epidermolysis bullosa?

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I have EB, the type i have is simplex dowling meara.. Im in my teenage years and as a girl i dont usually worry about what people think of my appearance. But sometimes i get some blisters which i pop with the right equipment, then they turn into scabs but they always spread. So then i end up with this huge black thing on my face which people love to stare at! I want to know ways to prevent this from happening?
You are doing the best you can with your condition. Just ignore the starers, or confront them if you feel like it.  (+ info)

epidermolysis bullosa Simplex?

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Is der any creams for EBS? what are some other things to help you with EBS?
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I have a son ,4yrs old suffering from Epidermolysis Bullosa-Simplex.Can anybody tell me about.......?

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advanced treatment in alopathy,aayurveda,homeopathy or something else......please............
http://www.niams.nih.gov/Health_Info/Epidermolysis_Bullosa/default.asp

http://ghr.nlm.nih.gov/condition=epidermolysisbullosasimplex

http://en.wikipedia.org/wiki/Epidermolysis_bullosa

several sites, with good information and excellent links as well, time for you to educate yourself as best you can mom, start studying.  (+ info)

My daughter has epidermolysis bullosa simplex. She's two years old.?

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for her age, i cant make her understand that it's a disorder that has no treatment or even medication. but whenever she develops blisters, she just cries so helplessly and she even asks me to give her medication to 'cure' the blisters ( she can speak well for her age). most of the times i'll just apply some baby lotions and lie to her that i'm applying medication and that'll help ease the pain. what's worse is sometimes she develops really big blisters. and when she gets them, she gets fever too. i dont know what's the connection, maybe she gets fever out of the pain. what can i do to help her ease the pain?

she took it after her daddy. he still gets blisters but he's a man.. im quite worried about my daughter because she often gets blisters around her waist area where there's pressure from the napkins and diapers. even a new pair of shoes causes blisters on her toes, etc.. i wonder how much of suffering she has to endure when she grows up and starts wearing undergarments and even sanitary pads..
That's certainly not common for EBsimplex to show up at such an early age, and in the areas that you've mentioned. Have you had a biopsy performed on either your daughter's or your husband's blisters? There are now numerous different types of epidermolysis bullosa (more than were appreciated in the past), and the underlying pathology is now understood much more than in the past. There is also a national support group, which has all the latest information. In addition, if the blisters keep your daughter from enjoying a normal, active childhood, you might want to look into sending her to camp Discovery in the summer, for fun activities with other kids who also have EB, etc. Check all of these out with your dermatologist.  (+ info)

Epidermolysis Bullosa?

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My niece who is 3 years old has this which results in her having lots of blisters, she is in hospital at the minute as she has blood in her urine and the drs are thinking it could be connected to EB and her kidneys could be at risk. Has anyone any info on this condition as we are really worried
There are several forms of this disease. Here is the best site I know about this condition.

http://www.mayoclinic.com/health/epidermolysis-bullosa/DS01015

Rusty

http://health-pictures.com/epidermolysis-bullosa.htm  (+ info)

Can I join any branch of the military with Dystrophic Epidermolysis Bullosa?

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I'm 17 years old and I have a very mild case of it on my feet.
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can someone with Epidermolysis bullosa get a tattoo?

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I have EB and i want to get a tattoo but i dont know if it will affect me....im guessing it might, i may blister or bleed more. but i wanna know does anyone who has EB have a tattoo? or can anyone tell me if it is too Dangerous and or risky and i shouldnt do it...ive been wondering for months.
don't get one. they are bad, unhealthy, unattractive, and they will look ugly when you are older and wrinkly  (+ info)

Does Epidermolysis Bullosa have a life expectancy?

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i would like to know if Epidermolysis Bullosa has some kind of life expectancy and quality of like of some one living with this disorder?
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I have epidermolysis bullosa, and I have a few questions for fellow sufferers or doctors out there...?

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I'm a fifteen year old girl and I have a milder form of EB. Right now my feet are pretty bad, and I have one rather large infected blister that's causing a lot of pain, even just sitting here. I swim year-round competitively, and I was wondering if it would be ok to go to swim practice today, or if I should stay out of the water until it heals up. Thanks for any advice and support!
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who was the first to get diagnosed with epidermolysis Bullosa?

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8 week old Tori Cameron  (+ info)

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