nephrotic syndrome

[emily]

hi my son has nephrotic symdrome he was 7 years old he is now 16 years old .he has a biopsy done been on loads of medacation like tacrolimus and prednisolone it didnt help kept relapsing now he on mycophenolate monfetil and prednisonle and there not helping him having a relapse every 1half months he hasnt had a good child hood due to his illness

[iwishiwasbraver1]

I was diagnosed when I was 2 years old and am now 32. I've been in and out of remission for the last three decades, and though I do have bad 3-4 month periods with increased edema and proteinuria and the necessary medications (Prednisone, Furosemide, and now Cyclosporine) I haven't had too many difficulties with my regular day to day.

Diet and excersice help tremendously in that it helps combat the malaise brought on by the edema and weight gain from being on steriods. Low sodium (I'm sure you've heard this) and keeping active helps reduce lethargia. And that can go a long way.

I'm in a relapse now, which is why I was searching online for information, tips and tricks, and to read the support system, but I've had the experience and confidence to know that I will be in remission in few months. Hang in there. Advise your son that there is just this one bit of him that he can't control, but he could do much to prevent the ill feeling that arrives when he does relapse.

Good luck.

[sharath_suvarna]

Hi

My name is Sharath Suvarna. I am suffering from Nephrotic Syndrome from the age of 2. Now I am 24 years with periods of relapse.every year. Latest i got 1 plus in urine test and 1.17 in protein to creatinine test which is normal. Burt doctor has recommended Tenflay 30mg 1 per day. Till now i was on Omnacortil but now I am new to this tenflay. please tell me more about your experience with this disease as it has been throughout my life and still there.