liposarcoma?
A liposarcoma is a rare type of soft tissue sarcoma that develops in the fat tissue. They can develop anywhere in the body, but most often appear (as soft lumps) in the thigh, behind the knee, or in the abdomen. These types of tumors can grow quite large and bulky and can metastasize.
There are four different types of liposarcoma (well differentiated, myxoid, round cell and pleomorphic) . Your doctor should be able to tell you which type you have.They generally occur in adults between the ages of 50 -65. Some liposarcoma's are slow growing, others are not. It is critical that you discover which type of liposarcoma you have. Complete surgical removal with good margin is the preferred method of treatment, but much depends upon the grade and stage of the cancer.
If you are seeking information about the disease there are sites on the web, as well as support groups that can guide you.
http://en.wikipedia.org/wiki/Liposarcoma
http://www.cancer.org/docroot/cri/content/cri_2_4_1x_what_is_sarcoma_38.asp
Liposarcoma Support Group
http://listserv.acor.org/archives/l-sarcoma.html
Sarcoma Alliance
http://www.sarcomaalliance.com/ (
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Liposarcoma?
...of the intestines.
A friend has this, was operated on and it came back. After two surgeries on it...how long can you live with this disease? I don't even know what it is.
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Sarcoma is a cancer of the muscles, tendons, ligaments, bone, soft tissue, or fat . . they are life threatening cancers because they are aggressive and because they frequently reoccur . . further there is little research done on sarcoma and treatments lag far behind other types of cancer. It is a devastating disease and it predominately strikes teens and young adults.
It is difficult to say what the situation is with your friend . . survival will depend on the patients overall health, age, response to initial treatment, location of the tumors, stage of disease, grade of tumor . . and whether your friend is being treated at a sarcoma center or by a sarcoma specialist.
Sarcoma is rare and should always be treated by an oncological sarcoma specialist or better yet at a sarcoma center. You can locate information about sarcoma from the Sarcoma Alliance . . and find others who have the same type of disease:
http://www.sarcomaalliance.com/
List of Sarcoma Cancer Centers
http://www.sarcomaalliance.com/centers.html
Liddy Shriver Initiative: Liposarcoma
http://liddyshriversarcomainitiative.org/Sarcomas/liposarcoma.htm
ACOR: The liposarcoma (cancer) Online Support Group
http://listserv.acor.org/archives/l-sarcoma.html
http://www.cancerlynx.com/liposarcoma.html
What is a liposarcoma?
http://www.cancerbackup.org.uk/QAs/SofttissuesarcomasQAs/AllQAs/related_faqs/QAs/374 (
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What would cause low grade liposarcoma to upgrade to high grade liposarcoma?
I would like to know as I get them, quite often, and I want to keep aware.
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Jamie - While it is possible for a low grade liposarcoma to "upgrade" to a high grade tumor, it is very rare, and does not truly happen very often. Most low grade tumors remain low grade. What many do not know is that a tumor may initially have both areas of high and low grade present at the same time. If the tissue removed and examined by the pathologist under the microscope is low grade, there may be other tumor areas not sampled where it is high grade so that thereafter the hidden high grade part then grows and gives a more malignant diagnosis when later examined. Tumors are cells often growing in a haphazard way. At times, low grade cells may irregularly divide and form more malignant high grade cells. Patients with low grade tumor diagnoses need to be carefully observed after initial treatment(s), and hopefully will not develop high grade changes in any tumor that might still be left behind. The outlook must be guarded and hopeful. (
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How common is liposarcoma of the thigh?
How many people does it affect? Do you know if it is possible to have a huge hard fat tumor in the thigh for a decade and it not be cancerous?
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Check out wikipedia for info on liposarcoma and related links. You might stumble across what your looking for.
http://en.wikipedia.org/wiki/Liposarcoma (
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Because of liposarcoma, my quadriceps were removed and my knee hurts all the time. Can anyone help. ?
Surgery was 10 years ago. I am still in constant pain and find that movement is getting worse because of pain in the knee. Results of tests indicate that there is nothing substantially wrong with the knee. I have seen many specialists, including sports medicine doctors, and no one can help. In the meantime, there is less and less movement possible because of the pain. Also, I have moderate lymphodema. Has anyone experienced this situation? Does anyone have a solution?
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There are several online sarcoma support groups that may be able to offer you suggestions or ideas to take care of your pain.
ACOR: The liposarcoma (cancer) Online Support Group
http://listserv.acor.org/archives/l-sarcoma.html
Sarcoma Alliance
http://www.sarcomaalliance.com/anyboard9/forum/index.html
ACOR: The General Sarcoma (Cancer) Online Support Group
http://listserv.acor.org/archives/sarcoma.html
Livestrong: Cancer Survivors and Chronic Pain
http://www.livestrong.org/site/c.khLXK1PxHmF/b.2660619/
Good luck to you. Hope you can find answers soon. (
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Abdominal Liposarcoma...anyone know anyone who survived it, had it, or how long one can live with it?
My friend's hubby has it and has had 3 ops and lost a kidney already. Can one live with it, how long?
3 ops in 2 years, age 64
3 ops in 2 years, age 64
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3 operations and losing a kidney doesn't sound very good - but over what time period?
Sarcomas have different grades as well as different stages.
