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FAQ - Endolymphatic Hydrops
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Are Meniere's disease and Endolymphatic Hydrops two names for one disease or are they different? If so, how ?


Ménière's disease--an inner ear fluid balance disorder that causes episodes of vertigo, fluctuating hearing loss, tinnitus (a ringing or roaring in the ears), and the sensation of fullness in the ear. The cause of Ménière's disease is unknown....it is the same disease...known under different names.  (+ info)

What are the long term effects of hydrops fetalis?


I have a son that is four about to turn five. While I was pregnat he was diagnosed with non immune hydrops. I am thankfull he survived as only about 25% of these babies live. The problem I am running in to now is no one knows what the long term effects could be. He appears physicaly healthy but I know there is some thing wrong with him mentally. I keep running in to road blocks in trying to get some help for him.
so far every one has posed good answers but nothing I do not already know. I have done tons of reasearch and come up empty handed. And just to let all of you know he did not reach his bench marks like he should have.
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I did a quick web search and did not find anything about long term prognosis, which surprised me. It's not like this is a "new" disease, so there must be long term data available on patients. You might do a search on Medscape.com or some of the the other medical search engines to see if there are any peer reviewed articles you can read.  (+ info)

How long does Endolymphatic sac decompression last?


My aunt is scheduled to have Endolymphatic sac decompression in about a week or two and she's really nervous about it. Mostly what she wants to know is does this help the effects of meniere's disease for good.. or would she have to have another procedure in a few years? What is the average time that this surgery helps patients who've had it?..

Thank you!
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This is considered a relatively low-risk procedure. It also has the advantage that it usually does not cause hearing loss.

I have read story that have said that it had went away for 10-15 and others that it was also 5 years. I have typed in Meniere's disease stories in the search bar and brought up so many stories. Some are about the natural herbal medicine that made it go away, and otheres about the shunt they put in the ears. I hope that it helps your Aunt if not go on the internet and find all the other options. There are many different options out there for your aunt.  (+ info)

Could being hit in the stomach during pregnancy cause fetal Hydrops?


I lost my son in 2000 after a fight with my brother, he hit me in the stomach 3 times, after I told him I was pregnant. This is very serious to me, and I would apprieciate no puns.
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  (+ info)

we are both beta -T minor, our baby resulted as hydrops fetalis. is it because we are both minors?help?


My husband and i are both thalassemia minors and the baby resulted as hydrops fetalis which is more likely to happen in alpha thalassemia. How did it possibly happen ? we are planning for another pregnancy/baby. Will it happen again? please inlighten us.
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Hi there, I have beta thalassemia Minor/trait.

I'm not a doctor or anything, but (if i have my facts right) then i do know that if you BOTH have the minor, you defnitely need to see a specialist/your doctor before planning a pregnacy..

Did nobody ever tell you that if you BOTH have the minor/trait, then your baby can/potentially develop serious blood disorders? I'm pretty sure this is the case, because they gave me a big speech about 'if i ever have children' when i was diagnosed. (I was only 15 or so at the time, so i dont remember everything they said)

Please go to your doctor and get the right information, it's something youo can't afford to be unsure about.

Take care and i wish you all the best of luck

below is a link to a good forum to join and ask any questions you may have:

http://thalforum.ca/forums/index.php

Hope this helps :)  (+ info)

why does hydrops fetalis cause preeclampsia?


i can't find any article on the web nor can i find anything in my books..
i would really appreciate answers to this question..
thanks!
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It is called Mirror syndrome. The reason why there is a link between hydrops fetalis and preeclampsia is not fully known, but likely has something to do with the enlargement of the placenta and changes pressure and blood flow that often accompany hydrops fetalis.  (+ info)

How many cases of fetas Hydrops survive to live a normal life?


What I know @this pt:I'm 18-19wks preg.,I'm having a boy, I had amniocentesis done Fri.6-16-06 after my 2nd sonogram last wk. No results from that test yet.Maybe 10-14 days I should.There is edema around my baby Isaiah's body and fluid around his heart. All of his organs, structures,spine,brain, heart rate, growth, and movement are all normal right to the letter.I have and will continue to prey for Isaiah I want to hold him so bad, that it breaks my heart to think I may not get the chance.Can any one shine some light on my situation?
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What is the cause of the hydrops and how many weeks are you?
are you Rh negative?
have an antibody in your blood?
Is there a fetal cause?  (+ info)

can you deliver a baby that has hydrops fetalis?


my cousin is 18 weeks pregnant and was told today that her baby have fetal hydrop i would like to know what are the chances of the baby make it threw this...can use some input this is her first pregnacy (boy)
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Fetal Hydrops: Note the increased fluid (black) in the fetal abdomen. The bladder (bld) is completely immersed in fluid. The bowel is also floating in fluid.



Fetal hydrops is a severe birth defect, that is, in most cases, lethal for the developing fetus. The term "hydrops" simply refers to abnormal fluid collections in at least two "spaces" in the fetus. This may mean skin edema, cystic hygroma, pericardial effusion, pleural effusions, abdominal ascites, or polyhydramnios. Hydrops can be diagnosed at any age, but most commonly presents by 14-18 weeks.

