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FAQ - Bulbar Palsy, Progressive
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I need to know some natural medicines to help with PSP (Progressive Supranuclear Palsy)?


Is there any kind of treatment people have found useful? vitamins? minerals? even ancetodal answers would be appreciated. thanks
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PSP very similar to Parkinson's. While I do not know of any specific recommendations for PSP, I imagine that many of the same things which may help manage Parkinson's might also help with PSP. For more infomation on what I have that may help with Parkinson's, see:

http://www.tbyil.com/Parkinsons_Disease.htm

Note that while Parkinson's Disease has been linked to heavy metals and other toxins as has PSP, PSP has not been specifically linked to aluminum as has Parkinsons.

I would simply repeat the information on my website here, as I usually do, but in this instance it is much too lengthy to include in a single message here. Also, I will tell you in advance that, while I am not trying to sell you anything and while my website is intended primarily as an informational site, it does contain sales links and adverstising (the same as does this site). Anyone who objects to that is advised to simply not go there.

All the best!  (+ info)

Does anyone in this world know of any case of Progressive Supranuclear Palsy getting cured/ better?


Progressive Supranuclear Palsy (PSP) info
www.psp.org
Has any of the traditional or alternate therapy proved worthwile in PSP patients?
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Homeopathic Remedies prescribed according to the patients symptoms not of the disease will help treat and cure it. Homeopathy will not treat Progressive Supranuclear Palsy (PSP) it will treat and cure the person who is affected by it by treating the patients symptoms.
The symptoms of the patient and details about him not the name of the disease. Please post your details exactly the way you feel them from head to toes.
Take Care and God Bless you !  (+ info)

A disease similar to progressive supranuclear palsy?


My grandfather died three years from a disease that was similar to progressive supranuclear palsy. He was a construction worker for close to 50 years and retired finally when we was about 69. (sorry for adding that I just have a very intense feeling of pride for him) His symptoms started about a year after his retirement and was first diagnosed as Alzheimer's. Then about a year after that they told us it was PSP, finally about a year before he died the neurologist told us it was a different disease because it only affected the one side of his body I believe was the reasoning behind the new diagnosis. The doctor told us that although it was similar to PSP it was a totally different disease none the less. I believe it also had to do with his nerves dying as well as parts of his brain. By the end he could barely move at all and was bedridden, his vocal skills were gone although he still was totally aware of his surrounding and the people he loved and knew, thank you for your time. ran out
Thank you for you time my grandmother woke up finally and told me it was cortical basal ganglionic degeneration, if anyone knows of a site that explains what it is in plain terms please let me know so far everything I have found are basically medical journals. Thanks again for your time.
Thank you for you time my grandmother woke up finally and told me it was cortical basal ganglionic degeneration, if anyone knows of a site that explains what it is in plain terms please let me know so far everything I have found are basically medical journals. Thanks again for your time.
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have you tried sites like mayo clinic or searching medical journals? google does good journal searches you might have better luck searching your Grandfathers symptoms that way especially since you cannot fully fit it in here. I wish I had more information for you. If you have 'health team' at your doctors office they some times have a phone nurse you could call them and ask though I am not sure how much neurology background your average family practice nurse might have. Best of luck finding answers.  (+ info)

I cant find super progressive nucleur palsy?


Try this term instead:
Progressive supranuclear palsy
There are lots of good websites.  (+ info)

progressive supraneural palsy?


What exactly is this condition described as? I know the symptoms but dont know exactly what it is.
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Known as PSP - Progressive Supranuclear Palsy -
is a very unpleasant degenerative disease for which there is no cure. It can be confused with Parkinson's Disease in the early stages, but has a few distinguishing features - a tendency to overbalance backwards, an arching of the neck muscles and an inability to move the eyes up and down are a few. There's loads on the web.  (+ info)

Treatment for PROGRESSIVE SUPRANUCLEAR PALSY ( PSP)?


I am from Kerala in India. My beloved father aged 81 years was diagnosed to be having PROGRESSIVE SUPRANUCLEAR PALSY (PSP) about one and half years back.This is a Parkinson Plus movement disorder in Pakinsonism (variant of Parkinson disease) group of diseases.His body balance is lost and cannot stand on his foot,his speech is not legible,he has swallowing difficulty which might result in choking or aspiration of food into lungs, his eye ball movement is restrained etc. etc....Allopathy says this is due to progressive degeneration of brain cells (nuerons) controlling movements in the body and there is practically no treatment for this disease. They have been giving him Syndopa Plus(100+25) 11/2 Tabs 3 times daily. Is there any treatment in any system of medicine? Please help!This is an appeal from a son to save his very very affectionate father.
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Sorry to hear your dad is ill, I guess this isn't really what you want to hear but this is what I came up with.

