FAQ • Cerebellar Ataxia

FAQ - Cerebellar Ataxia
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Does anyone have any information about reoccurring cerebellar ataxia in a child ?

My daughter was diagnosted with this when she was 3 now she is 9 and has it again. The ataxia has followed a viral infection both times. Her gait is unsteady with no other real symptoms.MRI has come back fine both times. The unsteady gait lasted almost a month last time. We don't know what else to do for her.

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ok. it will be long
In cases where it was produced as result of any viral infection (like chicken pox) it will resolve on its own\
In cases where the ataxia is caused by other conditions, like scleriosis or cerebral palsy, it might not be treatable.
but to improve the coordination in both cases there is physical therapy (if experiencing problem with walking) speech therapy (for speech problem) etc. (+ info)

Cerebellar ataxia as a result of severe head injury?

I know that genetic/hereditary forms of ataxia are usually progressive...What about ataxia caused by a head injury? Does it get worse or stay the same? Any general information on this type of cerebellar ataxia is very much appreciated. Thanks!!

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Once the damage is done its done and should not progress unless more damage occurs such as a rebleed or new infarct in that area. Physical therapy may improve the symptoms. (+ info)

Hello everyone out ther, My question is......Does anybody know a good medication for cerebellar ataxia?

I been diagnosed with cerebellar ataxia, head injuries they (DRS) said they have give me many medications and none seem to work.
I have to use a walker and thats embarrissing, its been about 3 1/2 years and I still haven't got better.. I see the neurolgist twice a year for about 3 mintutes, I know I should go to a more professional Neurolist but the funds aren't allowing it, so if anybody out there have a similiar situation please tell me the medication, Cerebellar controls most all functions in your system, there has to be something out there that would at least help.

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All I can give is hope. BF had botched brain surgery and has gone from needing someone to feed him, to back to collage and mechanic work. Took five years but he said the brain can eventually reroute some of the connections. Don't forget to enjoy what you can of the present, don't wait to have fun. Try to make the walker something people smile at when they see it. I've seen old fashioned bulb horns on walkers or racing stripes. It might help with the embarrasment. If people know it makes you uncomfortable then they start looking around like they're trying not to look and thats so hard to put up with for you. Make it a little funny and that will make them feel like it's ok to look at it and you . They will see you instead of just your walker. Hope this helps. (+ info)

Is thr any one from India who had been visited china for stem cell therapy to treat "Cerebellar Ataxia"?

Is thr any other remedies ( may in ayurveda, homeopathy) for this available in India?

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wow! gud luck wid finding an answer! i'm frm India, but never visited China and don't plan 2! (+ info)

Hi I have just been told that I have cerebellar ataxia any help?

Hi three years ago I woke up with my head spinning I have very poor balance and walk with a stick and have nysagmus which is wobbly eyes and get tired easily

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You are not alone.
Hi,

My name is Michel Beaudet, I'm 46, have FA and live in Quebec, Canada.
I'm sending this message to invite people on this list to also join
another list for those with ataxia. The list is called Internaf and
there's also a website full of info at http://internaf.org

International Network of Ataxia Friends is a mailing list for ataxia
patients and family which serves as a support group and information
exchange vehicle. There are currently over 680 subscribers from more
than 40 countries worldwide.
Subscriptions to INTERNAF is free.
For info on how to subscribe, go see, http://internaf.org/network/services.html or
for email only access click here and send: [email protected] or
for full yahoogroups features access go to http://groups.yahoo.com/group/internaf/join

Bye
ps: Don't hesitate to email me if you have questions about internaf
--
Michel Beaudet
[email protected]
Internaf - INTERnational Network of Ataxia Friends
http://pages.infinit.net/macmike
http://groups.yahoo.com/group/internaf
http://www.internaf.org (+ info)

Does anyone know a cure for cerebellar ataxia?

A friend is experiencing this baffling condition and the docs don't know what is causing it. They believe his cerebellum is shrinking causing coordination problems, speech impairment/slurring, unsteady gait. He does not know anyone with the condition. It seems to be progressing and he's been told by docs he could end up in a wheel chair. As a child he had Gilliam Beret disease, a disease that destroys nerve tissue. He was paralyzed at age 13, had therapy and fully recovered. He is now 45 years of age, otherwise healthy--perhaps intolerant of wheat and dairy, but a healthy European male living in the U.S.

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There is no known cure for cerebellar ataxia. (+ info)

do I have cerebellar ataxia?

from time to time sometimes I notice, my hand goes the in the wrong position and my head gets dizzy for a second
sometimes i get speech problems, but rarely, i mix up words, but i think thats just an accident
also i have little scoliosis, but I do enough exercise and its almost cured
VERY OFTEn especially when i was little, my feet would always go numb for about 2 minutes until it goes away
are these symptoms or not?
PLZ HELP!! and i won't go to doctor, at least for now, so anybody who knows the symptoms or has the cerebellar ataxia, plz help?
PLEASE HELP

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It sounds like going to the doctor is the thing you should be doing. Anything having to do with the brain ought to be examined by a qualified specialist and not diagnosed over the net. (+ info)

Do I have cerebellar ataxia?

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There are more or less 100 different types of cerbellar ataxias. A few are treatable (Aved and gluten ataxia) but you need to see a doctor and have an MRI and gene (blood) tests to identify it.

My name is Michel Beaudet, I'm 46, have FA and live in Quebec, Canada.
I'm sending this message to invite people on this list to also join
another list for those with ataxia. The list is called Internaf and
there's also a website full of info at http://internaf.org

International Network of Ataxia Friends is a mailing list for ataxia
patients and family which serves as a support group and information
exchange vehicle. There are currently over 650 subscribers from more
than 40 countries worldwide.
Subscriptions to INTERNAF is free.
For info on how to subscribe, go see, http://internaf.org/network/services.html or
for email only access click here and send: [email protected] or
for full yahoogroups features access go to http://groups.yahoo.com/group/internaf/join

Bye
ps: Don't hesitate to email me if you have questions about internaf
--
Michel Beaudet
[email protected]
Internaf - INTERnational Network of Ataxia Friends
http://pages.infinit.net/macmike
http://groups.yahoo.com/group/internaf
http://www.internaf.org
(+ info)

What are the different types of ataxia?

I am aware Friedrich's ataxia is one of them, but, what are the other types?

Because on wikipedia, it classifies ataxia into 3 groups but I believe these are functional classifications not types of ataxia? Thanks.

So would the 6 types ataxia be:-

Friedrichs
Spinocerebellar
Ataxia tenglectisa
Vestibular
Cerebellar
Sensory

Thanks very much :)

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I found myself w/ cerebellar ataxia a few years back. I'd quit taking drugs cold turkey AND I went through post traumatic stress disorder.

Keep in mind Alarming Accent Ataxia, which usually is what happens in PTSD episodes. (+ info)

who discovered cerebellar ataxia, and when?

(+ info)

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