High grade sarcomas usually progress faster than low grade disease.
Liposarcomas also have at least four different histologic types.
This sounds like advanced stage disease, but we don't know the details.
Is there liver involvement? Are there lung metastases?
How much weight has he lost? What is his age and overall health? How bulky is the residual tumor? How fast does it appear to be progressing? All of these factors are important.
People often push us to make predictions, and we usually wind up being wrong since we can only use averages or quote ranges of survival times that have been observed for other people. Few people fall right at the average in survival time. We don't see many abdominal sarcomas in oncology since it is fairly rare. Each person is different.
The best person to guess is the oncologist who knows the entire case, and he or she will not want to make guesses. Often oncologists are pushed repeatedly to guess. We simply do not know. No one can know the precise future in this case.
Also, the person to be asking this question is the patient and his family. There are privacy issues involved. Doctors must respect the patient's wishes as far as releasing any medical information - even predictions or guesses.
Here's a fairly good internet link for your review.
http://emedicine.medscape.com/article/391272-overview
There are about 9500 soft tissue sarcomas each year in the U.S.
About 1 in 7 is a liposarcoma, and only a fraction of these are abdominal,
so there might be 1000 cases per year in the entire USA.
That compares with 184,000 breast cancers and 215,000 lung cancer cases out of a total of 1,437,000 cancer cases per year (excluding skin cancers).
Bottom line - this situation is not very common. (
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Abdominal Liposarcoma...anyone know anyone who survived it, had it, or how long one can live?
My friend's hubby(age 64) has it and has had 3 ops in 2 years and lost a kidney and spleen and had a stomach ressection.
No liver involvement.
No lung metastases.
He's really skinny.
He thinks he was misdiagnosed 4 years ago after lots of tests.
Can one live with it, about how long?
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Any sarcoma diagnosis requires the expertise of a sarcoma specialist. Hopefully your friends husband is being treated at a sarcoma center?
Survival from this type of sarcoma will depend on the patients age, overall health, type and location of tumor, grade (low or highly aggressive), stage, and the patients first response to treatment.
Is he is remission or still in treatment for the cancer? Was the cancer metastatic. More and more oncologists are seeking out a medication to control the cancer rather than 'cure' it for patients with metastatic disease.
He may want to join a few support groups for more information about the disease:
Online Liposarcoma Support Group
http://listserv.acor.org/archives/l-sarcoma.html
Sarcoma Alliance
http://www.sarcomaalliance.org/Main.html (
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Has anyone been diagnosed with Liposarcoma cancer?
Liposarcoma is a rare cancer. You can find others with the disease at the Sarcoma Alliance, many post there on the bulletin board:
http://www.sarcomaalliance.com/Main.html
You can also visit the ACOR email list:
The Liposarcoma (cancer) Online Support Group
http://listserv.acor.org/archives/l-sarcoma.html
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what parts of the body is in the Retroperitoneal? Where are Retroperitoneal Liposarcoma typically located?.?
The term refers to the abdominal cavity and all the organs behind the peritoneum (membrane that separates the skin, fat, from the abdominal cavity). In the situation of a retroperitoneal liposarcoma . . the disease is located within the abdominal cavity . . lipo refers to fat .. and a sarcoma is a type of cancer . . so retroperitoneal liposarcoma is referencing a fat based sarcoma located somewhere within the abdominal cavity (growing on top of an organ or behind a structure or attached to the peritoneum.
http://www.cancer.gov/Templates/db_alpha.aspx?CdrID=44257
Sorry if that is confusing. If you know someone who has Liposarcoma you should make 100 percent certain that they are being treated by a sarcoma specialist or at a sarcoma center. Only a specialist should treat liposarcoma. You can locate a specialist from the Sarcoma Alliance or online support groups will point you in the right direction.
The liposarcoma (cancer) Online Support Group
http://listserv.acor.org/archives/l-sarcoma.html
Sarcoma Alliance
http://www.sarcomaalliance.org
Liddy Shriver Sarcoma Iniative
http://sarcomahelp.org/
Sarcoma Directory
http://www.protopage.com/sarcoma
Best of luck. (
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my mum has liposarcoma ?
my hum has been diagnosed with liposarcoma and is going to have chemo therapy i am wondering if there is anyone out there in australia that has been through or going through liposarcoma she really wants someone else to talk to that is in the same situation or been through it. my mum is only 42 and is the healthiest person i know, why dose cancer get the good people and not the bad? can anyone help??
no mum is really skinny she has never been over weight
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Your mother can find support online at the Sarcoma Alliance where many patients all over the world talk with each other on their message board. She may also find support at the online ACOR email group fro Lipsosarcoma. Liposarcoma is a rare cancer and your mother needs to be treated by a sarcoma specialist, hopefully she can find someone in her area of the world who can help.
ACOR: The liposarcoma (cancer) Online Support Group
http://listserv.acor.org/archives/l-sarcoma.html
Sarcoma Alliance
http://www.sarcomaalliance.com/Main.html
http://www.sarcomaalliance.org/cgi-executables/anyboard.cgi/anyboard9/forum/-=ab=-/index.html?cmd=retr&vf=aW5kZXguaHRtbA%3D%3D
Sarcoma Post Its - comprehensive sarcoma directory
http://www.protopage.com/sarcoma
Good luck to your Mom.
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