Hydrops is not a diagnosis in itself, but it is a sign of another disease process at work. Hundreds of entities have been noted to cause fetal hydops. Some of the most common etiologies are:

• Chromosomal abnormalities.
• Rh isoimmunization or incompatibility.
• Viral infections, such as parvovirus infection.
• Cardiac defects and arrhythmias.
• Fetal bleeding, and subsequent anemia.
• Blood disorders that may cause severe fetal anemia, for instance fetal alpha thalassemia.
• Rare metabolic disorders.

The prognosis for hydrops is very poor. The rate of fetal demise is very high, and neonatal survival in the NICU is the exception. The prognosis is directly related to the underlying etiology. Some etiologies such as cardiac arrhythmias or treatable forms of anemia (such as fetal parvovirus B19 infection) can have fetal survival. This requires proper diagnosis, and in utero therapy.  (+ info)

Has anyone had Hydrops affect their foetus? What happened?


Were you able to keep the baby? Did it survive and if so, is it very sick/handicapped?
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this might not help but here is some info on it.

What is hydrops fetalis?

Hydrops fetalis is a severe, life-threatening problem of severe edema (swelling) in the fetus and newborn. It is also called hydrops. There are two types of hydrops:

* immune - results when the mother's immune system causes breakdown of red blood cells in the fetus. This is the most dangerous problem of blood group incompatibility between the mother and baby.

* non-immune - the most common type; can result when diseases or complications interfere with the baby's ability to manage fluid.

What causes hydrops fetalis?

Hydrops develops when too much fluid leaves the bloodstream and goes into the tissues. Many different diseases and complications can cause hydrops, including the following:

* Immune hydrops may develop because of Rh disease in the mother. When an Rh negative mother has an Rh positive baby, the mother's immune system sees the baby's Rh positive red blood cells as "foreign." When the mother's antibodies attack the foreign red blood cells, they are broken down and destroyed, resulting in anemia. Hydrops can develop as the baby's organs are unable to compensate for the anemia. The heart begins to fail and large amounts of fluid build up in the baby's tissues and organs.

* Non-immune hydrops includes all other diseases or complications that may interfere with the baby's ability to manage fluid. There is no one mechanism to explain non-immune hydrops. Some of the diseases or complications that are often associated with hydrops include the following:

o severe anemias
o congenital infections (infections present at birth)
o heart or lung defects
o chromosomal abnormalities and birth defects
o liver disease

Who is affected by hydrops fetalis?

Immune hydrops is not as common as it used to be since the widespread use of Rh immunoglobulin treatment for Rh negative women. Non-immune hydrops occurs rarely. Premature babies with hydrops are at increased risk. The incidence of hydrops can vary between populations.
Why is hydrops fetalis a concern?

The severe edema that occurs with hydrops can overtake the baby's organ systems. About half of unborn babies with hydrops do not survive. Risks are also high for babies born with hydrops, with survival often depending on the cause and treatment.
What are the symptoms of hydrops fetalis?

The following are the most common symptoms of hydrops fetalis. However, each baby may experience symptoms differently.



During pregnancy, symptoms may include:

* large amounts of amniotic fluid

* thickened placenta

* ultrasound of the fetus shows enlarged liver, spleen, or heart, and fluid buildup in the fetus' abdomen

After birth, symptoms may include:

* pale coloring
* severe edema overall, especially in the baby's abdomen
* enlarged liver and spleen
* respiratory distress (difficulty breathing)

The symptoms of hydrops fetalis may resemble other conditions or medical problems. Always consult your baby's physician for a diagnosis.
How is hydrops fetalis diagnosed?

In addition to a complete medical history and physical examination, diagnostic procedures for hydrops fetalis may include:

* ultrasound - a diagnostic imaging technique which uses high-frequency sound waves and a computer to create images of blood vessels, tissues, and organs. Ultrasounds are used to view internal organs as they function, and to assess blood flow through various vessels.

* fetal blood sampling - done by placing a needle through the mother's uterus and into a blood vessel of the fetus or the umbilical cord.

* amniocentesis - withdrawing some of the amniotic fluid for testing.

Treatment for hydrops fetalis:

Specific treatment for hydrops fetalis will be determined by your baby's physician based on:

* your baby's gestational age, overall health, and medical history
* extent of the disease
* your baby's tolerance for specific medications, procedures, or therapies
* expectations for the course of the disease
* your opinion or preference

Treatment of hydrops depends on the cause. During pregnancy, hydrops may be treatable only in certain situations. Management of hydrops in newborn babies may include:

* help for respiratory distress using supplemental oxygen or a mechanical breathing machine

* removal of excessive fluid from spaces around the lungs and abdomen using a needle

* medications to help the kidneys remove excess fluid



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Does anyone know of someone who has had non-hymune hydrops??


I had a little boy that died of this! I was just wondering does anyone else know of anyone who has survived this! May I ask what are there living conditions now?
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I am sorry for your loss. I can't even find anything online about this disorder. I am sorry I can't be of more help.  (+ info)

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