There is currently no effective treatment for PSP, although scientists are searching for better ways to manage the disease. In some patients the slowness, stiffness, and balance problems of PSP may respond to antiparkinsonian agents such as levodopa, or levodopa combined with anticholinergic agents, but the effect is usually temporary. The speech, vision, and swallowing difficulties usually do not respond to any drug treatment.. Another group of drugs that has been of some modest success in PSP are antidepressant medications. The most commonly used of these drugs are Prozac, Elavil, and Tofranil. The anti-PSP benefit of these drugs seems not to be related to their ability to relieve depression. Non-drug treatment for PSP can take many forms. Patients frequently use weighted walking aids because of their tendency to fall backward. Bifocals or special glasses called prisms are sometimes prescribed for PSP patients to remedy the difficulty of looking down. Formal physical therapy is of no proven benefit in PSP, but certain exercises can be done to keep the joints limber. A surgical procedure, a gastrostomy, may be necessary when there are swallowing disturbances. This surgery involves the placement of a tube through the skin of the abdomen into the stomach (intestine) for feeding purposes.

Good wishes to you and your family  (+ info)

Anyone had a patient with Progressive Supranuclear Palsy?


If so what guided your DDX?
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at this level of suspiscion you should be in contact with a neurologist to ensure correct diagnosis, good luck  (+ info)

Progressive Supranuclear Palsy?


Does anyone know how this disease is transmitted/concieved? Is it genetic, or does someone have to be exposed to a substance of some sort (chemicals/radiation/etc)?

Can it be passed down to family members?
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PSP is a rare degenerative neurological disorder. The cause is unknown. It is unknown whether PSP is caused by hereditary factors, environmental factors, or a combination of both.. It is not "transmitted or conceived"...it just happens. It is often misdiagnosed as Parkinson's disease.  (+ info)

what is cerebral palsy and is it painful? Once it happens, is it progressive?


Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. A new international consensus definition has been proposed: "Cerebral palsy (CP) describes a group of disorders of the development of movement and posture, causing activity limitation that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, cognition, communication, perception, and/or behavior, and/or by a seizure disorder” (Rosenbaum et al, 2005)". The incidence in developed countries is approximately 2-2.5 per 1000 live births. Incidence has not declined over the last 60 years despite medical advances like electro-fetal monitoring. Cerebral palsy is a non-progressive disorder, however secondary orthopaedic deformities are common for example, hip dislocation and scoliosis of the spine. There is no known cure; medical intervention, Conductive Education (w) has been shown to be helpful. These treatments focus on developing the person's participation in everyday life, and not 'fixing' their impairments. While severity varies widely, cerebral palsy ranks among the most costly congenital conditions to manage.

Cerebral palsy is an "umbrella term" in that it refers to a group of different conditions. It has been suggested that no two people with CP are alike even if they have the same diagnosis. Cerebral palsy is divided into four major classifications to describe the different movement impairments. These classifications reflect the area of brain damaged. The four classifications are: (1) Spastic; (2) Athetoid; (3) Ataxic and (4) Mixed. Spastic cerebral palsy is further classified by topography, dependent on the region of the body affected. These typography classifications include: (1) hemiplegia (one side being more affected than the other); (2) diplegia (the lower body being more affected than the upper body); and (3) quadriplegia (All four limbs affected equally).

Cerebral palsy can occur during pregancy (~75%), at birth (~5%) or after birth (~15%). 80% of causes are unknown. For the small number where cause is known this can include infections, malnutrition, and significant head injury in very early childhood.  (+ info)

I am a young adult living with cerebral palsy. What can I expect to experience as I age?


I am only 21 years old and I am experiencing a progressive loss of strength and mobility. Because my case is mild, I will admit to have been denying my condition. However, this has prooved foolish. I am disapointed in myself for what things have turned into. I know that I can turn this around, but how?
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Cerebral palsy is defined as a disorder of movement and posture due to a non-progressive lesion of the motor pathways in the developing brain. However, although it is non-progressive, the clinical manifestations evolve with cerebral maturation, thereby i think your recent pubertal growth spur had something to do with the increased symptoms. However cerebral palsy patients usually benefit greatly from team therapy involving physiotherapists, occupational therapists, speech therapists and phsycologists, apart from their regular doctors and specialists. Try to see your specialist as soon as possible, as these therapies might prove very useful to you and prevent severe complications especially muscle contractures and abnormal postures. In the worst cases, there is even the possibility of certain operations to remove painful contractures and facilitate movements.

I can understand your denial, but the best way to help yourself at the moment is to accept yourself just as you are. Good luck  (+ info)

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