Where can I find a small enough bone conduction hearing aid to fit a baby?

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The baby was born with bilateral microtia and atresia, in a country that does not have the resources to help her.
You need to talk with a professional audiologist. Ask them. There are doctors who do "charity" work still. Doctors Without Borders (just one group)  (+ info)

Applying for disability for a chronic liver disease?

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Is it possible for me to recieve disability for a chronic liver disease, biliary atresia? It makes my spleen not function as well as it should so I consistently get sick and weak feeling. On top of this, I am physically restrained because I cannot ger overly tired or damage my spleen due to falling, leaning, or pushing against it. Would this make me a candidate?
Here is a link that may be of help to you.
According to this: if you have been diagnosed
with end stage liver disease and have
biliary atresia....you would be covered under
disability for 1 year and then be evaluated
again.
http://www.ssa.gov/disability/professionals/bluebook/105.00-Digestive-Childhood.htm

However, when a patient has multiple medical
conditions, they will take "all "of them into
account...so it is best to be sure that all are
listed. If the doctor has placed you under
any restriction for what you can or cannot do...
ask if he would write them down. Keep the
original, but give them a copy of it when you
send in your application. Having a doctor
state that you cannot work and placing that
in writing is a great plus to helping you get
disability benefits.

Hope this helps you. To go to the link provided,
just click on it.  (+ info)

when does atresia happen?

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I am working on some stuff for school, and this is one of the questions... can't find answer with a simple google search, please help
Atresia is absence of an opening of a natural orifice of the body i.e. the anus, intestine, or ear. This sometimes is congenital (present at birth) or it could be due to disease causing swelling or inflammation which closes off an opening. It is a complex question, but hopefully this will help some.  (+ info)

the percentage of those with duodenal atresia having down synd & percent of down synd with duodenal atresia?

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There are many good articles on this on the web. First...Approx. 40% of babies with duodenal atresia have Down syndrome. See first site below. Secondly, about 12% of babies with Down syndrome have duodenal atresia. See second site below.  (+ info)

Where can a baby less than a year old get a liver transplant operation for free or get sponsors for it?

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My friend has a 7 month -old baby diagnosed with Biliary Atresia. She had a Kasai (liver bypass) done on her but it was unsuccessful. Pediatric liver transplants are not available here in the Philippines. The nearest hospitals where the procedure could be done are in Hongkong and Taiwan. It will cost her parents US$120,000. They can not afford it. She needs a transplant by June 2006. Are there charitable hospitals like the Mayo clinic which would be willing to take her in as a case? Or are there charitable institutions that would be willing to sponsor her surgery in HOngKOng or in Taiwan?
Children’s Liver Association for Support Services
27023 McBean Parkway #126 Valencia, CA 91355
Toll-free: 1-877-679-8256 Local phone/fax: (661) 263-9099

You can possibly find some information here.
Another possibly benefitial number to call is the American Liver Foundation.
I'm sorry your friends baby was in the 20th percentile that the Kasai did not take.
Please keep in touch with me and I will certainly do some more research for you. I'm headed that way now.
Please give my love.....I know this is a difficult situation.
Email me at [email protected]  (+ info)

are bile ducts considered a part of the liver?

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i have to do a project on a certain liver disease, and i have to somehow relate it to bile. i thought to use cirrhosis but it doesn't really talk about bile, and the only other disease related to bile that i could find is bilary atresia, and that is a disease of the bile ducts. would that count as a liver disease? if not, any suggestions of a liver disease that relates to bile?
Bile ducts are part of the liver. In PBC, primary biliary cirrhosis, the autoimmune system attacks the cells lining the bile ducts within the liver. The ducts become damaged. Bile acids within the ducts spill out. Bile acids are strong detergents. Inflammation, damage, and scarring of the liver tissue occur. PBC is definitely a liver disease and bile ducts are part of the liver both as plumbing and intracellular.

Try looking at the website www.liverdisease.com under PBC. It explains everything quite well. I have PBC and had to get a transplant because it destroyed my liver.  (+ info)

Biliary Atresia Advice?

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Hello, My name is Veronika my question is, my niece was born 11 days ago (June 27) and there have been multiple tests done but still no answers. So I think it would be better talking to someone who unfortunately has been through this. My niece's (Charlet), has had jaundice since day 1, today her direct bilirubin is 2.0, this is the only abnormal test that came back. On day 1 and 3 the bilirubin was 5.9 along with elevated trigylcerides and elevated creatine, but now these two are normal. They did an ultrasound of the liver and kidney and both came back normal. We had the HIDA scan done yesterday and it shows that the radioactive tracer does not exit the liver into the gallbladder or intestine, so no answers yet but the work biliary atresia has been thrown out at us. On the internet there is sooo muchh info about Kasai Procedure and eventually liver transplant. I was wondering what you went through and what advice would you give. Any advice would be greatly appreciated.
Thanks
V
Well our daughter had Biliary Atresia. She started with a bilirubin of around 11 and it dropped a few days after birth, and then eventually started going back up slowly. She was diagnosed with BA at 10 weeks old. She had an ultrasound and a HIDA scan before being diagnosed. And a few days later had the Kasai Procedure. It will be about a 4-5 hour surgery and the liver will be connected directly to the small intestine, so the liver can drain bile. Because with Biliary Atresia the liver biliary tree has been destroyed and the liver cannot drain the bile out.

