rate of 60 beats per minute is between 350 and 440 milliseconds.
# Short QT Syndrome: Short QT Syndrome (SQTS) is a congenital abnormality in the electrical activity within the muscle cells of the heart. SQTS is named because of it diagnostic characteristics on the electrocardiogram (ECG). In patients with SQTS the duration of the QT interval has been between 210 and 340 milliseconds.
The short QT-interval found in SQTS increases the risk of an arrhythmia originating in either the small chambers of the heart (atria) or in the big chambers of the heart (ventricles). The two arrhythmias of concern in patients with Short QT Syndrome are atrial fibrillation and ventricular fibrillation.
# Long QT syndrome (LQTS): is a congenital disorder characterized by a prolongation of the QT interval on ECG and a propensity to ventricular tachyarrhythmias, which may lead to syncope, cardiac arrest, or sudden death.
Arrhythmias also can develop for no known reason in people who have LQTS. Not everyone who has LQTS develops dangerous heart rhythms. However, if one does occur, it may be fatal.
Acquired, or noninherited, LQTS may be brought on by certain medicines or other medical conditions. (
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How do I prevent my prolonged QT syndrome from getting any worse?
I am a 14 year old girl who has just recently been diagnosed with prolonged QT syndrome. I have been recovering from Anorexia and Bulimia, which has caused this syndrome. Many people in y direct family have weak hearts and have gone into Cardiac Arrest. I do not know how how the medication is going to work on me and have not begun treatment yet. My doctors are seriously considering a Defibrillator. Should I get other ideas before this? Is there anything else i can do?
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It never hurts to get a second opinion. You don't mention which medication you haven't started yet. Whatever it is, I say, try it and see, but trust the opinion of your doctors. If they are considering a defibrillator, go with that. It can and will save your life. And you know that you HAVE to give up anorexia and bulimia, don't you. Is this the treatment you mention? If you are at the point of needing a defibrillator, your heart will absolutely NOT be able to endure ANY more anorexia or bulimia. You'll die if you indulge anymore. You do get that don't you. Your doctors are trying to save your life. I want you to let them. And good luck to you. (
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What is the best way to accurately diagnose Prolong QT Syndrome, and should I take LQT seriously?
My younger sister was diagnosed with LQT after having sudden bout of seizures with landed her in the hospital. With monitoring it was detemined that she need a defiblirator. I have since had an ECG with show a slightly over the normal range QT. I have never passed out or had any symptoms and I am just not sure how seriously I should persue this Prolong QT diagnoses? It just seems that I am going to all these doctor appts but no one can really say that I have LQT Syndrome with out having genetic testing. Besides and ECG, are there other test that can be done to determine if I have LQT.
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The long QT syndrome (LQTS) is a heart disease in which there is an abnormally long delay between the electrical excitation (or depolarization) and relaxation (repolarization) of the ventricles of the heart. It is associated with syncope (loss of consciousness) and with sudden death due to ventricular arrhythmias. Arrhythmias in individuals with LQTS are often associated with exercise or excitement. The cause of sudden cardiac death in individuals with LQTS is ventricular fibrillation.
Individuals with LQTS have a prolongation of the QT interval on the ECG. The Q point on the ECG corresponds to the beginning of ventricular depolarization while the T point corresponds to the beginning of ventricular repolarization. The QT interval is measured from the Q point to the end of the T wave. While many individuals with LQTS have persistent prolongation of the QT interval, some individuals do not always show the QT prolongation; in these individuals, the QT interval may prolong with the administration of certain medications. (
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How long would Guillain–Barré syndrome take to show up in someone after an injection?
How long would Guillain–Barré syndrome take to show up in someone after an injection?
So lets say someone got a swine flu shot, and they contracted GB syndrome, would they be able to be diagnosed right away? or would GB take a while to take effect?
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Guillain-Barré syndrome is rare. Usually Guillain-Barré occurs a few days or weeks after a person has had symptoms of a respiratory or gastrointestinal viral infection. Occasionally, surgery or vaccinations (any vaccinations) will trigger the syndrome. It can develop over the course of hours or days, or it may take up to 3 to 4 weeks. Most people, however, recover from even the most severe cases of Guillain-Barré syndrome, although some continue to have some degree of weakness. (
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How long does it take for Toxic shock syndrome to affect you?
