FAQ - Hashimotos sjukdom
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can I die from hashimotos desease?


can I die from Hashimotos desease? my TpoAb is above 2000 and feel very ill,, I do take synthroid .125 and selenium 100.
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Well, Hashimotos disease is a condition that attacks your thyroid gland, thus causing it to become under active (stops functioning properly) which leads to hypothyroidism (low blood pressure, low heart rate, slow of metabolism, etc...). With that said, if you are being provided with the adequate amount of hormone needed to replace the hormone normally produced by your thyroid gland then definitely not as this method is usually effective. Ask your Doctor and tell him or her about how you physically feel and if he or she has prescribed sufficient medication. :)  (+ info)

Does anyone have Celiacs Disease & Hashimotos?


I have been Gluten, Wheat, Dairy, Soy Free for over 2 years, after being diagnosed as a Celiac and finding food alergies, I still was having symptoms and found I also have hashimotos, I have done all the reading but would like to hear how people are controlling this, and how their weight is? I want to lose 20 pounds but wonder if I should be on meds first?
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Hi. I do not have Hashimotos butI have Celiac and I hope I can point u in the right direction.

There are soem helpful Yahoo groups:

SillyYaks
Celiacsupport
celiac_disease
USA_SillyYaks
foodallergynetwork

There are also some helpful sites with forums who might be able to better help you!

www.celiac.com
www.celiac.org
www.csaceliacs.org
www.celiaccentral.org  (+ info)

did you know having hashimotos can cause miscarriages/ i have had 4 chemical pregnancies?


the antibodies can attack the pregnancy like it attacks the thyroid gland/ i was reading where they treated hashimotos patients trying to get pregnant with the supplement selenium 200 mcg daily/ it will back down the antibodies
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Yep, knew it. Although it's the antibodies that attack the thyroid gland that cause hypothyroidism and the antibodies cross the placental barrier and attack a fetus' thyroid gland that develops around 10 weeks that kills the pregnancy (T3 and T4 are critical in supporting a pregnancy).

Typically those with subclinical hypothyroidism do not get pregnant easily, and if they do there is a link between not treating the hypothyroidism and birth defects including, with Hashimoto's, destruction of the fetus's thyroid gland. Normally it does not make you miscarry because of the antibodies, it's the low thyroid hormone levels that does - becuase in pregnancy hCG stimulate your thyroid gland to make more T3/T4 the same as TSH does, but with Hashimoto's you don't have the thyroid gland to produce more and the pregnancy fails to progress.

If you have hypothyroidism and/or Hashimotos, before you try to get pregnant and when you become pregnant you need to have your Synthroid intake increased and monitored monthly. Pregnancy with thyroid issues is considered high risk for fetus and mother as well.  (+ info)

i have had hashimotos encephalitis twice can anyone tell me what this is all about?


From: http://thyroid.about.com/gi/dynamic/offsite.htm?zi=1/XJ&sdn=thyroid&cdn=health&tm=81&f=20&su=p247.3.140.ip_p726.2.152.ip_p284.8.150.ip_&tt=2&bt=1&bts=1&zu=http%3A//www.thyroid-info.com/hashimotos-encephalopathy.htm


Hashimoto's Encephalopathy is a very rare and potentially deadly autoimmune disease with symptoms that can mimic many different neurological disorders. It is a treatable disorder -- if doctors figure out what it is in time and begin treating it. It is critical for the patient that doctors, neurologists and endocrinologists recognize this disease as soon as possible. When properly diagnosed and treated, patients begin positively responding within two weeks from the horrifying and most frightening symptoms.

Hashimoto's Encephalopathy is a disease that may have a connection to Hashimoto's Thyroiditis. However, many patients were euthyroid (normal thyroid range) or hypothyroid upon onset. It must be made absolutely clear that just because someone is has Hashimoto's Thyroiditis or another thyroid problem, that does not mean that the individual is destined to develop Hashimoto's Encephalopathy - this condition is quite rare.

Hashimoto's Thyroiditis was named after the Japanese physician Dr. Hakaru Hashimoto, who first described this condition in 1912. Hashimoto's Thyroiditis is the most common cause of hypothyroidism in the U.S., and is an autoimmune or chronic lymphocytic type of thyroiditis.

Hashimoto's Thyroiditis is not uncommon. The thyroid gland typically becomes and the antibodies the body normally produces to protect the body and fight foreign substances such as bacteria, are found to 'attack' their own thyroid tissue. Thyroid antibodies are present in 95% of Hashimoto's Thyroiditis patients and the thyroid autoimmune antibody test serves as a marker for Hashimoto's Thyroiditis. Treatment is basically the treatment for hypothyroidisim - thyroid hormone replacement drugs. Hashimoto's Encephalopathy is quite a different situation. There are some conflicting views by researchers as to Hashimoto's Encephalopathy being a type of autoimmune cerebral vasculitis, a neuroimmunological syndrome, a neurological encephalopathy, a condition that develops due to Hashimoto's Thyroiditis, or perhaps a disorder that should be classified separately. What is known is that it is a neuroendocrine disorder - meaning it affects both the endocrine system, and the neurological (nervous) system.

