FAQ - Anencephaly
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What are my chances of having another baby with anencephaly and trysomy18 after 6 months of occurance. ?


I am a 28 yr old hispanic and in 7/2006, I was 5 months pregnant and diagnosed my baby with anencephaly and trysomy 18. Now in 01/2007 there is a possiblity that I may be pregnant. I have been taking folic acid. The kind you buy in the vitamin section. Is this dosage okay. Should i take two a day instead of one? What are the odds of having problems with this pregnancy?
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The reccommended dosage for a pregnant woman is 400mcg of folic acid. After having your baby did your doctor suggest you see a genetic specialist? If not, I would opt to see one now, just to be sure. The odds of this happening again are very low. Both anencephaly and trisomy 18 are usually very rare occurances. Talk with your doctor about your fears and keep an open communication with him or her. Good Luck and I hope that you have a very healthy and happy baby!  (+ info)

What color ribbon do i wear for Anencephaly?


My best friend's baby was diagnosed with this neural tube disorder. She passed away at 3:30 on Sep. 1st. of last year
weighed 2oz&&was 5 3/4 inches long.

I want to walk the march of Dimes and make a poster in her memory... what color is the awareness ribbon?
i think that it is green.... im still not sure and i want to know for sure... if you have any sites please list em
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I read somewhere it is a green ribbon. I don't know for sure. Sorry couldn't help more.

EDIT - i looked again for ya and i seen that Anencephaly is a black ribbon. http://www.boardgamegeek.com/thread/386331/designs-waiting-to-be-approved-by-designer/page/1

EDIT - a lady on the site says she wears a green ribbon. Go down 12 post and it says it. http://www.facebook.com/group.php?v=wall&gid=21082057876  (+ info)

Is Anencephaly a genetic disease?


I have to do a 7th grade science project on a disease of my choice...But there is a catch. The disease has to be genetic.

Does anyone know if Anencephaly is a genetic disease?
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  (+ info)

if you had one anencephaly baby what are your chances over having another?


I don't know the answer but I did google it and found this site which might be helpful for you I didn't read all the information myself as my battery is going to die on my laptop

http://www.anencephalie-info.org/e/index.php

good luck
sorry for your loss

I plugged it back in and did some quick research and found this very postitive news

What is the rate of recurrence?
In most cases it is an isolated anomaly and it is very unlikely that it should occur again in the same family. Statistically, the rate of recurrence for a woman who has already had an anencephalic child is 4%.
that is very good news so with lots of folic acid taken before getting pregnant (always a good idea) your chances are very slim  (+ info)

5 months pregnant with a baby boy and need advice on anencephaly please.?


Last tuesday [11-11-08] i found out that my unborn baby boy has Anencephaly, and i was just wondering if anyone knew of anything could be done....i understand it's 100% fatal but i just can't bring myself to just do nothing when it's so early. im only 5 months pregnant. And if anyone's gone through it what did you go through?
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http://thepracticingcatholic.wordpress.com/2008/08/22/a-star-in-the-heavens/

I am not a catholic, but the above story touched my heart in many ways.

http://www.anencephalie-info.org/e/anouk.php
This link is about a mother finding out the baby she is carrying has this disorder, her birth, etc.



  (+ info)

Friend with anencephaly baby?


My friend and his wife just found out that their 20-week-old fetus has anencephaly (no skull, not developing a brain, 100% fatal) and are carrying the baby to term.

For those of you who have experienced this, or know someone who has, is there anything I can do to help ease their pain or make this easier for them? I've only met the wife once or twice, but my heart is breaking for all of them.
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That is one of the saddest things that I have ever heard!!! I will pray for them!!! I have lost a child before and it is impossible to explain the hurt that you feel... mine died in utero and my body would not terminate the pregnancy so I had to have surgery!!! It is so hard!! Just be supportive and get them keepsake of their child cause the memory will never go away and it is a nice gesture!!  (+ info)

Does anyone out there know anything re:fetal acrania or anencephaly?


Fetal acrania or anencephaly is a birth defect that is diagnosised in the first trimester however we were diagnosised inthe latter part if the second trimester of pregnancy. HELP anyone PLEASE!!!!!!
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Please donate the organs of the baby.  (+ info)

Anencephaly....Do environmental factors affect pregnant mothers and there babies?


I gave birth to my son 5-23-07 two days after he was diagnosed with anencephaly. I know that lack of folic acid can contribute to this disorder but i was wondering if environmental factors can play a part. Are there other mothers out there who have birthed a child with this disorder that would like to share the area they live? thanks

In remberance of Noah Robert, our beautiful boy.
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I am so very sorry for your loss.
I have done extensive research regarding neural tube defects/brain malformations, etc since my angel baby was born with alobar holoprosencephaly in 2003. In my case, the defect was caused by the medication I was on during the first 7 weeks of my pregnancy (anti-seizure med). There are studies that point to the medication being the cause, but since it cannot be proven, I was told it was simply a "fluke". I always thought it a disturbing term to describe the loss of a baby, but then I am a bit sensitive when it comes to that. Back to the research, most of the time they will say that there is no known cause, which is the case with anencephaly. Although, there is a current study concerning hazardous waste sites and the occurrence of birth defects. One of the birth defects included happens to be anencephaly. This is not proven, just an organization conducting a study.

http://www.asfhelp.com/asf/chemical_dumps_and_birth_defects

Another good site:
http://www.anencephaly.net/  (+ info)

Who discovered anencephaly?


Or if you know someone who had a child who had anencephaly do you know of anything you can do like any medical treatment or stuff like that. I have a science project on this subject so please help.
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ENCEPHALOPATHY is a condition in the brain. (Brain swelling). Look on emedicine.com for great information. (I am a paramedic)  (+ info)

what is the longest anyone has lived who had anencephaly?


2 months is the longest confirmed survival.  (+ info)

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