My 75 yr old grandmother had hysterectomy and biopsy showed leiomyosarcoma.?
Now about 10 days later a USG was clear. She didnt feel like eating and started having pain in left leg due to which she culdnt sleep. another USG showed a mass in the left lumbar region and a biopsy was advised but the doctor says that he would like to start the chemo rightaway, though we are looking for a second opinion but I would be glad if some of you cud help.
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Hi noway,
I will try my best to explain it as simply as possible.
It is a neoplasm (new growth of cells) of the smooth muscle. The word itself when broken down means:-
Leio = smooth
Myo = muscle
Sarcoma = fleshy growth.
The smooth muscle cells make up the involuntary muscles.
The treatment will depend on how advanced it is ie: If it has spread to nearby lymph nodes or other parts of the body.
They will examine the tissue under a microscope and will then know if it is low grade or high grade.
If it is in a suitable place it can be removed surgically. Alternatively treated with radiotherapy and/or chemotherapy.
Your GP is being very thorough and helpful in wanting her to commence radiotherapy immediately. The waiting process for results will then not be wasting critical time if it turns out to be positive.
I am sorry I can't wave a magic wand and have her returned to health, but I can offer you and your family my love and good wishes fer her speedy recovery.
Please get in touch if I can offer any more help.
Lots of love.
Mel. (
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Leiomyosarcoma cancer, any helpful information?
Any sites on the leiomyosarcoma, anyone who knows surviors, or survior rates. Any information at all.
They found a malignant bump on his cheeck on his rear end and also on the back of his neck ... he doesnt know how long he has had it. he is around late 70s to 80 years old he is my grandfather and has a heart and body of a bull so other then the past few bumpshe has been very heathly
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http://www.webmd.com/cancer/leiomyosarcoma-general
http://www.leiomyosarcoma-cancer.com/articles/leiomyosarcoma-diagnosis/index.php
It would help greatly to know the ;location of the leiomyocarcoma since they can affect basically any smooth muscle area of the body and present different problems in each site. Also the stage and grade are extremely important details.
Leiomyosarcomas are not one disease. There are many variables.
Much better to look up soft tissue sarcomas
http://www.nlm.nih.gov/medlineplus/softtissuesarcoma.html
http://www.mayoclinic.com/health/soft-tissue-sarcoma/DS00601
I like the Mayo Clinic site (last one) (
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i have leiomyosarcoma. a very rare cancer. need help from experts.?
im rafael, my mom was just diagnosed with leiomyosarcoma. a very rare cancer. shes 48 yrs old female married with 2 children. me 24 and my sister 19. the tumor was already removed along with TAHBSO. where can i ask for a second or third opinion. im from philippines. can i send the specimen to a cancer institute? and where?
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Here is the web address of the ACOR leiomyosarcoma support group. This is a world wide support group sponsored by the Association of Online Cancer Resources (non-commercial) that sponsors support groups for many types of cancer. The leiomyosarcoma group currently has 775 members who either have LMsarcoma or are caregivers for people afflicted with it. You can read their emails, compare notes with people going through the same treatments and if you choose to do so, make contact with other group members. The ACOR groups are monitored to keep out spammers and snake oil salesmen. Reading their Archives would give you a wealth of info about how people around the world deal with LMS and also where the cutting edge Drs and research can be found. good luck to you both
http://listserv.acor.org/archives/l-m-sarcoma.html (
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Suggested histogenetic type probably leiomyosarcoma.. What is this??????
Histopathology report goes as under:
Low to intermediate grade spindle cell sarcoma, showing focal necrosis. Mitotic count is 2-3/10 HPF. Immunohistochemistry results: Tumour cells are negative for CD-34 and S-100 protein. Suggested histogenetic type probably leiomyosarcoma. This is the report issued by a Renowned Cancer Institute. The patient was having a lump in the thigh which was operated. The Histopath report was done after the operation. My question is... How serious is this? What is the treatment the patient has to undergo from now on?
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Take a look at the websites below for more information. I can decode some of that for you. I can't tell you how serious it is...you need to find a doctor who will talk to you and explain things.
Leiomyosarcoma is a rare cancer that affects smooth muscles. Low to intermediate grade is not as bad as advanced, so that part sounds positive. Focal necrosis means there is a part of the tissue sample that shows cells that are dying. I can't tell you what that means in the overall picture. The mitotic count is a measure of how many cells in the sample are dividing. HPF means high power field. I'm taking this to mean that when they looked under a high power microscope, 2-3 out of 10 cells were dividing. I can't give you a reference number for what is normal, but in general, more cells dividing would indicate the tumor is growing faster than a low number.
Immunohistochemistry means staining the cells in the sample with markers to see what kind of cells they are. CD34 is a marker for undifferentiated cells. S-100 is another marker, but I can't tell you exactly what it indicates. The presence or absence of markers can mean either good or bad news, but I don't know exactly how these are used here and I don't want to guess.
That doesn't really answer your questions, because you really need a doctor who knows this case to tell you what to expect. I hope that makes it a little less mysterious, but I'm afraid it's not much help. It makes me sad to think that someone would just hand you this report and not give you some help in understanding what is going on. Sometimes hospitals have a social worker who is there to translate the medical jargon into things you really want and need to know. Ask if there is someone like this. I hope it's a good outcome. Good luck. (
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WEB MD leiomyosarcoma define?
what is the treatment, the stages and the prognosis.