Hashimoto's Encephalopathy is underdiagnosed - it is likely that more cases exist than are actually properly diagnosed. It is also a treatable condition, but not curable, however, long term prognosis is good with proper treatment. It is also a relapsing condition, and a steroid responsive disorder, treatable with pral corticosteroids (Prednisone or its derivatives.) Hashimoto's Encephalopathy typically have high antithyroid antibody titers as do patients with Hashimoto's Thyroiditis, and all patients with Hashimoto's Encephalopathy eventually are diagnosed with Hashimoto's Thyroiditis as well.

As with Hashimoto's Thyroiditis, antibodies attack the thyroid gland, but with Hashimoto's Encephalopathy, antibodies also attack neurons in the brain. The neurological symptoms frequently lead to mistaken neurological diagnoses.

Many symptoms can occur. Some patients experience many of these symptoms, others may show some but not all of the symptoms listed here. Symptoms include:

* Confusion
* Disorientation
* Psychosis
* Coma
* Tremors
* Convulsions
* Concentration Problems
* Attention Span Problems
* Difficulty Retaining Information
* Short Term Memory Problems
* Seizure Activity
* Monoclonal Jerks - Involuntary Muscle Jerks
* Dementia
* Fatigue
* Coordination Difficulties
* Headaches
* Episodes of Stroke
* Episodes of Stroke-Like Deterioration
* Right Sided Hemiparesis - Right Sided Partial Paralysis
* Aphasia - Speech Difficulties
* Articulation Difficulties
* Word Finding Difficulties
* Fine Motor Movement Problems - Coordination of arms, hands, fingers.

It's easy to see how, with these types of symptoms, a patient could easily be misdiagnosed with many other neurological disorders, such as stroke, early dementia, Alzheimers, psychosis, Wilson's Disease, Pick's Disease, brain cancer, primary progressive aphasia, and others. [Those are just a few of the misdiagnoses I personally had. Can you imagine being told you have one of these and to: "Get your affairs in order, you will be in a nursing home in six months or six years." ]

If Hashimoto's Encephalopathy is misdiagnosed, the lack of proper treatment can result in irreversible dementia, coma or even death. Remember it is treatable, and with proper treatment, long term prognosis is good.

I know. It's a terrifying disease. I have had Hashimoto's Encephalopathy since the summer of 1995. I went untreated for three years. My condition continued to deteriorate. I went from neurologist to neurologist even with a case study in hand on Hashimoto's Encephalopathy, with the recommended treatment, and still I did not receive the treatment specified by the case study -- oral corticosteroids - commonly known as Prednisone. It wasn't until I finally found an endocrinologist who acknowledged its existence, even though he had never heard of it. He seriously considered the case study and welcomed the challenge of something new, something not in the textbooks. We worked as a team and began treatment with Medrol, a form of Prednisone. It took us one year, beginning in October 1998, starting off at extremely high doses and suffering all the horrible side effects that come with it, to find my "Magic Number" - the perfect number of milligrams that treats my condition. We found that number in the spring of 1998, only after I had to suffer a relapse to know for sure that 6 mgs. was too high, and 2 mgs. was too low, that 4 mgs. a day is what I needed.

In the beginning of this disease and experiencing some or many of the symptoms mentioned, many patients undergo extensive neurological testing' as a course of process of elimination. Finally, if they are lucky, they receive the correct diagnosis. The endless neurological tests performed may often be normal, or may show an irregular EEG, or in some cases MRI testing show some atrophy within the brain. If an endocrinologist is called in, tests may show that the euthyroid patient is now hypothyroid and all patients now have Hashimoto's Thyroiditis. The Thyroid Autoimmune Antibody Test will show high titers of antithyroid antibodies.

The good news for patients who are lucky enough to receive the correct diagnosis and proper treatment, is that long term prognosis is good with this often underdiagnosed disease. I can only speak from my own experience with Hashimoto's Encephalopathy, even with the knowledge that a relapse can happen at no given internal, or that it could be triggered by stress or just being overtired, or perhaps someday maybe I may be one of the few fortunate patients that actually goes into total remission, or maybe not.

Having Hashimoto's Encephalopathy changes you, yes. Perhaps you are not exactly how you were before, but you're alive, functioning, able to perform daily routine activities, be independent. The relapse that may occur is correctable. I may have a relapse next week, maybe not for months, years. It is unpredictable. But when/if it does happen, correcting it for me, is just upping my milligrams from 4 mgs. a day to 6 mgs. for two or three days. No side effects from the medication and most important the relapse is gone and I am as I was before.  (+ info)

how do you know if you have, hypo, hyper or hashimotos thyrodism?


You would need to have your thyroid tested. Your regular doctor can do this. If the levels are above or below normal - which would mean you would have hypothyroidism or hyperthyroidism, then your doctor would most likely refer you to an endocrinologist.

What they usually test initially will be your TSH levels. This is Thyroid Stimulating Hormone levels. When your thyroid isn't producing enough hormone, your pituitary gland in your brain will send out a hormone, TSH, to try to stimulate your thyroid to produce more hormone. Therefore, the less your thyroid is putting out hormone, the more TSH will be produced.