There are lots of children that have the Kasai, and do great for years and years, but then do end up with a liver transplant. Some done end up with a transplant.
Then there are children like my daughter. The Kasai was only successful for around a month, and then she was listed for transplant. She was transplanted at 8 months old, and is now 7 months post transplant and is doing GREAT! There is so much hope, and we have been through this just like your family. We know exactly what you are going through.

I remember when Biliary Atresia was a possible diagnosis for my daughter, but we just really hoped that wouldn't be the outcome. But it was, and well our daughter is doing great despite all she has been through.

If your niece ends up having BA, then please let her parents know about this site, www.liverfamilies.net . It is a GREAT support group!!  (+ info)

pregnancy and tricuspid atresia...doctors help needed??!?

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so here's the gist,

i've had 3 open heart surgeries, when i was 1...3...and 3 1/2 because i was born with tricuspid atresia. I had a the fontain procedure done.. (sp?) I am not 18, turning 19 and engaged..

here's the problem, i may be pregnant... i don't know if my body can handle pregnancy, i mean i've been perfectly fine all these years, take no medications, and live a normal life. I am too afraid to go ask my doctors because the last time they saw me 2 years ago i was still a little girl and not having sex.

help =(
  (+ info)

PLEASE HELP. " oesophageal atresia "?

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I WANT AN EXPERT ANSWER FOR THIS QUESTION PLEASE....
my sister is pregnent and she is now exactly 5 months in pregnancy. doctor took scanning and discovered that the fetus neck and stomach is not grown properly and the fetus has not taken enough water.
doctor has given the below report -
UNDERFILLED STOMACH WITH UPPER NORMAL LIQUOR VOLUME, DUE TO OESOPHAGEAL ATRESIA.

doctor asked my sister to wait for 2 weeks, and if the problem persists, then my sister need to abort.
now please tell me, is there any solution for this problem? please help......
am scared a lot.
It occurs in approximately 1 in 4425 live births.

Congenital esophageal atresia (EA) represents a failure of the esophagus to develop as a continuous passage. Instead, it ends as a blind pouch. Tracheoesophageal fistula (TEF) represents an abnormal opening between the trachea and esophagus. EA and TEF can occur separately or together. EA and TEF are diagnosed in the ICU at birth and treated immediately.

The presence of EA is suspected in an infant with excessive salivation (drooling) and in a newborn with drooling that is frequently accompanied by choking, coughing and sneezing. When fed, these infants swallow normally but begin to cough and struggle as the fluid returns through the nose and mouth. The infant may become cyanotic (turn bluish due to lack of oxygen) and may stop breathing as the overflow of fluid from the blind pouch is aspirated (sucked into) the trachea. The cyanosis is a result of laryngospasm (a protective mechanism that the body has to prevent aspiration into the trachea). Over time respiratory distress will develop.

If any of the above signs/symptoms are noticed, a catheter is gently passed into the esophagus to check for resistance. If resistance is noted, other studies will be done to confirm the diagnosis. A catheter can be inserted and will show up as white on a regular x-ray film to demonstrate the blind pouch ending. Sometimes a small amount of barium (chalk-like liquid) is placed through the mouth to diagnose the problems.

Treatment of EA and TEF is surgery to repair the defect. If EA or TEF is suspected, all oral feedings are stopped and intravenous fluids are started. The infant will be positioned to help drain secretions and decrease the likelihood of aspiration. Babies with EA may sometimes have other problems. Studies will be done to look at the heart and spine. Sometimes studies are done to look at the kidneys.

Surgery to fix EA is rarely an emergency. Once the baby is in condition for surgery, an incision is made on the side of the chest. The esophagus can usually be sewn together. Following surgery, the baby may be hospitalized for a variable length of time. Care for each infant is individualized.

Its very commonly seen in a newborn with imperforate anus.  (+ info)

Are there any other cases of people with Biliary Atresia past infancy and into adulthood?

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I have been working my undergraduate college applications and have been contemplating what makes me unique. I have Biliary Atresia, and am now 17 years old, nearly 6 feet 180 lbs. I had a Kasai procedure when I was 10 weeks old and have not had a liver transplant. I have not found in my internet research any other mention of specific Biliary Atresia cases of success past infancy, so I've finally decided to ask.

Does anyone know anyone or anything that can contribute to my search?
There is an international support network for teens and young adults with biliary atresia at Liver Families. There is a good number of young people like yourself who participate on the Liver Families discussion forum. I have a 13 year old son with biliary atresia and successful Kasai (no transplant) and there are many others. You're not alone.. Hope this helps. Here's a link to the Liver Families website: www.liverfamilies.net/forum  (+ info)

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