FAQ - Choanal Atresia
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My daughter was born with choanal astresia 2 weeks ago.?


She had the procedure to correct the issue already. She also has a sacral dimple on her lower back between her buttocks. The dimple was investigated by ultrasound and turned up nothing. All other test were performed with no other birth abnormalities to note. What other signs should we look for for as she grows up. What are the chances that she had the choanal astresia and a sacral dimple with no spinal issues, or other issues. Are we fooling ourselves into thinking she's OK when there will quite possible be more problems as she developes?
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I can tell you're worried.

Did your daughter have bilateral (both sides) or unilateral (one side) choanal atresia?

With single sided atresia, the atresia is usually just an isolated anomaly without there being other problems elsewhere in the body.

But with bilateral choanal atresia, there is a greater risk of there being other anomalies.

If her atresia was bilateral, have you had her checked for C.H.A.R.G.E. syndrome? C.H.A.R.G.E. stands for: Coloboma, Heart defects, choanal Atresia, Retarded growth, Genitourinary abnormalities, and Ear anomalies.

These are problems that can be seen with kids who have bilateral atresia...not all kids with bilateral atresia have CHARGE, but a significant number of them do, so it's best to have her checked out for these (I assume they already have).

As for worrying about a neural tube defect (spinal problem). It sounds like they've checked that out too. What you need to look for in the future is whether she reaches her milestones normally...crawling, walking, etc. Make certain you tell her doctor if she shows any delays in her milestones or any limb weakness.

I hope this information helps some.  (+ info)

IS CHOANAL ARTESIA REPAIR AND ADENOIDS SURGERY SAFE?


MY SON OF 8 MONTHS IS HAVING SURGERY. HE IS HAVING CHOANAL ARTESIA REPAIR AND HE'S ADENOIDS REMOVE. IS IT SAFE AND NOT DANGEROUS. I ASKED THE DOCTOR AND HE SAID IT WAS NOTHING TO WORRY ABOUT, JUST A 15 MINUTE PROCEDURE, BUT I REALLY NEED TO KNOW IF THIS SAFE AND NOTHING TO WORRY ABOUT. PLEASE I NEED YOUR ANSWERS OR COMMENTS.
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How do you cure an earring infection with a closed earring hole?


I took out my earring a couple of weeks ago and i want to re-pierce my ear but it had gotten infected and I still have a little bit of infection left in it. How can i get the infection out without opening it first

PS. If this helps were is probably won't, my ear is not a normal ear it is a 3rd grade microtia atresia ear
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Well you shouldnt have taken out ur earing, it sounds weird but i had the same thing and i ignored it and now its gone. Just get hydrogyn proxide or rubbing alcohal and rub it on your ear. dont bother ur ear by touching it too much  (+ info)

Biliary Atresia disease?


My kid has Biliary Atresia and went to surgery 4 days ago. Did anyone knows how we can tell the operation is success? I don't know what is the expectation, and the doctor did not explain much to us. We are very nervous now.
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Hi, my daughter is two years old and has biliary atresia. Her Kasai operation was successful. We were told the most important things were clearing jaundice (this took two months) and gaining weight.

If you like you can email me at [email protected] or you might be interested in www.liverfamilies.net which is a lively online support group for families affected by childhood liver disease.  (+ info)

Anyone got biliary atresia?


My baby girl now 15weeks, she had kasai surgery when 11weeks. Anyone got biliary atresia or anyone's baby got? i'd love some advice. I'm concerned about quality of life for her. Will she live like normal kid? Any idea of life expectancy? As a mother, i'm really worried. Pls. anyone share some experience with me. Thx
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Biliary atresia is a rare condition in newborn infants in which the common bile duct between the liver and the small intestine is blocked or absent.

It has no known cause, and the only effective treatment is by surgery or liver transplantation.

I would not want you to feel panic cause there may be hundreds of references in the web or what so ever.

Remember, EVERY CHILD is special.

In this kind of rare dieases, there is no point to speculate what are the chances or how are the chances or blaming the healthcare staff.