Hence: High TSH = Hypothyroid

Of course the opposite is true.... if your thyroid is overproducing hormone, your TSH will be low.

Low TSH = Hyperthyroid

If you are hypothyroid, synthetic thyroid hormone can be given to you (ex: Synthroid) to make your level return to normal.

If you are hyperthyroid, there are several options. They can irradiate your thyroid, remove some of it, or other options.

The endocrinologist would probably test you again to check your TSH, but also check your T3, T4, T7, total uptake levels as well. These are hormones your thyroid produces.

Hashimoto's hypothyroidism is usually a form of hypothyroidism that occurs due to a primary autoimmune disorder (ex: Lupus, Rheumatoid Arthritis, Sjogren's, etc.).

If you have a thyroid problem, especially if it is a hypothyroid problem, you will also need to be tested for autoimmune disorders as well whether or not to know if it is just hypothyroidism, or Hashimoto's.  (+ info)

I was diagnosed with hashimotos, a Thyroid condition. Does anyone else have this.?


what are your symptoms. I am always tired, don't have enough energy, and at times it just feels like some one has been hitting my hands and feet repeatedly and they are warm to the touch.
I have been put on Synthorid which has helped some.
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When you are on synthroid, you need blood tests often to make sure you are on the right dose. Only go 6 weeks at the most when you are starting out and trying to get stable.  (+ info)

Soy - Good or Bad? I heard soy is bad for people with Hashimotos Thyroiditis. I've also heard that's a myth.


Are there any doctors, patients or nutritionists who would like to weigh in on this? Does the soy interfere with the absorbption of thyroid medicine (in this case, Armour Dessicated Thyroid)?

What if you waited a few hours after taking your thyroid medicine to eat the soy? Would that make a difference? Or is soy just plain out bad for anyone with a thyroid condition, no matter when you eat it in conjunction with taking your meds?

What if the person suffered premature ovarian failure due to the Hashimotos and had early menopause in her mid-30s?

Soy is supposed to be good for menopausal symptoms, but was just wondering if this was in conflict with the thyroid condition that caused the early menopause in the first place.

Thanks in advance to anyone who replies with any info about this.
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Soy is one of the many foods that is labeled a goitrogen. From what I read it does not seem to effect everyone. I think if your iodine intake is borderline it may effect you.

http://www.ithyroid.com/goitrogens.htm
Goitrogens work by interfering with the thyroidal uptake of iodine.

I can not tell you if it would be good or bad for you. I can suggest you let your doctor know, so they can take blood tests and see if it does effect your thyroid. I think I read do not take soy within 3 hours of taking your thyroid medication.  (+ info)

HASHIMOTOS AND SKIN RASHES?


I have been diagnosed with hashimotos, I have seen many specialist.
I am having a red and itchy skin rash on my neck, chest, and left arm
with this red rash causes intense pain (like I am being boiled alive)
noone knows what is causing this, does anyone have this experience? Or know what is causing this?
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Yes, I have had very similar rashes. The best answer I can give you, is that Hashimoto's Disease is an anutoimmune disorder and although it is one that specifically targets the thyroid gland, just having Hashimoto's makes it very likely to have OTHER autoimmune disease(s). Autoimmune diseases are very hard to diagnose for the most part because of their huge variety of possible symptoms. They are very frustrating for their sufferers because we often feel crappy without necessarily a "good" reason. It's just the nature of the disease to do some pretty weird $hit to your body hon. I've had part of my hair turn curly, and I'm talkin' only PART of it, so it's very weird. I have straight hair otherwise, lol
I wish you well.  (+ info)

Hashimotos Thyroiditis + associated treatment?


Looking for feedback re hashimotos and associated treatment, thyroxine replacement, and it's non effectiveness, am experiencing aching legs, burning feet and visual deterioration. Any one else ???
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It is both an autoimmune and endocrine disorder. Which specialty doctor do you see? If you are still having symptoms it would indicate your medication isn't strong enough to alleviate symptoms. Talk to your specialist about the things you are experiencing. It may be just a simple thing of dosage adjustment.  (+ info)

anyone else have hashimotos thyroiditis?


I have hypothyroidism and recently was diagnosed with Hashi's, which is actually a relief because now I know what's causing all my crazy symptoms. I am confused however, it sounds from what I've been reading online and a book that I bought that Hashi's doesnt really go away but is controlled with the levothyroxine and acts up once in a while. It sounds like eventually my thyroid will just not function anymore or I will get a goiter and have to have it removed. I asked my doctor about this and he didn't really give me aclear answer. he made it sound like this is just a one time thing (need to find a new doc). Anyone have more info? Also, I've been feeling a kind of hot/cold feeling in my throat, around the thyroid area, for the past couple days, like I swallowed some ben-gay (didn't). Anyone else experience this? Thanks!
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Ask you doctor for a referral to an endocrinologist. Endocrinologists can tell you all about the thyroid and its various problems, and can get you on the right medication. Physicians in general/family practice are not all that skilled in this area.  (+ info)

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