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Just type in the search engine leiomyosarcoma, leiomyosarcoma staging, leiomyosarcoma treatment, and leiomyosarcoma prognosis. Since it is cancer of the smooth muscle...that is very non-specific, so I don't see how you could give a prognosis, but I might be wrong. But you should try to do your own homework for nursing school. (
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My Mum has leiomyosarcoma metastized to lung, she's positive cKit, she's on Gleevec now?
hello. just wanted to say hi and that you're not out there alone with this. my mom has leiomyosarcoma metastized to her lungs as well. (originated last year in her leg- radiation in nov/dec then surgery in jan06) currently undergoing chemo and in the hospital due to low white blood cell count w/ "neutropenic fever", but doing better). i'm not sure if i can answer your question, but thought i'd send along a wave of general comradery support. take care. (
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getting approved fro disability with leiomyosarcoma?
my spouse has been diagnosed with leiomyosarcoma and recently applied for diability in fl. he has it on the leg, 3 surguries later the dr.'s probably wont allow him to get disability due to that they believe that he will be able to work fine.. however he still limps and its hard for him to walk much less work.. any suggestions... ???
has anyone wiis diagnosis been approved for disability here in florida?
does anyone know if due to this diagnosis and the constant dr's visits that he needs to go to can also help his disability issue?
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The dr doesn't make the decision on getting disability or not. I filled out the form online. It's very long and detailed. Check out these links for ssda: http://www.ssa.gov/disability/professionals/bluebook/13.00-NeoplasticDiseases-Malignant-Adult.htm
http://www.ssa.gov/disability/professionals/bluebook/13.00-NeoplasticDiseases-Malignant-Adult.htm#13.04 (
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What was your experience with Chemotherapy?
My aunt has Stage 4 Uterine Leiomyosarcoma. She will start Chemo in a few days. This is her 4th reoccurance. She has already had radiation treatment therefore Chemo is her only option. Our concern is that she's had MANY prior surgeries (removed appendix, most of her small and large intestine, total hysteroectomy) and now has a colostmy. She has trouble gaining weight because her intestine is so small and with the colostomy she doesn't keep her food very long.
Nausea is our main concern with the Chemo, as she tends to dehydrate very easily.
Mouth sores too.
Luckily we don't know anyone who's undergone Chemo to compare notes with, so your comments on your experiences would be appreciated!
Thank you and good luck to all of you!
Many Blessings!
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I suggest trying Shaklee Meal Shakee for your aunt. Folks have found that they are able to keep this down much more successfully than other foods.
It can be mixed with any type milk and it provides 45% or more of the daily values for 19 essential vitamins and minerals, and are a rich source of calcium. Also an excellent source of dietary fiber and protein.
Also, Shaklee Performance is very good for eliminating dehydration. Many use this instead of the typical sports drinks on the market. All-natural flavors, natural vegetable colors and no added preservatives. Has optimum balance of ectrolytes important in the maintenance of body fluids including potassium 50 mg., calcium 40 mg., sodium 115 mg., phosphorus 20 mg., chloride 45 mg., & magnesium 5 mg. Comes in orange or lime and simply mix with water.
For more info or questions, feel free to contact me. (
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anyone in arkansas with leiomyosarcoma?
These people will link you up.
There's a leiomyosarcoma survivor on their front page. Scroll down for the contacts: (
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What can you guys tell me about Leiomyosarcoma?
My friend had this form of cancer removed completely from his stomach a few months ago, but he's worried about recurrence; he's been having the same symptoms as before, loss of appetite etc. I've looked all over the internet and all I get is information about what it is and the fact its rare. I haven't found survival rates for those who have recurrence of the cancer, I haven't found the symptoms, etc. I do not want to lose my friend, I want to know as much as i can about this form of cancer so that i know what exactly he is facing.
If you don't know about this disease, please don't bother answering...
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Leimyosarcoma is a subset of a rare type of cancer called sarcoma. Sarcomas are cancers of the connective tissues which include muscles, tendons, cartiliage, joints, bones, fat, and soft tissue within the body. There are over 60 subtypes of sarcoma and leiomyosarcoma is one of them. Leiomyosarcoma affects the smooth muscles located anywhere within the body.
Survival from Leiomyosarcoma depends on the location of the disease, stage at diagnosis, grade of tumor (low or high), patients age, patients overall health, and patients response to first line treatment.
Leiomyosarcoma should always be treated by a sarcoma specialist or at least at a sarcoma center.
You can find out more information and locate resources for this type of sarcoma at the following websites. These are support sites with patients and caregivers who exchange resources. They can answer many of your questions and concerns. These sites come recommended from other sarcoma websites:
ACOR: The leiomyosarcoma (cancer) Online Support Group
http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=L-M-SARCOMA
Leiomyosarcoma is a rare cancer - established by Doreen who was a medical doctor with the disease
http://www.leiomyosarcoma.info/
Leiomyosarcoma Direct Research Foundation
http://www.lmsdr.org/
Sarcoma Alliance
http://www.sarcomaalliance.org/
Liddy Shriver Sarcoma Initiative - Leiomyosarcoma
http://sarcomahelp.org/learning_center/leiomyosarcoma.html (
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