You must learn to believe in your child, as which she believe in you and that is why she came into this world...Love her rather then seek for endless questions and answers. Love her.  (+ info)

Potty training question. 4 yr. old daughter has tricuspid atresia and is learning delayed.?


She seems to have no control with urinating. She sits on toilet and is understanding the routine, but not understanding holding it until getting to toilet. Are there any good potty training books for learning delayed children. Any good advice?
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Are you putting her in diapers, or pullups, or underware? I am potty training my own son right now, but my sister has potty trained 5 of her own (one was learning delayed) She told me that if they are doing good to try putting them in underware. It is hard for them to remember to go to the potty if it feels like a diaper between their legs. She said it was easier for them to remember if it was cloth. Also a good thing to think of is it takes 11 months for the average child to become completely potty trained. So (and I know it's hard) try not to get to discouraged. I hope that helps and good luck!!  (+ info)

may grandson is sick of biliary atresia.he's 2 months old when he was operated.can he be save by the operation


the dr.told me that if the operation will work ok with his liver,no need of liver transplant.and incase after 2 months it won't work,6 million is needed for the transplant in taiwan.because he is too young,is there a chance for him to recoverd from this kind of desease?
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The passages carrying bile from the liver to the intestine are blocked. Surgery is the only treatment option. Otherwise, there will be permanent liver damage (cirrhosis) and he will need liver transplant. Do not delay surgery. If the ducts are blocked outside the liver (extrahepatic biliary atresia), surgery is easier but he is likely to develop cirrhosis sooner if untreated. With intrahepatic biliary atresia, it is the other way round. I wish you all the best for the little one's recovery.  (+ info)

If my baby has a blockage in her tummy, will she have to be delivered early?


I am 27 weeks pregnant and the ultrasound show that our baby has a blockage in her tummy ( duodenum atresia) I have heard that the baby will need to be delivered early? Has anyone else been through this??? How early will she be delivered?
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Hi, sorry that your little one has this problem. I'm not sure at what stage they will deliver - I expect this would vary from hospital to hospital.
They will probably monitor you very closely, see how the baby is doing and make a decision from that. I imagine they will want to get you to as close to 37 weeks as possible.
Hope everything goes ok  (+ info)

biliary atresia...?


I've had biliary atresia since I was born. I'm 13 now and have never has any problems. I'm my GI doctor's only patient who hasen't had anything go wrong. What is the chance that I will have problems in the future? Please answer if you know about biliary atresia, have it, or have children or family members with it.
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Hi Beki,
My son Nick has biliary atresia and he is doing great just like you. He is 13 years old too and in 7th grade. I think some patients can do very well for a long time without many problems. Maybe you will never have any problems at all. But I've read that up to 80% of patients with biliary atresia will sooner or later need a transplant (most of the time before 5 years old). There's a great online support group called Liver Families. There are lots of teens and 20s with biliary atresia who post messages and support each other. Here's a link: www.liverfamilies.net/forum  (+ info)

Could I have some info on cleft palate and the co-existing conditions?


Thia is for a friend who's daughter has been born with a cleft palate and has a associated syndrome which includes a hole in the heart, an extra rib, anal atresia, a missing tailbone and a cyst on the kidney, any info appreciated.
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Both my son and husband have un-named syndromes, which included heart defects, cleft lip and palate, an extra rib and various other defects. Have the doctors done genetic testing to determine if the baby has a named syndrome?

I am sure they are crazy busy taking care of the medical issues, and most likely, feeding issues. If you would like to try to find other families to be a support to you and them, I recommend a group called Cleft Advocate (www.cleftadvocate.org). There are quite a few families whose children have other issues besides cleft lip and palate. Perhaps they can give you information that will be helpful. If nothing else, they are a great resource. There might even be a pathfinder near your friend who can come over and be of assistance.

Please feel free to email me at [email protected] if you want to ask more specific questions. Your friend is very lucky to have you!!

Take care.  (+ info)

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