3 days ago, I left a tampon in for 15 hours. I feel fine (no fever or rashes) but I got this light brown discharge. This discharge just stopped today, but my private area smells terrible. I know toxic shock syndrome is rare, but how long would it take to affect me? and because of the terrible smell, I might have some kind of bacteria growth. What should i do about that?
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you have an infection probably,, see a doctor (
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How long can polycystic ovarian syndrome last?
I was diagnosed with polycystic ovarian syndrome at the age of 27. I've just turned 33 and still continue to have acne breakouts even though I take the pill, Yasmin on a regular basis. I never had acne until I was 27 and soon found out I had poly cystic ovarian syndrome. How long can this condition last, am I doomed to have acne and poly cystic ovarian syndrome until my cycle ends sometime in my 50's?
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Well I am 20 and I have had it for a year. I believe you will have it for the rest of your ovulating life but there are meds you can take for it. One popular one is Metafomin. Go to your OBGYN and get on meds they help:) Good luck! I have one question tho...Have you had kids since you were diagnosed? Message me back. (
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how long will my restless leg syndrome last after i quit taking percocets?
i have degenerate disc disease and i was taking percocet for the pain. ive weaned myself down to 3.75 twice a day. Tonight im quiting cold turkey. how long will my restless leg syndrome last?
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Try drinking tonic water to calm the restless leg syndrome. The quinine in the tonic is what calms the legs. (
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Asperger Syndrome Diagnosis: How long does the process take to be diagnosed for Aspberger's Syndrome?
I am an adult male who was told by a healthcare professional that it would be wise to seek a formal diagnosis for Aspberger's Syndrome. In seeking this diagnosis, I consulted a large University Personality Disorder program. Although it took several months to get an appointment for an interview and testing, and it was very expensive, it seemed worth the wait and non-insurable expense. The Doctor provided me with a "provisional diagnosis" of Aspberger's Syndrome, but details of this diagnosis were to be disclosed with my results report, within five weeks. The Doctor was quick to offer me enrollment in some of the University's group therepy sessions, for an additional fee, but other than this "provisional diagnosis" no results have yet been delivered. It has been over three months since I had this testing, and despite several reminders to this Doctor, I have not yet received any results. Is this typical? How long should the results of such a diagnosis report take?
Is it wise for me to hold off on spending any more money with this University on any of the other programs that they offer, until they deliver the original report/diagnosis that I already paid for?
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Hi Curious:
Well you have been patient and you deserve your medical records such as they have. If they were promises in a month, then the month is up long ago and the results must be supplied to you, NOW.
If the distance is close and you van go to the university in person and speak to the MD about obtaining your results and not leaving (nicely) till you get them, then that is what I would do.
You have invested your money, time and emotional health past and present for these results and the university has received what they wanted also, payment for services rendered and research testing results. What is fair is fair, what is right is right.
For a diagnosis of Aspergers, it can take lots of time, mostly foir a child as there is no history to go by. To diagnose an adult as an "Aspie" or a diagnosis of Aspergers is much easier and shorter in time length than a child as being an adult you are able to answer questions on your social/educational history.
From what you have written, it appears to me that you have spend more than enough time and then the additional time, money, emotions with the university. You should have a diagnosis by now. Since the university MD has stated that you have a "provisional" diagnosis at this time, then odds are that it is a positive diagnosis as it is unusual that a provisional diagnosis be given with out substantial reasonings and results. But keep fighting and demand that report as I am sure there will be information in there that your treating MD would welcome to have.
Be safe and be well (
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Can a potassium level of 3.1 cause arrythmias and long QT interval?
I have had episodes of feeling lightheaded and some near fainting. Also diagnosed orthostatic hypertension, low potassium, and low volume? My ECG showed repolorization disturbances, arrythymias, and a long QT interval. My dad and grandma both had similar problems and eventually started passing out and had to have pacemakers. Could mildly low potassium cause all those problems or do I need to see a Cardiologist?
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I would see a cardiologist it sounds like you really need to have a 24 hour halter monitor to see how your heart is beating now for an extended period during your daily activities and all the things like that. try eating a banana every day and some orange juice it will help with your low potassium. Also you need to be careful low potassium can cause all kinds of problems including kidney failure, leg cramps, heart attack, delusions, and confusion. trust me I would go To the doctor (
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