FAQ - Charcot-Marie-Tooth Disease
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Comfortable shoes for those who suffer from Charcot-Marie-Tooth?


I have charcot marie tooth syndrome, orthotics are extremely uncomfortable for me. So i was wondering if any of yall out there with CMT what type of shoes do yall find comfortable, and can wear for a long period of time?
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I just learned that it affects 1 in 2500 people so there'll be thin chances that you find any here.. how about a Google search for people with same condition that might advice:
http://www.google.com/search?hl=en&ie=ISO-8859-1&q=charcot+marie+tooth+syndrome&btnG=Google+Search&aq=f&oq=&aqi=  (+ info)

Does anyone out there have Charcot Marie Tooth or who can help me?


I have been living with with CMT since I was 7, and I just want to find someone who understands to talk to.
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Hi there,

My daughter, 4 years old has been diagnosed with CMT disease when she was just one year old. We are living in Belgium and I wish to establish a communication link with you. I am very much hopeful that with the advancements of new medical techniques such as stem cells generation, nerve grafting, invention of new medicines etc, this disease would be cured. I believe within 5 years, scientists would find a breakthrough to overcome CMT.

I would appreciate if you would comment on your experience while living with CMT.


Regards,
Karar Haider   (+ info)

How does ascorbic acid benefit Charcot-Marie-Tooth?


I read a little about plans to uses ascorbic acid (vit c) to benefit people with CMT. As I suffer from this condition i was wondering in what way it could help me and others?
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A multicenter, randomized, double-blind, placebo-controlled trial of long-term ascorbic acid treatment in Charcot-Marie-Tooth disease type 1A (CMT-TRIAAL): the study protocol [EudraCT no.: 2006-000032-27]. was started in March 2006 in Italy with 222 patients. The study only recently reported, showed disappointing results with little or no benefit.  (+ info)

Bedwetting and Charcot-Marie-Tooth?


Could Charcot-Marie-Tooth be a cause of a 20 year-old young woman's chronic bedwetting? (Since she was little.)
I believe it makes sense because CMT is neuromuscular. It could be affecting the coordination between the bladder and its reflexes, just as it causes weak ankles and problems with feet coordination.
Has anyone ever heard of this disease being connected with bedwetting?
*Please - I only want answers about bedwetting *and* CMT. Do not tell me other causes of bedwetting.
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You need to discuss this with your doctor.  (+ info)

What are some books about Charcot Marie Tooth?


Hi, these sites may be of help. Good luck to you!

https://secure.charcot-marie-tooth.org/publications.php
http://www.walmart.com/catalog/product.gsp?product_id=5331862
http://www.bdid.com/shop.php?c=8&x=Charcot_Marie_Tooth  (+ info)

Anyone familiar with Charcot-Marie-Tooth Syndrome?


I'm looking for any information or insight out there, as a precious young family member has been recently diagnosed with this disease. Thanks in advance for anything you can share.
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Emily H,
Charcot-Marie-Tooth disease (CMT) is one of the most common inherited neurological disorders and is also known as hereditary motor and sensory neuropathy (HMSN) or peroneal muscular atrophy, comprising a group of disorders that affect peripheral nerves. The peripheral nerves lie outside the brain and spinal cord and supply the muscles and sensory organs in the limbs. Disorders that affect the peripheral nerves are called peripheral neuropathies. CMT is caused by mutations in genes that produce proteins involved in the structure and function of either the peripheral nerve axon or the myelin sheath. Although different proteins are abnormal in different forms of CMT disease, all of the mutations affect the normal function of the peripheral nerves. Consequently, these nerves slowly degenerate and lose the ability to communicate with their distant targets. The degeneration of motor nerves results in muscle weakness and atrophy in the extremities (arms, legs, hands, or feet), and in some cases the degeneration of sensory nerves results in a reduced ability to feel heat, cold, and pain. This subject is of considerable length and would take up too much space to define it at length. I will give a link below where you may learn more details.

ALL ANSWERS SHOULD BE THOROUGHLY RESEARCHED, IN ANY FORUM -
AND ESPECIALLY IN THIS ONE. - MANY ANSWERS ARE FLAWED.

It is extremely important to obtain an accurate diagnosis before trying to find a cure. Many diseases and conditions share common symptoms.


The information provided here should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions.


The link mentioned above

http://en.wikipedia.org/wiki/
Charcot-Marie-Tooth_disease

This is a link to the association which might offer some information or assistance.

http://www.charcot-marie-tooth.org/





Hope this helps
matador 89  (+ info)

is charcot marie tooth more prevalent in males than in females?


Hello, I do not have facts to prove this but I was told by doctors that if a male inherits CMT he is more likely to have a faster progression or earlier on set if he has a form of CMT that is carried on the X Chromosome. Due to the fact that females carry 2-X Chromosomes and males have an X and Y Chromosome. At least a female can have one bad X Chromosome and one good X Chromosome were if a male gets the bad X Chromosome he has only the one X Chromosome. This is not researched facts, it is just learned information.  (+ info)

a condition called charcot marie tooth disorder?


nerve endings dead no power in my toes starts at the bottom of the feet and arms and works its way up very slow degenerative disease no medication for it but they recommend physio therphy
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This is a distressing condition!
There is no cure for CMT, but physical therapy, occupational therapy, braces and other orthopedic devices, and orthopedic surgery can help patients cope with the disabling symptoms of the disease. In addition, pain-killing drugs can be prescribed for patients who have severe pain.
Take the physio, it will help;  (+ info)

Does anyone know something about the best kind of diet people with Charcot Marie Tooth syndrome should follow?


Forums:
http://www.charcot-marie-tooth.org/  (+ info)

I have Charcot-Marie-Tooth but my case is diffenet?


I was with CMT when I was 2. I have case 2. My case is diffenerdifferentin my family have gene of CMT. No one has it. Not even any trace. I was wondering if anyone was out there who is my case. I wish too know why I have CMT
Please and thank you with all of my heart <3
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Hey, I have the same thing. Not a single trace of CMT in my family. I didn't start showing symptoms until 7th grade, and wasn't diagnosed until 8th. I'm in 10th grade now and they still aren't sure which type it is. I'm with you when I say "why me?" and how the heck did this happen? I'm adopted too, but have gotten as much history as anyone knows. It sucks not knowing how or why you got it. If you uwanna email me, go ahead! its nice to know im not the only one without a clue:)  (+ info)

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